stool test postive twice

[lorilichterman]

Hello, 

I was hoping someone here could help. I have had 2 stool tests done with high antigliadin antibodies. I also had high SIgA. After starting a gluten free diet, my SigA was significantly lower, although antibodies were still elevated (but improved). My blood test was negative. I have the gene. My mother, who has been diagnosed with colitis, and I assume the source of the gene- was negative with the blood test. She does not follow a gluten free diet. Do I have celiac disease? I was avoiding gluten at the time of my blood test. Do I need to retake it? what good is a stool test for elevated antigliadin antibodies if it can't confirm celiac? Thanks!

[kareng]

54 minutes ago, lorilichterman said:

Hello, 

I was hoping someone here could help. I have had 2 stool tests done with high antigliadin antibodies. I also had high SIgA. After starting a gluten free diet, my SigA was significantly lower, although antibodies were still elevated (but improved). My blood test was negative. I have the gene. My mother, who has been diagnosed with colitis, and I assume the source of the gene- was negative with the blood test. She does not follow a gluten free diet. Do I have celiac disease? I was avoiding gluten at the time of my blood test. Do I need to retake it? what good is a stool test for elevated antigliadin antibodies if it can't confirm celiac? Thanks!

I don’t know why you had a stool test instead of a blood test.  But taking the actual blood test for Celiac while gluten-free is not a good idea.  It tells you nothing.  If you have Celiac , and are eating gluten-free, you shouldn’t be making antibodies to gluten that are found in the blood.  So- the blood test would be negative.    

[cyclinglady]

About 30% or a bit more of the entire population has the celiac genes.  Only a tiny few actually develop celiac disease. The gene test just rules out celiac disease.  

My advice is to find a medical doctor who is celiac savvy.  One that follows all the national celiac disease research centers guidelines.  Those guidelines do not include stool testing.  

Not sure how long you have been gluten free, but do not redo the celiac blood test panel until you have been consuming gluten daily for 8 to 12 weeks.  

https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/