Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Test result help ??

fionafionafiona

Recommended Posts

fionafionafiona Rookie
fionafionafiona
Posted

Hallo could anyone help interpreting these results?? I know everyone on here must get asked this question a lot... so sorry to repeat! 

They appear negative but I understand they can often be misleading, especially after only a two week gluten challenge (since being gluten free for a month prior) - I wasn't gluten free for very long so would that still produce a false negative???

Results are:

tissue transglutaminase igG level = negative 

tissue transglutaminase igA level = 1.6 U/mol 

There doesn't seem to be a normal reference rate or the full panel of tests others refer to...

 

my symptoms were numbness in hands, face and legs since Jan. Gave up gluten and sugar in February and the numbness went away but gi problems which were not very noticeable before increased.

After one month gluten free, I completed 2 week gluten challenge and at the ends of two weeks was noticeably worse gi wise. That's was three weeks ago and still feel like I am  not improving :(.

 

Doctor has referred me for a gastro but any encouragement that it still could be gluten would be welcome. 

 

Thanks for for you help 

 

xxx

 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Welcome.  Ah.....the test probably did not work.  You need to be consuming gluten daily 8 to 12 weeks prior to the blood test and about 2 to 4 for the endoscopy.  Antibodies in the blood can drop as fast as two weeks.  They can take time to rebuild too.  You  really need ranges too.   Lab ranges vary, so we can tell if the result is positive or not.  

See the GI.  He may recommend a gluten challenge.  Re-introducing gluten can be hard, so being under a doctor's care is advised.  

Celiac disease is an autoimmune disorder like lupus or R. Arthritis except we know the trigger for flare-ups in Celiac disease -- gluten.  Once set-off, the flare can last for days or months.  Symptoms can take over a year to resolve depending on damage.  Learn more:

Open Original Shared Link

Make sure they ran an IgA deficiency test.  In the case of celiac disease it is used as a control test.  Looks like you had the standard screening.  If you consider a challenge ask for the complete panel to really rule out celiac disease.

I wish you well.  

Jmg Mentor
Jmg
Posted
3 hours ago, fionafionafiona said:

Gave up gluten and sugar in February and the numbness went away but gi problems which were not very noticeable before increased.

After one month gluten free, I completed 2 week gluten challenge and at the ends of two weeks was noticeably worse gi wise. That's was three weeks ago and still feel like I am  not improving :(.

 

Doctor has referred me for a gastro but any encouragement that it still could be gluten would be welcome

Hi Fiona,

I was you 3 years ago! 

I also cut gluten out myself then realised what an impact it had and went to the doctor only to be told incorrect information that may have compromised the test :(

To save you wading through my thread, I went through a challenge and had a negative biopsy, but guess what, gluten was still the problem for me and cutting it out did the trick. So even if you go down the diagnostic route and get a negative, please don't discount gluten as the cause, you may be like me. 

I take it you've cut gluten out again since the test? If not, then much as you won't feel like it, I'd stay on it at least up until the gastro appointment.  That gives you the option of another test as he or she will realise the first one is invalid on a 2 week challenge. 

If you have cut out gluten then be prepared for the gastro asking you to go back on it and decide what your answer will be. If you do the challenge then there will be plenty of support here for you. :)

Best of luck! 

fionafionafiona Rookie
fionafionafiona
Posted
  • Author

Thanks both! 

I have cut it out again .... I don't think I can face another challenge! I will try to be as strict as possible and see if I improve over the next month or so while waiting for gi and let that be my diagnosis.

 

 Just really grateful for the internet and googling as this process has been realtivy short. Relieved the numbness seems controllable - just need to get the gi symptoms together 

Jmg Mentor
Jmg
Posted
6 hours ago, fionafionafiona said:

I have cut it out again .... I don't think I can face another challenge!

Fair enough, I know exactly how you feel. :)

It would be a good idea to keep a food journal over the next few weeks, it's something to refer to when you prepare for your GI meeting and it's really useful for tracking progress or otherwise on the diet or nailing a potential source of gluten contamination. 

If you're sticking with the diet for the forseeable this is a good thread to check out:

And don't be afraid to ask on here, there's plenty of people with good experience who will offer support.

Best wishes :)

 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,077
    • Most Online (within 30 mins)
      10,442
    terrificterry
    Newest Member
    terrificterry
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Edy's and Dreyer's ice cream

      By knitty kitty · Posted

      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...