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Could it be caeliac?

Karaokequeen
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Karaokequeen Newbie
Karaokequeen
Posted

So 10 weeks ago i had really bad headaches and sinus pain. I have had 2 lots of antibiotics and also am having physio for neck pain that nurse said might be causing headaches. I had bloods to check diabetes etc and vits and they said low vitamin D so i have been taking daily vitamin D tablets. 

I have been feeling tired and run down for these 10 weeks. Lately i have been feeling full / clogged up after certain foods. I just had some breaded chicken and i felt i couldnt eat anymore as it was clogged in throat like a hoover that gets blocked.  I went to a restaurant with friends and had the same issue after my bread starter. Like i needed a gallon of water to wash it down. I have always had IBS issues - i poo probs 2 times a week and my stomach hurts when i need to go. 

I have been to hospital today as was having tingling fingers numb hands and pains in arms but they have done an xray, bloods, heart check and vant find anything. I had a MRI last week. My partner seems to think i just make stuff up as i seem to always have something wrong but to be honest i feel like they just dont know whats wrong and i just want an answer really. I came home from a meal out with friends as i got panicky, i spent 4 hours today in a n e - like i would waste my time if i didnt honestly feel crap. 

I have come across caeliac and have blood test booked for it next week as i havent changed diet but am not sure my symptoms match up. Has anyone had the same thing?

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Ennis-TX Grand Master
Ennis-TX
Posted

First this response is from my own opinions and observations and I am not a doctor.
I presented with random GI issues most my life and various little things I never knew were realated and took for granted. Like you I was constipated going once or if twice a week sometimes over 7 days.

The constipation and the tingling needle skin feeling I chock up to magnesium deficiency from my damaged intestines not absorbing it...heck most Americans are low in magnesium from some studies. Magnesium Citrate called Calm from Natural Vitality can help til you heal. Dose it to tolerance with a scale, up your dose 2 grams a day taking it in the morning (I like it in a warm glass water or tea), when you get loose stools later in the day the next day lower the dose 2 grams so you should have comfortable BMs.

Numbness, Tingling can also be from various B-vitamins being low as the damaged intestines prevent absorption along with celiac often needing higher doses, or from gluten ataxia (I developed this) where you immune system attacks the nervous system in response to gluten.

 

Karaokequeen Newbie
Karaokequeen
Posted
  • Author

Thanks for your reply. 

Would the B vitamins and magnesium show up on a blood test? I was under the impression they checked for vitamin defenciences hence the vitamin D being low. 

I should have also mentioned excessive gas but from my mouth and the top end. I see many symptoms saying about gas but more from the bottom end. 

 

Did you bowel movements increase when you started being gluten free?

BuddhaBar Collaborator
BuddhaBar
Posted

You have a lot of the same symptoms I had. I thought I was multi-sick. That I had tons of issues, but it turned out it was only one. The thing about Celiac disease is that it can affect almost anything in your body and a lot of the symptoms are also symptoms of other diseases. My experience is that a lot of doctors are not really good detectives. They just examine "THAT" symptom you have and if they don't find anything then you don't have anything and then they just let you go. 
Nobody should ever accept an IBS diagnosis unless everything else has been ruled out. IBS is just a shut-up-you-annoying-patient-diagnosis. 

Karaokequeen Newbie
Karaokequeen
Posted
  • Author

I totally agree, luckily i am seeing the same nurse (advanced practioner) and she seems to be on the ball with getting answers for me and helping a diagnosis. She has sent me for lots of tests for things and i see her to discuss results and things. She never makes me feel unimportant and i really like that. 

The 6 weeks of eaten gluten are awful when it seems to cause so many issues. I know its 4 days till my blood test it just seems so far away and then if thats negative i feel like well whats wrong with me... 

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