Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Skin Color Purple


Guest cainepole

Recommended Posts

Guest cainepole

I am new to the boards here so, let me introduce myself. I'm 26 & 120 and was diagnosed with celiac disease almost a year ago but have probably had it my whole life considering previous misdiagnoses. Along with my symptoms of celiac disease one thing my doctor and I haven't figured out is my purple skin tone. With my size and color I look like a corpse, which is fine for Halloween but, this is year round. Even if I tan my skin stays tinted dead purple. Anyone have any advice? :huh:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



chrissy Collaborator

one of my twins is really thin (actually they both are but one is 15-20 lbs heavier than the other) anyway, the thinnest one quite often gets blue lips and blue hands, but it is usually when she is cold---even if the rest of us aren't cold.

christine

Lisa Mentor

I would suggest a full blood work panel to see what difficencies that you may have. Perhaps a vitamine inbalance. Those of us with celiac, it is always good to do that several times a year to make sure that we are getting what we need to have our body function as well as it can.

Lisa B.

SurreyGirl Rookie
...purple skin tone...

There is an autoimmune condition called dermatomyositis, although this presents itself more in purple patches. Since many autoimmune conditions can be triggered by gluten, could there be a connection?

  • 2 months later...
Guest cainepole

I still haven't gone to the doc for a full blood work up. A friend of mine with Lupis said that I might not be getting enough Beta Carotene and suggested Burt's Bee's carrot oil lotion, this does not seem to be helping so I guess it is time for that blood work up. If I can get the cash together soon I'll let all of you know what the results are. Another suggestion that was made to me was low capilarairy response, does anyone know more about that?

GlutenFreeAl Contributor

It's possibly Reynaud's disease, which I have. Basically I it means that there's not much blood flowing in my extremities and they're almost always cold and purple.

There's nothing they can do for it with the possible exception (I think) of blood thinners.

I've learned to just live with it and invest in warm gloves and wool socks (don't know what your climate is like) and it's actually gotten better as I've gotten older.

My face is always super super pale as well, and I'm sure that's related.

Sorry couldn't be of any more help than that!!

nikki-uk Enthusiast

I think I have this-

Toes and fingers go purple (even in summer!)

Interestingly my face is always very pale too,it doesn't even tan.

This winter I got some chilblains on my toes (gosh they hurt!) and I am sure it's all related.

BTW I am not a coeliac (my husband is-but I am gluten-free with him)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
I am new to the boards here so, let me introduce myself. I'm 26 & 120 and was diagnosed with celiac disease almost a year ago but have probably had it my whole life considering previous misdiagnoses. Along with my symptoms of celiac disease one thing my doctor and I haven't figured out is my purple skin tone. With my size and color I look like a corpse, which is fine for Halloween but, this is year round. Even if I tan my skin stays tinted dead purple. Anyone have any advice? :huh:

This may be something called livedo reticularis, I had it all my life and it got real pronounced when I was at my sickest. For some reason acupuncture would clear the color before I went gluten-free, it kind of amazed the Dr doing it. Now my skin tone is normal (it did take a long time to go away)- unless I get glutened. I theorize that it is a blood vessel response to the toxin because it goes away if I am totally gluten-free. But who knows. So anyway you may want to try acupuncture and make sure you are completely gluten-free.

paulasimone Rookie
A friend of mine with Lupis said that I might not be getting enough Beta Carotene and suggested Burt's Bee's carrot oil lotion, this does not seem to be helping so I guess it is time for that blood work up.

If you mean the Carrot Day (or Night) Creme, it has gluten in it. :o Below is the the list of Burt's Bee's products NOT to use.

:)

Paula

---------------------------------------------------------------------------------

Thank you for contacting Burt's Bees. The Quality Resources Department Manager has put together a list of products that SHOULD NOT be used by Celiac Patients. These products contain wheat, oat, rye, or barley derived ingredients.

