Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

It Takes Time To Heal

Claire

Recommended Posts

Claire Collaborator
Claire
Posted

I posted this once but it never showed up so here goes again. If you see this twice please excuse. Claire

RECOVERY OF HEALTH OF THE INTESTINE TAKES TIME AFTER STARTING GLUTEN-FREE DIET

In this study, 158 people with celiac disease had their small intestines examined after starting a gluten-free diet. After 2 years, 65% of the people had healed intestines; after 5 years, 85.3% had healed, and beyond that 89.9% had healed. Children recovered up to 95% within 2 years and 100% in the years after. For 10.1% of people, there was little or no recovery of health of the intestine.

Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mommida Enthusiast
mommida
Posted

This link could be helpful in a lot of the other posts too.

Thank you for posting.

Laura

Guest BERNESES
Guest BERNESES
Posted

Claire- Thank you SO much for posting this. I know it's not great news but it's definitely reassuring to those of us who aren't progressing as quickly as we thought we would. . I know that I expected the gluten-free diet to work miracles over night, and while it might for some, it takes a lot longer for others. Thank you! You made my night with this one. Sigh.... (of relief)

Claire Collaborator
Claire
Posted
  • Author
Claire- Thank you SO much for posting this. I know it's not great news but it's definitely reassuring to those of us who aren't progressing as quickly as we thought we would. . I know that I expected the gluten-free diet to work miracles over night, and while it might for some, it takes a lot longer for others. Thank you! You made my night with this one. Sigh.... (of relief)

So glad this was a good post for you. Hope it is for others too. So many people here seem to be struggling with this issue. So many with such high hopes and then getting discouraged when it doesn't quite work out that way. That discouragement causes a lot of very negatives feelings - not good for recovery. This piece shouldn't discourage people from checking into exacerbating food intolerances as a cause of their discomfort as well. Claire

jerseyangel Proficient
jerseyangel
Posted

Claire--I found the article most interesting and encouraging, also. I have an appt. with an allergist, who's nurse told me on the phone tests for food allergies and also does the RAST test. I told her I was a Celiac who seems to be having issues with other foods. I go the 1st. week of March. I've looked into the independant labs--I may still try going that route, but deceided to go and talk to this dr. first. Thanks for posting the article :)

tiredofdoctors Enthusiast
tiredofdoctors
Posted

Wow -- what an eye-opening article. It's good that your body can heal -- but this idea that a lot of MD's have -- that you'll be "fine" in a few months -- according to some things I've read, some things I've heard -- was certainly shot down. Jersey Angel -- find out if your allergist is also an IMMUNOLOGIST. Usually it is a combined specialty. If that is the case, I would talk in-depth about the immunology portion of your disease as well. Allergies are one thing -- immunology issues are quite another. Found this out the hard way. Good luck to you. Will be keeping you in my thoughts and prayers.

thomas3000 Rookie
thomas3000
Posted

I think that article is interesting of course, but lacking in vital information. As I have said before, most if not all people with celiac disease have some type of infection(s) that delays healing. That's where testing for GI pathogens come into play.Using Hawthorne Berry extract and L-glutamine will speed up the healing process. I started a thread on this topic called "Radio program on Gluten Intolerance" and Dr. Bill Timmins ND explains this in great detail...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest BERNESES
Guest BERNESES
Posted

Thomas- I started taking LGlutamine and I HIGHLY recommend it. I will listen to the radio program you posted later- thank you for doing that.

Claire Collaborator
Claire
Posted
  • Author

Hi Thomas.

Most non-technical articles on celiac are not 'thorough' - even wrong on some of the specifics and long on omission but some, like this one, contain a gem that makes up for any shortcomings. The posted paragraph is information badly needed by many on this forum who are discouraged because they set high expectations for 'recovery' that are not supported by the evidence.

Celiacs with neurological issues need to watch the intake of L-glutamine - if they even take it at all. Claire

jerseyangel Proficient
jerseyangel
Posted
Wow -- what an eye-opening article. It's good that your body can heal -- but this idea that a lot of MD's have -- that you'll be "fine" in a few months -- according to some things I've read, some things I've heard -- was certainly shot down. Jersey Angel -- find out if your allergist is also an IMMUNOLOGIST. Usually it is a combined specialty. If that is the case, I would talk in-depth about the immunology portion of your disease as well. Allergies are one thing -- immunology issues are quite another. Found this out the hard way. Good luck to you. Will be keeping you in my thoughts and prayers.

Lynne--Thank you for the good advice--I will certainly keep it in mind when talking to the doctor :)

ebrbetty Rising Star
ebrbetty
Posted

claire, thank you for posting the link...I came on here tonight thinking I'm going to give up on the gluten-free diet starting tomorrow. My blood work came back borderline positive the first week of Jan [after years of severe daily stomach pain] ..I've been gluten-free since and was about 80% gluten-free for 4 weeks before the blood tests.

I'm still having stomach pain everyday, not as bad as before but its still a problem, even gluten-free bread hurts. my family thinks I should give it more time, and after reading that article I might continue the diet, but I think I should be feeling a whole lot better at this point.

would someone please tell me where the post on the radio program is?

thanks, Betty

i canary Rookie
i canary
Posted

Claire,

Thank you for posting this article. I'm taking a long time to heal and was beginning to wonder why.

Canary

I posted this once but it never showed up so here goes again. If you see this twice please excuse. Claire

RECOVERY OF HEALTH OF THE INTESTINE TAKES TIME AFTER STARTING GLUTEN-FREE DIET

In this study, 158 people with celiac disease had their small intestines examined after starting a gluten-free diet. After 2 years, 65% of the people had healed intestines; after 5 years, 85.3% had healed, and beyond that 89.9% had healed. Children recovered up to 95% within 2 years and 100% in the years after. For 10.1% of people, there was little or no recovery of health of the intestine.

