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(DH) the Devil

MiserableMe
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MiserableMe Newbie
MiserableMe
Posted

I was diagnosed with DH a while back. I have A LOT of drug allergies. My dermatologist prescribed me Ketoconozole, which did absolutely nothing for my rash. I have it bad on my stomach, butt, groin area & elbows. I’ve haven’t seen any articles about anybody having it on their stomach. Any suggestions for relief? My Cotton panties irritate!

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cyclinglady Grand Master
cyclinglady
Posted

Dapsone is the only know drug that can help with DH and the safest treatment is a gluten free diet, since DH is celiac disease.  The rash can be located anywhere.  Just classically, it it most often found on the elbows and knees.  Consider yourself special!  
 

Please take the time to read posts within the DH section of the forum where you can find valuable tips (like applying ice (cold compresses).  
 

As far as panties, go without at least while at home.  Wearing a long cotton gown (caftan) would keep you modest.  

  • 3 months later...
Ann--Marie Rookie
Ann--Marie
Posted
On 7/1/2020 at 2:39 PM, MiserableMe said:

I was diagnosed with DH a while back. I have A LOT of drug allergies. My dermatologist prescribed me Ketoconozole, which did absolutely nothing for my rash. I have it bad on my stomach, butt, groin area & elbows. I’ve haven’t seen any articles about anybody having it on their stomach. Any suggestions for relief? My Cotton panties irritate!

bentonite clay mixed with apple cider vinegar

  • 3 months later...
Gigi3 Newbie
Gigi3
Posted
On 7/1/2020 at 2:39 PM, MiserableMe said:

I was diagnosed with DH a while back. I have A LOT of drug allergies. My dermatologist prescribed me Ketoconozole, which did absolutely nothing for my rash. I have it bad on my stomach, butt, groin area & elbows. I’ve haven’t seen any articles about anybody having it on their stomach. Any suggestions for relief? My Cotton panties irritate!

I get one on my butt and know exactly where it is by the deep pinpoint itch. It blisters and looks raw and ugly. I have Valtrex prescription just for this which clears it up with usually one or two pills.  I am strictly gluten-free having been diagnosed in 1970 but these “uglies” are in the past 10 yrs. 

Scott Adams Grand Master
Scott Adams
Posted

Hello @Gigi3 and welcome to the forum! It's interesting that you were prescribed Valtrex for DH. I've heard of it prescribed for canker sores and shingles, and it seems to help with itching when I read about it. I wonder why this isn't used more commonly for DH?  Dapsone is commonly prescribed, but it has many known bad side effects.

 

trents Grand Master
trents
Posted
35 minutes ago, Gigi3 said:

I get one on my butt and know exactly where it is by the deep pinpoint itch. It blisters and looks raw and ugly. I have Valtrex prescription just for this which clears it up with usually one or two pills.  I am strictly gluten-free having been diagnosed in 1970 but these “uglies” are in the past 10 yrs. 

Have you looked into histamine intolerance/mast cell activation syndrome?

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