Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

(DH) the Devil

MiserableMe
 Share

Recommended Posts

MiserableMe Newbie
MiserableMe
Posted

I was diagnosed with DH a while back. I have A LOT of drug allergies. My dermatologist prescribed me Ketoconozole, which did absolutely nothing for my rash. I have it bad on my stomach, butt, groin area & elbows. I’ve haven’t seen any articles about anybody having it on their stomach. Any suggestions for relief? My Cotton panties irritate!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Dapsone is the only know drug that can help with DH and the safest treatment is a gluten free diet, since DH is celiac disease.  The rash can be located anywhere.  Just classically, it it most often found on the elbows and knees.  Consider yourself special!  
 

Please take the time to read posts within the DH section of the forum where you can find valuable tips (like applying ice (cold compresses).  
 

As far as panties, go without at least while at home.  Wearing a long cotton gown (caftan) would keep you modest.  

  • 3 months later...
Ann--Marie Rookie
Ann--Marie
Posted
On 7/1/2020 at 2:39 PM, MiserableMe said:

I was diagnosed with DH a while back. I have A LOT of drug allergies. My dermatologist prescribed me Ketoconozole, which did absolutely nothing for my rash. I have it bad on my stomach, butt, groin area & elbows. I’ve haven’t seen any articles about anybody having it on their stomach. Any suggestions for relief? My Cotton panties irritate!

bentonite clay mixed with apple cider vinegar

  • 3 months later...
Gigi3 Newbie
Gigi3
Posted
On 7/1/2020 at 2:39 PM, MiserableMe said:

I was diagnosed with DH a while back. I have A LOT of drug allergies. My dermatologist prescribed me Ketoconozole, which did absolutely nothing for my rash. I have it bad on my stomach, butt, groin area & elbows. I’ve haven’t seen any articles about anybody having it on their stomach. Any suggestions for relief? My Cotton panties irritate!

I get one on my butt and know exactly where it is by the deep pinpoint itch. It blisters and looks raw and ugly. I have Valtrex prescription just for this which clears it up with usually one or two pills.  I am strictly gluten-free having been diagnosed in 1970 but these “uglies” are in the past 10 yrs. 

Scott Adams Grand Master
Scott Adams
Posted

Hello @Gigi3 and welcome to the forum! It's interesting that you were prescribed Valtrex for DH. I've heard of it prescribed for canker sores and shingles, and it seems to help with itching when I read about it. I wonder why this isn't used more commonly for DH?  Dapsone is commonly prescribed, but it has many known bad side effects.

 

trents Grand Master
trents
Posted
35 minutes ago, Gigi3 said:

I get one on my butt and know exactly where it is by the deep pinpoint itch. It blisters and looks raw and ugly. I have Valtrex prescription just for this which clears it up with usually one or two pills.  I am strictly gluten-free having been diagnosed in 1970 but these “uglies” are in the past 10 yrs. 

Have you looked into histamine intolerance/mast cell activation syndrome?

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,631
    • Most Online (within 30 mins)
      7,748
    Lynn Marie
    Newest Member
    Lynn Marie
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.1k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Anyone Here Sensitive To Fillers Such As Cellulose?

      By Scott Adams · Posted

      You might find this article interesting:  
    • trents
      Daughter's high test results.

      By trents · Posted

      Were any other celiac antibody tests run besides the DGP-IGA? Was a total IGA test run to check for IGA deficiency? There are multiple IGA tests that can be run as well as several IGG tests when checking for celiac disease. The DGP-IGA test is helpful when diagnosing children whose immune systems are immature.  
    • trents
      Daughter's high test results.

      By trents · Posted

      I think we all wish that managing celiac disease was a simple as just avoiding gluten. And I think we all enter into the journey with that naive misconception. And for some, it is that simple. But for many, it is not. The same processes that resulted in the immune system misidentifying gluten as a threat opens the door for misidentifying other food proteins as threats. At it's core, all this simply is the result of an immune system that has become dysfunctional in some ways and is hypervigilant.  I assume you already know that genetic testing cannot be used to diagnose celiac disease since 40% of the general population has the genetic potential to develop celiac disease while only about 1% develop active celiac disease. However, genetic testing can be used as a rule out and thus to distinguish between celiac disease and NCGS (Non Celiac Gluten Sensitivity). 
    • bpritch27
      Daughter's high test results.

      By bpritch27 · Posted

      It doesn't look like either avenin or casein would contribute to her IgA levels being high. From my understanding, that is only an indication of gliadin, which is only in gluten.  I should have noted that she does not have any symptoms of being constantly exposed to gluten as the test result shows. No intestinal discomfort, no brain fog, no lack of energy. She is still growing and gaining weight, which was the first indicator that she was not absorbing nutrients properly and led to her celiac diagnosis. 
    • bpritch27
      Daughter's high test results.

      By bpritch27 · Posted

      That is very disheartening... She's due for the celiac genetic test, and the gliadin test again in 3 months.  Oats are easier to avoid, the milk is going to be an issue.  Thank you! We'll see how this goes. 
×
×
  • Create New...