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sddave

Finally was diagnosed.

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So I was told my gluten antibody blood test came back positive.  The second time my biopsy was tested it came back positive a couple weeks ago.   I have a followup visit with my GI doc. this week.

 

Most common of my pre-diagnosis symptoms was my stomach was growling/gurgling.  I really noticed it after I ate some Synder's Sourdough pretzels....I'll miss them.  Eventually when my stress level got really high it growed/gurgled all night and was hard to sleep with also sore stomach.  That's when I went to my GI doc for an endoscopy.  There was other things like a couple times getting rashes, constipation, leg cramps/twitches, brain fog. that occasionally occurred but seem when my stress level was really high.

But even after going gluten free my sometimes my stomach still has gurgling.   After reading on celiac disease I've heard this term leaky gut.   My doc never mentioned it.

This normal.....my stomach still has gurgling?   I know it hasn't been long since going gluten-free.

 

 

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Celiac.com Sponsor (A8):

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Welcome to the club you never wanted or thought you would join!  ?

What you doctor might have not told you is that it takes months to years to heal depending on the amount of damage you have sustained not only to your GI tract, but other areas of the body (celiac disease is systemic).   Browse through the Newbie 101 thread under the "coping" section for valuable tips that could expedite healing.  

Hang in there!  It does get better!  


Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test and Endoscopy: March 2013

Hashimoto's Thyroiditis -- Stable 2014

Anemia -- Resolved

Fractures (vertebrae): June 2013

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Diabetes -- January 2014

Celiac.com - Celiac Disease Board Moderator

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https://www.celiac.com/forums/topic/91878-newbie-info-101/

We suggest a whole foods only diet starting off, first few months to boost healing, Drop dairy and oats if you can also for a month or so. You will keep having gut issues etc. for 2-6 weeks til your body clears of gluten, Literally it takes this long for your antibodies to come down from exposure even a crumb can spike it back up causing the damage all over again.

There are plenty of gluten-free options available, heck I just saw glutino pretzels at the store. here is a list I composed awhile back with some gluten free options.

https://www.celiac.com/forums/topic/117090-gluten-free-food-alternatives-list/

First Few months try eating the processed foods in moderation or not at all. Will help boost your healing.


Diagnosed Issues
Celiac (Gluten Ataxia, and Villi Damage dia. 2014, Villi mostly healed on gluten-free diet 2017 confirmed by scope)
Ulcerative Colitis (Dia, 2017), ADHD, Bipolar, Asperger Syndrome (form of autism)
Allergies Corn, Whey
Sensitivities/Intolerances
Peanuts (resolved 2019), Cellulose Gel, Lactose, Soy, Yeast
Olives (Seems to have resolved or gone mostly away as of Jan, 2017), Sesame (Gone away as of June 2017, still slight Nausea)
Enzyme issues with digesting some foods I have to take Pancreatic Enzymes Since mine does not work right, additional food prep steps also
Low Tolerance for sugars and carbs (Glucose spikes and UC Flares)
Occupation Gluten Free Bakery, Paleo Based Chef/Food Catering

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17 hours ago, sddave said:

So I was told my gluten antibody blood test came back positive.  The second time my biopsy was tested it came back positive a couple weeks ago.   I have a followup visit with my GI doc. this week.

 

Most common of my pre-diagnosis symptoms was my stomach was growling/gurgling.  I really noticed it after I ate some Synder's Sourdough pretzels....I'll miss them.  Eventually when my stress level got really high it growed/gurgled all night and was hard to sleep with also sore stomach.  That's when I went to my GI doc for an endoscopy.  There was other things like a couple times getting rashes, constipation, leg cramps/twitches, brain fog. that occasionally occurred but seem when my stress level was really high.

But even after going gluten free my sometimes my stomach still has gurgling.   After reading on celiac disease I've heard this term leaky gut.   My doc never mentioned it.

This normal.....my stomach still has gurgling?   I know it hasn't been long since going gluten-free.

 

 

Mine still gurgles. Last night during dinner it was going wild and I asked my husband (not a celiac) if his does that and he said "yeah all the time."

you mentioned stress, and I feel you there. When I'm stressed my belly is unhappy. Gurgling tummy isn't always because of celiac. Plenty of people have gurgling, indegestion, etc and they don't have celiac. Sometimes those issues aren't all celiac's fault. That's what I've learned. I have a nervous belly and I know that's just me to a certain extent. Eating gluten would make it worse but at 7 months I'm still gurgly and gassy sometimes. My stomach rarely hurts though, and if it does, it's because I'm all wrapped around the axle with my nerves. That'll never go away.

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On 6/12/2017 at 1:36 PM, sddave said:

So I was told my gluten antibody blood test came back positive.  The second time my biopsy was tested it came back positive a couple weeks ago.   I have a followup visit with my GI doc. this week.

 

Most common of my pre-diagnosis symptoms was my stomach was growling/gurgling.  I really noticed it after I ate some Synder's Sourdough pretzels....I'll miss them.  Eventually when my stress level got really high it growed/gurgled all night and was hard to sleep with also sore stomach.  That's when I went to my GI doc for an endoscopy.  There was other things like a couple times getting rashes, constipation, leg cramps/twitches, brain fog. that occasionally occurred but seem when my stress level was really high.

But even after going gluten free my sometimes my stomach still has gurgling.   After reading on celiac disease I've heard this term leaky gut.   My doc never mentioned it.

This normal.....my stomach still has gurgling?   I know it hasn't been long since going gluten-free.

 

 

 

Though I haven't been diagnosed Celiac (though I'm highly suspicious this is the case), I too have had CRAZY intestinal sounds when I have gluten in my diet. I'm currently doing a 5 week gluten challenge so I can get blood tests, and just like clockwork my stomach and intestines have gone nuts. Making all sorts of loud sounds. It's unfortunate because I'm in medical school and take about 2-3 exams every week and it is extremely distracting and embarrassing to always be making sounds. Stay with it, though! When I cut out gluten for a few months all the gurgling eventually went away. It just takes a long time. 

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On 8/9/2017 at 1:46 PM, at1992 said:

Though I haven't been diagnosed Celiac (though I'm highly suspicious this is the case), I too have had CRAZY intestinal sounds when I have gluten in my diet. I'm currently doing a 5 week gluten challenge so I can get blood tests, and just like clockwork my stomach and intestines have gone nuts. Making all sorts of loud sounds. It's unfortunate because I'm in medical school and take about 2-3 exams every week and it is extremely distracting and embarrassing to always be making sounds. Stay with it, though! When I cut out gluten for a few months all the gurgling eventually went away. It just takes a long time. 

My stomach makes weird noises when I go overboard on ice cream (more than a quarter cup). I always get separate ice cream because I go thru mine so slowly.

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