Open Original Shared Link

Claire Collaborator
Claire
Posted
  • Author
claire, thank you for posting the link...I came on here tonight thinking I'm going to give up on the gluten-free diet starting tomorrow. My blood work came back borderline positive the first week of Jan [after years of severe daily stomach pain] ..I've been gluten-free since and was about 80% gluten-free for 4 weeks before the blood tests.

I'm still having stomach pain everyday, not as bad as before but its still a problem, even gluten-free bread hurts. my family thinks I should give it more time, and after reading that article I might continue the diet, but I think I should be feeling a whole lot better at this point.

would someone please tell me where the post on the radio program is?

thanks, Betty

Don't give up the gluten-free diet! Some of the results of neglected or untreated celiac are very, very serious p far worse than anything you have right now. Do investigate other causes of your discomfort. Food intolerance really flare up after going gluten-free - so consider that you have more than one thing going on and probably did even before going gluten-free. Claire :rolleyes:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. akebog
      - akebog posted a topic in Gluten-Free Restaurants
      0

      Fusilli Pizzeria, Miller Place, NY

      Very good pizzeria with small dining room in back of the restaurant. The owner's daughter has celiac & they have gluten free pizza & a gluten free menu. Some items from the regular menu can be made gluten free also. They have a lunch menu which we ordered from & my chicken with spinach & mozzarella over gluten-free penne was delicious...
    2. nancydrewandtheceliacclue
      - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      12

      Celiac flare years after diagnosis

      @Aretaeus Cappadocia and @Russ H thank you both for your helpful advice and information. I haven't seen a GI in years. They never helped me aside from my inital diagnosis. All other help has come from my own research, which is why I came here. I will be even more careful in the future.
    3. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      12

      Celiac flare years after diagnosis

      @nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down...
    4. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      12

      Celiac flare years after diagnosis

      @Russ H, I partly agree and partly disagree with you. After looking at it again, I would say that the slick graphic I posted overestimates the risk. Your math is solid, although I find estimates of gluten in white bread at 10-12% rather than the 8% you use. Somewhat contradicting what I wrote before, I agree with you that it would be difficult to ingest ...
    5. Peace lily
      - Peace lily commented on Scott Adams's article in Latest Research
      2

      New Study Reveals How the Immune System Learns Which Foods Are Safe to Eat

      Hi everyone well I don’t understand totally,I look for gluten-free only. I seem to be super sensitive. I had a problem the other day don’t know why it happen . I’m the only that handles my food . My husband has pancreatitis he’s fine with me cooking gluten-free I’ve tried doing both it doesn’t work for me strictly gluten-free kitchen. But he can actu...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,062
    • Most Online (within 30 mins)
      10,442
    AutomatedGlutenEjector
    Newest Member
    AutomatedGlutenEjector
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • akebog
      Fusilli Pizzeria, Miller Place, NY

      By akebog · Posted

      Very good pizzeria with small dining room in back of the restaurant. The owner's daughter has celiac & they have gluten free pizza & a gluten free menu. Some items from the regular menu can be made gluten free also. They have a lunch menu which we ordered from & my chicken with spinach & mozzarella over gluten-free penne was delicious. They also have Tuesday night pasta specials & Thursday night chicken pasta specials. We plan on going back for dinner soon.
    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

      By nancydrewandtheceliacclue · Posted

      @Aretaeus Cappadocia and @Russ H thank you both for your helpful advice and information. I haven't seen a GI in years. They never helped me aside from my inital diagnosis. All other help has come from my own research, which is why I came here. I will be even more careful in the future. 
    • Aretaeus Cappadocia
      Celiac flare years after diagnosis

      By Aretaeus Cappadocia · Posted

      @nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down your experiences and questions in outline form and bring this to your Dr. I suggest writing it down so you don't get distracted from telling the Dr everything you want to say while you have their attention.
    • Aretaeus Cappadocia
      Celiac flare years after diagnosis

      By Aretaeus Cappadocia · Posted

      @Russ H, I partly agree and partly disagree with you. After looking at it again, I would say that the slick graphic I posted overestimates the risk. Your math is solid, although I find estimates of gluten in white bread at 10-12% rather than the 8% you use. Somewhat contradicting what I wrote before, I agree with you that it would be difficult to ingest 10 mg from flinging bread.  However, I would still suggest that @nancydrewandtheceliacclue take precautions against exposure in this activity. I'm not an expert, I could easily be wrong, but if someone is experiencing symptoms and has a known exposure route, it's possible that they are susceptible to less than 10 mg / day, or it is possible that there is/are other undetected sources of exposure that together with this one are causing problems. At any rate, I would want to eliminate any exposure until symptoms are under control before I started testing the safety of potentially risky activities. Here is another representation of what 10 mg of bread would look like. https://www.glutenfreewatchdog.org/news/wp-content/uploads/2019/10/10mgGlutenCrumbsJules.jpg Full article that image came from: https://www.glutenfreewatchdog.org/news/what-does-10-mg-of-gluten-look-like/
    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

      By nancydrewandtheceliacclue · Posted

      @Aretaeus Cappadocia thank you for your reply and the link, that is very helpful to get a visual of just how small of an amount can cause a reaction. I know I am not consuming gluten or coming into contact with gluten from any other source. I will stop touching/tossing bread outside! My diet has not changed, and I do not have reactions to the things I am currently eating, which are few in number. My auto immune reaction just seems so severe. The abdominal pain is extreme. It takes a lot out of me. I guess I will be this way for the rest of my life if I ever happen to come into contact with gluten? I appreciate the help. 
×
×
  • Create New...