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Claire

It Takes Time To Heal

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I posted this once but it never showed up so here goes again. If you see this twice please excuse. Claire

RECOVERY OF HEALTH OF THE INTESTINE TAKES TIME AFTER STARTING GLUTEN-FREE DIET

In this study, 158 people with celiac disease had their small intestines examined after starting a gluten-free diet. After 2 years, 65% of the people had healed intestines; after 5 years, 85.3% had healed, and beyond that 89.9% had healed. Children recovered up to 95% within 2 years and 100% in the years after. For 10.1% of people, there was little or no recovery of health of the intestine.

http://rarediseases.about.com/cs/celiacdisease/a/100502.htm

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Guest BERNESES

Claire- Thank you SO much for posting this. I know it's not great news but it's definitely reassuring to those of us who aren't progressing as quickly as we thought we would. . I know that I expected the gluten-free diet to work miracles over night, and while it might for some, it takes a lot longer for others. Thank you! You made my night with this one. Sigh.... (of relief)

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Claire- Thank you SO much for posting this. I know it's not great news but it's definitely reassuring to those of us who aren't progressing as quickly as we thought we would. . I know that I expected the gluten-free diet to work miracles over night, and while it might for some, it takes a lot longer for others. Thank you! You made my night with this one. Sigh.... (of relief)

So glad this was a good post for you. Hope it is for others too. So many people here seem to be struggling with this issue. So many with such high hopes and then getting discouraged when it doesn't quite work out that way. That discouragement causes a lot of very negatives feelings - not good for recovery. This piece shouldn't discourage people from checking into exacerbating food intolerances as a cause of their discomfort as well. Claire

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Claire--I found the article most interesting and encouraging, also. I have an appt. with an allergist, who's nurse told me on the phone tests for food allergies and also does the RAST test. I told her I was a Celiac who seems to be having issues with other foods. I go the 1st. week of March. I've looked into the independant labs--I may still try going that route, but deceided to go and talk to this dr. first. Thanks for posting the article :)

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Wow -- what an eye-opening article. It's good that your body can heal -- but this idea that a lot of MD's have -- that you'll be "fine" in a few months -- according to some things I've read, some things I've heard -- was certainly shot down. Jersey Angel -- find out if your allergist is also an IMMUNOLOGIST. Usually it is a combined specialty. If that is the case, I would talk in-depth about the immunology portion of your disease as well. Allergies are one thing -- immunology issues are quite another. Found this out the hard way. Good luck to you. Will be keeping you in my thoughts and prayers.

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I think that article is interesting of course, but lacking in vital information. As I have said before, most if not all people with celiac disease have some type of infection(s) that delays healing. That's where testing for GI pathogens come into play.Using Hawthorne Berry extract and L-glutamine will speed up the healing process. I started a thread on this topic called "Radio program on Gluten Intolerance" and Dr. Bill Timmins ND explains this in great detail...

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Guest BERNESES

Thomas- I started taking LGlutamine and I HIGHLY recommend it. I will listen to the radio program you posted later- thank you for doing that.

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Hi Thomas.

Most non-technical articles on celiac are not 'thorough' - even wrong on some of the specifics and long on omission but some, like this one, contain a gem that makes up for any shortcomings. The posted paragraph is information badly needed by many on this forum who are discouraged because they set high expectations for 'recovery' that are not supported by the evidence.

Celiacs with neurological issues need to watch the intake of L-glutamine - if they even take it at all. Claire

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Wow -- what an eye-opening article. It's good that your body can heal -- but this idea that a lot of MD's have -- that you'll be "fine" in a few months -- according to some things I've read, some things I've heard -- was certainly shot down. Jersey Angel -- find out if your allergist is also an IMMUNOLOGIST. Usually it is a combined specialty. If that is the case, I would talk in-depth about the immunology portion of your disease as well. Allergies are one thing -- immunology issues are quite another. Found this out the hard way. Good luck to you. Will be keeping you in my thoughts and prayers.

Lynne--Thank you for the good advice--I will certainly keep it in mind when talking to the doctor :)

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claire, thank you for posting the link...I came on here tonight thinking I'm going to give up on the gluten-free diet starting tomorrow. My blood work came back borderline positive the first week of Jan [after years of severe daily stomach pain] ..I've been gluten-free since and was about 80% gluten-free for 4 weeks before the blood tests.

I'm still having stomach pain everyday, not as bad as before but its still a problem, even gluten-free bread hurts. my family thinks I should give it more time, and after reading that article I might continue the diet, but I think I should be feeling a whole lot better at this point.

would someone please tell me where the post on the radio program is?

thanks, Betty

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Claire,

Thank you for posting this article. I'm taking a long time to heal and was beginning to wonder why.

Canary

I posted this once but it never showed up so here goes again. If you see this twice please excuse. Claire

RECOVERY OF HEALTH OF THE INTESTINE TAKES TIME AFTER STARTING GLUTEN-FREE DIET

In this study, 158 people with celiac disease had their small intestines examined after starting a gluten-free diet. After 2 years, 65% of the people had healed intestines; after 5 years, 85.3% had healed, and beyond that 89.9% had healed. Children recovered up to 95% within 2 years and 100% in the years after. For 10.1% of people, there was little or no recovery of health of the intestine.

http://rarediseases.about.com/cs/celiacdisease/a/100502.htm

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claire, thank you for posting the link...I came on here tonight thinking I'm going to give up on the gluten-free diet starting tomorrow. My blood work came back borderline positive the first week of Jan [after years of severe daily stomach pain] ..I've been gluten-free since and was about 80% gluten-free for 4 weeks before the blood tests.

I'm still having stomach pain everyday, not as bad as before but its still a problem, even gluten-free bread hurts. my family thinks I should give it more time, and after reading that article I might continue the diet, but I think I should be feeling a whole lot better at this point.

would someone please tell me where the post on the radio program is?

thanks, Betty

Don't give up the gluten-free diet! Some of the results of neglected or untreated celiac are very, very serious p far worse than anything you have right now. Do investigate other causes of your discomfort. Food intolerance really flare up after going gluten-free - so consider that you have more than one thing going on and probably did even before going gluten-free. Claire :rolleyes:

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