Please AVOID these products:

Baby Bee:

Apricot Baby Oil (Wheat)

Buttermilk Soap (Oat)

Shampoo Bar (Oat)

Healthy Skin:

Avocado Hair Butter Treatment (Oat)

Carrot Day Crème (Wheat)

Carrot Night Crème (Wheat)

Citrus Facial Scrub (Oat)

Coconut Foot Crème (Oat)

Orange Essence Cleansing Crème (Oat)

Vitamin E Bath & Body Oil (Wheat)

Healthy Treatment:

Repair Serum (Wheat)

Natural Remedy:

Dr. Burt's Res-Q Ointment or Comfrey Salve (Wheat)

Poison Ivy Soap (Oat)

Rosemary Mint Shampoo Bar (Oat)

Peppermint Foot Lotion (Wheat)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to HectorConvector's topic in Related Issues & Disorders
      356

      Terrible Neurological Symptoms

    2. - Aretaeus Cappadocia replied to HectorConvector's topic in Related Issues & Disorders
      356

      Terrible Neurological Symptoms

    3. - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      356

      Terrible Neurological Symptoms

    4. - Aretaeus Cappadocia posted a topic in Gluten-Free Recipes & Cooking Tips
      0

      Zaalouk moroccan eggplant salad

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,058
    • Most Online (within 30 mins)
      10,442

    Barbjwils
    Newest Member
    Barbjwils
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Sciatica came to mind for me as well. You might want to get some imaging done on your C-spine.
    • Aretaeus Cappadocia
      Maybe this is sciatica? When mine acts up a little, I switch my wallet from one back pocket to the other. this isn't a substitute for more serious medical help, but for me it's a bandaid.
    • HectorConvector
      OK so I just learned something completely new about this for the first time in years, that is REALLY WEIRD. One of my nerves that likes to "burn" or whatever is doing it every time I bow my head! I mean it is completely repeatable. Literally every time. Once my head goes beyond a certain angle *boom*. Nerve goes mental (lower right leg pain). What the hell. I've never seen a direct trigger such as this before that I can recall. The pain was the usual type I get from this problem - I suspect somehow the head movement was interrupting descending inhibition processes, causing the pain to leak through somehow.
    • Aretaeus Cappadocia
      I've only made this a couple of times but it's really easy and I love the flavor. If you can, use all of the ingredients to get the full palette of flavors. I use fresh or canned tomatoes and I don't worry about peeling them. If you don't have harissa, there are replacement recipes online. If you don't have the greens, I suggest adding a little chopped baby spinach or celery leaves to add a dash of green color to this red dish. Best eaten in first couple days because flavor tends to fade. Leftovers are still good, but not as vibrant. Ingredients 2 medium eggplants, partially peeled and cut into cubes (original recipe says 1 in, but I prefer 1/2 to 3/4 in) 2 tomatoes, peeled and crushed 4 garlic cloves, finely chopped or minced 1 tablespoon fresh flat-leaf parsley, chopped 1 tablespoon fresh cilantro, chopped ¼ cup extra virgin olive oil 2 tablespoons spicy harissa (I use Mina brand) 1 teaspoon cumin 1 teaspoon paprika ½ teaspoon black pepper 1 tablespoon apple cider vinegar or lemon juice 1 tablespoon tomato paste (optional) Salt to taste Preparation     • Heat olive oil in skillet or pot over medium heat. Add all ingredients and cook for 10 minutes, stirring occasionally. Cover and cook on low heat for an additional 20 minutes, stirring occasionally.       • Serve warm or cold as a side or with bread for dipping. Enjoy! Original recipe is here, if you want to see photos: mina.co/blogs/recipes/zaalouk-moroccan-eggplant-salad  
    • xxnonamexx
      I checked consumer labs that I'm a member of they independently check products for safely and claims the wolfs was rated great and bobs redmill buckwheat cereal. Ultra low gotten no dangerous levels of arsenic heavy metals, mold, yeast etc. plus they mention to refrigerate. I wonder if the raw buckwheat they rinse bc it's not toasted like kasha. Toasted removes the grassy taste I have to try the one you mentioned. I also bought Qia which is a quinoa mixed got great reviews. 
×
×
  • Create New...