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Jules22

Still trying to process

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My type 1 diabetic daughter has an appointment with the gastro next week but something I'm wrestling with in her test results

 

her immunoglobulin A was 78- lower than range which is 80- up

her transglutinminase TTG IGA was > 100

 

Is she immunoglobulin a deficient?  If she is, doesn't the deficiency only rule out negative results and since she is very much positive then she is definitely headed toward a celiac diagnosis?

 

Thanks!- I'm having a hard time waiting for this appointment 

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I agree it is pretty certain with a number that high that she is celiac. Do keep her on gluten until you see the GI. Depending on her age, and the GI's preferences, the doctor may want to do an endo.

It is hard when your child is sick to wait but thankfully next week will be here soon. I hope she heals quickly.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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I know.  It is a lot to process, but it is doable.  You ALL will have the rest of the summer to research and learn about the gluten free diet and learning how to avoid cross contamination.  Planning and being prepared always will make it much easier.  

Your daughter will so much better in school if she is feeling well. 


Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test and Endoscopy: March 2013

Hashimoto's Thyroiditis -- Stable 2014

Anemia -- Resolved

Fractures (vertebrae): June 2013

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Diabetes -- January 2014

Celiac.com - Celiac Disease Board Moderator

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9 hours ago, Lindsey1978 said:

Just wondering if you have an update at all? Going through the same thing at the the moment with my type 1 14 yr old.

I would be interested to know what your gi said and how your daughters doing now?

xx

You can go here, which is found by clicking on the posters name https://www.celiac.com/gluten-free/profile/74789-jules22/ and read her most recent posts about the biopsies.

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