Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Steroids?


Mahee34

Recommended Posts

Mahee34 Enthusiast

has anyone ever been put on steroids by their GI to help cope with stomach problems after being gluten free for awhile?? I'm very concerned with gaining excess weight that comes with the whole beginning steroids and just wanted to know if anyone has experience with this and advice? thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jnifred Explorer

I use prednisone aabout every 6 weeks for arthritis flare ups. as long as I don't stay on it for long periods of time I have never had a big problem with it. I am usually not on them for longer than a week.

My dad was on Prednisone for years and he abused it a lot, took way more than prescribed and shrunk 8 inches in one year, and had that red puffy face, didn't gain too much weight, but had the other stuff going on. As long as your doc watches you and etc, and you follow his directions I wouldn't be too concerned about it. Of course that also depends on the dose.

If my flare up is bad (as it is now) I start with 30 or so mg of prednisone and taper down each day after the swelling subsides, usually only one or two days that high, which isn't really that high. I was on 10 mg a day for several months last year and was fine, no side effects at all.

Good luck, hope that answered some of your questions.

lovegrov Collaborator

No steroids for celiac alone.

richard

Mahee34 Enthusiast

i wasn't saying that steroids are given to help with my celiac. there are other issues going on that are causing problems with my stomach and steroids is aparently the solution. I'm not a doctor and I don't really claim to be, Mine if trustworthy and i listen to him.....i just know that steroids in general cause people to gain weight and that my stomach is messed up thanks due to celiac disease. see the connection.

jerseyangel Proficient

I have taken steroids in the past--when I was still sick with what the doctors thought was sinus/allergy infections. I used Prednisone and had injections of Decadron. The side effects I had were primarily facial puffiness and weight gain. My face was noticably fuller. I really don't remember any stomach issues related to the steroids--but like I said, I was still undiagnosed Celiac, so it's hard to say now. Hope that helps :)

happy4dolphins Enthusiast

I have taken Prednisone 2 x now. Once this last summer for a poison ivy outbreak. I was takig 20 mg 3 x a day for three days, and then began to tapper down. It didn't help the ivy at all, but did make me crazy by day three. GIGGLE! I had no idea where I was when I was driving back from the other side of town. I got very emotional on it too.

Now, for my second time, I was taking 10 mg once a day for inflamation of the lower spine and pelvis. By day 2, I had no pain and I was back walking and doing every thing normal again. I started taking it on Feb 24, 2006 and began weaning off of it just last week. I did well until about two weeks ago and then I started getting impulses, eating a ton, and crazy in the head again (disconnectedness).

That's my 2 cents worth :)

Nicole :ph34r:

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,077
    • Most Online (within 30 mins)
      10,442

    terrificterry
    Newest Member
    terrificterry
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...