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Jules22

Still trying to process

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My type 1 diabetic daughter has an appointment with the gastro next week but something I'm wrestling with in her test results

 

her immunoglobulin A was 78- lower than range which is 80- up

her transglutinminase TTG IGA was > 100

 

Is she immunoglobulin a deficient?  If she is, doesn't the deficiency only rule out negative results and since she is very much positive then she is definitely headed toward a celiac diagnosis?

 

Thanks!- I'm having a hard time waiting for this appointment 

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To my knowledge a deficiency only rules out a negative. >100 is very high to be anything other than celiac, in my opinion. She should stay on gluten until after the endoscopy, assuming the doctor orders one.

 

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Yea even deficient in IGA she is very positive.  Your little is likely celiac.  Ditto to still eating gluten till the endoscopy.  It is important to have it to correlate the diagnosis!

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I agree it is pretty certain with a number that high that she is celiac. Do keep her on gluten until you see the GI. Depending on her age, and the GI's preferences, the doctor may want to do an endo.

It is hard when your child is sick to wait but thankfully next week will be here soon. I hope she heals quickly.

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Thanks for the responses- I'd be lying if I said I wasn't hoping for another possible explanation.

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I know.  It is a lot to process, but it is doable.  You ALL will have the rest of the summer to research and learn about the gluten free diet and learning how to avoid cross contamination.  Planning and being prepared always will make it much easier.  

Your daughter will so much better in school if she is feeling well. 

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Just wondering if you have an update at all? Going through the same thing at the the moment with my type 1 14 yr old.

I would be interested to know what your gi said and how your daughters doing now?

xx

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9 hours ago, Lindsey1978 said:

Just wondering if you have an update at all? Going through the same thing at the the moment with my type 1 14 yr old.

I would be interested to know what your gi said and how your daughters doing now?

xx

You can go here, which is found by clicking on the posters name https://www.celiac.com/gluten-free/profile/74789-jules22/ and read her most recent posts about the biopsies.

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