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What should I do?

PK-432
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PK-432 Explorer
PK-432
Posted

I have consulted up to 11 gastroentrologists up till now since 2012. 

I am devastated due to my bad health.  

Dr. Has yesterday started lomotil and advised me to take pencilin husk with yogurt at night. These both has increased severity of cramps.  

DGP-IGA and DGP-IGG is not available with the lab.  Should I go for AGA test? What is the percentage of accuration of its results about celiac disease? 

Every gastroentrologist say that I have IBS. But my symptoms say Big No and even medicines do not reduce my symptoms. 

What should I do? 

Thanks for you suggestions and advice.  It means a lot to me.  

Regards 

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Ennis-TX Grand Master
Ennis-TX
Posted

There are some labs you can order online I am sure others have some suggestions on these but I am unsure if they go to your country. I had someone suggest to me with my health issues that I go to another country to get it treated better. Test for test I can not give much advice.

I assume you mean psyllium husk, umm it is not so good with a irritated gut, the stuff is like scrubbing your intestines with a loofah sponge...good for occasional cleaning but rough on the intestines and will irritate them. Yogurt should also be avoided as the dairy is hard to break down and is going to cause gas and bloating, a plain non dairy probiotic will work better (I make my own yogurt with coconut milk and probiotic pills).

Fiber wise look to stuff like leafy greens low carb foods (carbs will ferment and break down making gas worse) like nuts, seeds, ground into butters for ease of digestion. Some people find konjac to work good, works like a thickening agent, and is used it low carb foods like shirataki noodles/rice, does cause gas in some people with a bad gut biome (I could not eat it for a few months with a candida issues that sprung up after antibiotics ruined my gut biome)
My personal favorites for Fiber are whole pumpkin seeds, cocoa nibs, that I get or grind into a fine meal/paste and use in meals, I also use hemp seeds but you have to be VERY careful about sourcing non contaminated ones.
Other things with gas, go easy on the garlic, onions, starchy veggies or foods, fruit, and grains. More sugar/fermentable carbs you eat the worse it will become and spices can make your gut throw a tantrum.

GFinDC Veteran
GFinDC
Posted

You don't have to have a celiac diagnosis to eat gluten-free.

cyclinglady Grand Master
cyclinglady
Posted

I agree.  Trying the gluten free diet can not hurt you.  Give it a few months though!  It takes time to heal.  

PK-432 Explorer
PK-432
Posted
  • Author

I agree with you Ennis_TX, I was talking about psyllium husk.  I  took it only one time and it has increased intensity of my pain. I do not take more fiber because it increases my diarrhea.  I am really thankful for your suggestions.  I already take low fiber diet. I also took  non dairy probiotics but they were not helpful.  

PK-432 Explorer
PK-432
Posted
  • Author

To GFinDC and cycling lady, I really want to go for gluten free diet but after proper disgnosis because I went gluten free for two times but I had cross contamination every week because my family do not understand cross contamination completely and it causes dispute in home,every day . Dr's also always discourage me to be on gluten free diet.  So, I am really devastated of this situation. I am really thankful for your suggestion and I am hopeful that one day I will  be properly diagnosed.  

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