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Positive Deaminated IGG in 4 yo

turquoiseocean
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turquoiseocean Newbie
turquoiseocean
Posted

My then 4 yo son was diagnosed celiac by naturopath due to 38 on Deamidated IGG test. He was neg for Deamidated IGA, TTG IGA and TTG IGG. He had a in range for Immunoglobin A. As a follow up, I took him to a Pediactric GI who scoffed at the testing that was done by the ND and said he did not have celiac after he retested with TTG A and G and it came up negative. He said he wouldn't so an endoscopy on a child with the test result and the symptoms he had at the time (which are now worse). A year and a half later and my son is having multiple symptoms, including dark circles under eyes, and chronic stomach aches and head aches to name a few. Are there any opinions that these deamidated tests are "junk"? Should I relax about Celiac or pursue this again?

 

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ravenwoodglass Mentor
ravenwoodglass
Posted

Welcome to the board. No the test your Naturopath did is not junk. Get a second opinion. You may want to get a copy of the positive test that was done and bring it to the appointment. If possible do not tell the second doctor it was ordered by a Naturopath. You should request a full celiac panel along with vitamin and mineral testing. I am assuming that your son is not gluten free. That is a good thing if that is the case because tests will be negative if he is gluten free. There is a high rate of false negatives in children his age so that he showed a positive on a test that is specific to celiac and quite reliable is significant. Undiagnosed celiac in children can impact growth, mood and even learning. I hope a doctor who is more celiac savvy can help you. If you have a Celiac Support group in your area they may be able to assist in finding a competent ped or ped GI.

cyclinglady Grand Master
cyclinglady
Posted

I am so sorry to hear about your son.  Your best bet is to use the search box.  Type in “DGP IgG”  and see various posts about this topic.  Here is a great example (and one that supports that you can just have a positive DGP IgG and still have celiac disease).    Be sure to read the entire thread:

Me?  I test positive to ONLY the DGP IgA and I have had the entire celiac panel run several times.  I am biopsy-confirmed and on a repeat biopsy (after five years of being gluten free) revealed complete healing.  

Do not rule out celiac disease.  Make sure your son is on a full gluten diet 8 to 12 weeks prior to testing (blood).  Much less for the endoscopy.  (Maybe that was an issue when the last GI tested?) Find a celiac-savvy Ped GI and research as much as possible.  

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