Jump to content
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

Rate this topic

Recommended Posts

I have been going to this wellness center and they did a bunch of test on me and now I have lupus since they told me I feel it every where they said I loose mussel and I did today I couldn't even pick up 5gallon bucket I'm just over freaking out once it's in my head I think I'm dieing they they said my kidneys are not working properly neither is my man I can't remember it wasn't my liver but another organ is working properly I guess I'm allergic to a bunch of things I ate in the last week because I didn't know , garlic, black and white pepper, chocolate, cranberries, Brewers yeast, bakers yeast, lime, flaxseed, grapes, Honey dew, goat's milk, millet, pistachio, those are all my new allergies besides everything outside so to get to the point can any one tell me about lupus I read online but I guess I don't understand how it effects you like does that cause my heart palpitations, or is that why I can't lift things I'm weak , I don't know if I'm not feeling better because like the lupus is really hurting my insides or if it's still from eating that stuff . I forgot to say I went to Dr yesterday and found all those things out sucks cause 90% of my food has one of those ingredients . 

Share this post

Link to post
Share on other sites

I do not know much about lupus but one of my customers at my bakery says she eats gluten free because of it. A bit of a light to your allergies, I know I keep reading they are life long but I had "Capsicum annuum" (Paprika, bell peppers, jalapenos etc) and along with corn, beets, whey, and a few others show up on my allergy test years ago.  I removed them for a year and tried them later on and off. The beets capsicum annuum, have gone away but I react much worse to whey and corn now. 
For now looks like your going to be doing home cooking with fresh unseasoned ingredients til your immune system chills out. You can season with fresh herbs to get flavor while avoiding your allergens it seems from your list. Think like basil, thyme, oregano, etc. The kidney issues also mean a specific diet avoiding salt, and some other things. You should probably see about talking to a nutritionist. 

The lifting something heavy, I am unsure if lupus effects are similar to gluten ataxia but I can not lift stuff, constantly drop stuff, and have coordination issues for few days after exposure.  It does seem to resolve after a bit but I am assuming this has to do with antibodies going down.

Share this post

Link to post
Share on other sites

Hi Daphne,

I don't know much about lupus but I know it is a serious disease.  I suggest you find a different doctor and get a 2nd opinion on it to be sure.

Share this post

Link to post
Share on other sites

I agree that you should get another opinion from a medical doctor.  Alternative wellness centers might be helpful, but not always.  I just read this article about a study done concerning celiac disease.  So many naturopaths and chiropractors are not diagnosing celiac disease correctly.  


In my non-medical opinion, those allergy (IgG) tests are not accurate at all (and the board of certified allergy and Immunology agrees).  This site explains it well.  


You probably should be diagnosed by a rheumatologist (MD) who specializes in lupus.  I do not know your health insurance situation, but it is definitely worth further investigation.  



Share this post

Link to post
Share on other sites
23 minutes ago, Daphne do said:

Thank I will call a rheumatologist on Monday and I'll see if the regular Dr for allergy test

In the meantime, consider a food/environmental journal.  Often that is a great approach in helping to identify allergies or food intolerances.  Of course, avoiding gluten is critical.  I know if I get gluten exposures, it seems to set off my other autoimmune disorders.  

Share this post

Link to post
Share on other sites

So I live in upper Michigan I call the only rheumatologist in Marquette and they are not taking any new patients now I have to go to Green Bay and pay $350 just to ask them to take the test for lupus that doesn't seem fair 

Share this post

Link to post
Share on other sites
19 minutes ago, kareng said:

I don’t know much about Lupus - could your regular doctor order the test?

I don't know I have an appointment on Thursday this week to ask them because I couldn't go to rheumatologist I'll let you know

Share this post

Link to post
Share on other sites

I went to the Dr in Marquette mi and he listen to me for once they took 10 viles of blood from me cause there is not one test for lupus so he's doing them all and I'm got referred to a allergist im very surprised that he actually did the test at first the nurse said I don't think your insurance will pay for it I said I would pay for it so not sure if I have to pay or insurance but they did the test in a month I get the results

Share this post

Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

  • Top Posters +

  • Upcoming Events

    • June 19, 2019 04:00 PM Until 08:00 AM
      Celiac Emotional Healing Support Group
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • July 07, 2019 Until August 03, 2019
      For more information, visit www.kefss.com or call (407) 255-6550. info@kefss.com 

      KEF USA Summer Camps Announces the New KEF Gluten-Free Camp in Orlando, Florida for Youths with Celiac Disease.

      [Orlando, FL February 6, 2019]-KEF USA is excited to announce that we will offer a new 100% gluten-free camp program to give kids and teens with Celiac Disease a safe, exciting and healthy summer. KEF USA programs offer fun and unique experiences that can only be found in Orlando, Florida. Campers explore the theme parks and local attractions, make new friends, discover new interests and create memories that last a lifetime.

    • July 08, 2019 Until July 09, 2019
      14th Euro-Global Gastroenterology Conference happening in Zürich, Switzerland during July 08-09, 2019. We are expecting more than 300 attendees representing from more than 40 countries who would be sharing their experiences and expertise around the world Theme: “Future Perspectives and shaping trends in Gastroenterology”
      You may learn more about our congress by visiting our website: https://europegastroenterology.gastroconferences.com/
      Microbiota and diseases|Acid Related Diseases|Helicobacter Pylori Treatment|Therapeutics targeting Microbioma|Advanced Nutrition and Dietetics in Gastroenterology|Inflammatory Bowel Diseases|Clinical Advances in Liver Diseases|Gastrointestinal Disorders and Drug Delivery|Obesity and Treatments|Gastrointestinal Pathology|Neuro Gastroenterology and Motility disorders|Pediatric Gastroenterology, Hepatology and Nutrition|Gallbladder and biliary tract Diseases|Latest advances in Gastroenterology treatments|Endoscopic Innovations in Gastroenterology and surgery|Clinical and Radiographic Gastrointestinal Abnormalities|Functional GI Disorders|Changing Trends in Etiology of Liver diseases|Epigenetics of gastrointestinal diseases|Bariatric Surgery|Gastrointestinal Radiology and Imaging|Developing treatment for Viral Hepatitis and Fibrosis of Liver|Emerging Trends in Clinical Research of Liver diseases|Hepatitis B treatment Patterns|Therapies in Pancreatic cancer|Diabetes and hepatocellular carcinoma|Intestinal Metaproteomics and Type 1 Diabetes
      Conference Benefits
      ·         CME Credits  
      ·         CPD Credits
      ·         Research publication in proceeding book
      ·         Abstract publication in associated online journal
      ·         DOI by Cross-Ref
      ·         Online speaker webpage
      ·         Workshops and Symposium
      ·         Certificate for participation and attendance
      ·         Young Researchers Forum and Posters Award for Students
      ·         B2b and Networking meetings
      Program Director
      Sophia Williams
      Gastroenterology 2019 | Zürich | Switzerland
      conferenceseries.com https://europegastroenterology.gastroconferences.com/
      E-mail: williams.sophiaa@yandex.com
      Whatsapp us : +442382146717
  • Create New...