Jump to content
  • Sign Up
christy73

in process of diagnosis

Rate this topic

Recommended Posts

I had an endoscopy with biopsies taken.  The appearance of my small intestines were that of Celiac, also the biopsy results were positive for Celiac disease.  I immediately put myself on a gluten free diet.  Three weeks later was had the follow up with doctor.  At this time they did the blood work for Celiac.  They said the blood work must be positive along with biopsy results for confirmed diagnosis.  My question is if I was gluten free for three weeks prior to blood work, how will the blood test results show positive for Celiac?  Thank you for any help given.

Share this post


Link to post
Share on other sites

It usually takes more than 3 weeks on the gluten free diet for antibody levels to go down to normal.  However, if your blood tests come back negative, you may want to do a gluten challenge and retest.

Share this post


Link to post
Share on other sites

RMJ - can you give a link about what you said about the antibodies going down after three weeks? And, which antibodies? Thanks!

Share this post


Link to post
Share on other sites
1 hour ago, plumbago said:

RMJ - can you give a link about what you said about the antibodies going down after three weeks? And, which antibodies? Thanks!

This is not going to help the original poster, but this info should help you. 

http://www.bidmc.org/Centers-and-Departments/Departments/Digestive-Disease-Center/Services/Celiac-Center/FAQ/DiagnosingCeliacDisease.aspx

"How long does it take for the tTG blood test for celiac disease to be normal? 

It depends on the test. One of the tests used most often, tissue transglutaminase (tTG), has a half-life of six months. In other words, it should drop by a half-fold in six months. Hence, if you started off at a tTG level in the thousands, it might take several years to normalize. However, most tTG levels normalize within several months to one year in adults on the gluten-free diet. 

Many times it is tricky to predict when the test should become normal since some tTG tests don’t report values beyond a certain value. For example, one test reports values up to 120 mg/dl after which all values whether, in the hundreds or thousands, are reported in the same manner, i.e. >120. Visit Blood Tests under Medical Management on www.celiacnow.org

Is it important to have repeat blood tests or biopsies to confirm that I have celiac disease? 

It is important to be accurately diagnosed with blood tests and a biopsy before going on a gluten-free diet. After starting the diet, follow-up tests are individualized based on age, symptoms, and other health problems. Routine follow-up with a dietitian skilled in celiac disease and a gastroenterologist is strongly recommended. In most cases, blood tests are performed on a regular basis, while repeat biopsies are not usually necessary. A doctor will determine which specific tests are needed. Visit Blood Tests under Medical Management on www.celiacnow.org."

Share this post


Link to post
Share on other sites

christy73, I fail to understand why your doc didn't do your blood work prior to the biopsies. Why were you having an endoscopy? When the biopsies came back positive for celiac, did the doc tell you to go gluten free right away? This is all backwards. You get the blood tests & then the endoscopy not the other way around. Plus, biopsy is the gold standard; if you have biopsy proven celiac there should be no need to confirm with serum panel. 

Be aware that it's possible your blood panel will come back negative especially if they didn't give you the entire panel.

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


×
×
  • Create New...