Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Melissa-M

Recommended Posts

Melissa-M Rookie

My name is Melissa Mandrick I have celiac disease and I was impatient and they Contaminated my food I got celiac reoccurrence and right after I found out I got gallstones. My gallbladder was removed. Before it progressed to the point I was peeing blood. Doctor thinks I have a hernia from surgery. I get gastrol spams every week to the point I pass out. Med change. Later same place Contaminated again . My local hospital didn't believe my source of stomach spams instead check my vagina it was fine and was hurt not there but my stomach.no food for my to eat. What do I do about further hospitalazions.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Melissa-M Rookie

It was Penns Highlands I had to get on my knees and beg with going on 8 hours of stomach etc. spasms before I went to emergency room they said nothing was wrong I don't have celiac. 

trents Grand Master

Did you make it clear to the food service staff at the hospital that you must have gluten free food?

Melissa-M Rookie
9 hours ago, trents said:

Did you make it clear to the food service staff at the hospital that you must have gluten free food?

Yes I was there before for the past 6 years and I stated my allergies during intake.

Scott Adams Grand Master

I would communicate your gluten-free diet needs with everyone involved with your food. So the person who brings you food--ask them if your meal is gluten-free. If they don't know assume that it isn't and insist that they find out.

Melissa-M Rookie
2 hours ago, Scott Adams said:

I would communicate your gluten-free diet needs with everyone involved with your food. So the person who brings you food--ask them if your meal is gluten-free. If they don't know assume that it isn't and insist that they find out.

I ask before I eat everytime that it is gluten free . One of the staff members know about my celiac but put it the toaster said others patients that saw I asked if she used the toaster she said no. So I ate it. Found out later

Melissa-M Rookie

I went to the cafeteria management and head of building health and safety we all had a long discussion.still happened.

I had to go to the emergency room for gastrol spams that lasted over 8 hours. I was on my knees begging to be sent to the emergency room .


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

Contact the hospital administration and report that incident. The administration would want to know about it in order to take appropriate action to confront the staff member in question and educate them. If this staff member were being careless with your health needs then it is likely they would repeat it and endanger others. Here in the USA you get sent a patient satisfaction survey every time you have a doctor visit or hospital stay. Here, the healthcare systems take patient satisfaction very seriously.

trents Grand Master

If they aren't responsive, use another hospital next time. Do you have that option?

Melissa-M Rookie

I did they survey and that's who I talked to in the first place. No matter what hospital I go to they don't feed me properly I get a banana everyday to eat for breakfast lunch dinner and sometimes one extra small lacking in jelly and peanut butter carrots califour some beans for a month I was netrition  deprived. They tried to cover up the matter when saying anything about it

trents Grand Master

Can you eat hard boiled eggs?

DJFL77I Experienced

are you sure youre not still eating gluten otherwise

youre too young to be that sick yet

Melissa-M Rookie
3 hours ago, DJFL77I said:

are you sure youre not still eating gluten otherwise

youre too young to be that sick yet

I use only certified gluten free meals

DJFL77I Experienced

Stop eating packaged food even if it's certified gluten-free

trents Grand Master

Certified gluten-free should be okay except for the most sensitive Celiacs. There are two gluten-free certifying bodies and one of them uses a stricter standard of 10ppm while the other uses the FDA guideline of 20ppm. If you don't have a problem with what you eat outside the hospital I would think that's no where the issue is.

DJFL77I Experienced

How do you tell which use the 10ppm one

trents Grand Master
(edited)

This is helpful: https://www.schaer.com/en-us/a/certified-gluten-free

I was in error. There are three certifying agencies. Two use the FDA recommendation of 20 ppm while gthe GFCO standard is 5 ppm, not 10. I think the GFCO has a distinctive logo bearing the letters GFCO but I'm not positive about that.

Be careful with products that don't bear a gluten-free certified label but say stuff like, "Naturally gluten free." That would only rule out gluten used as an intentional ingredient but would not rule out cross contamination.

Edited by trents
RMJ Mentor

GFCO limit is 10ppm and they have two distinctive logos, the old one and a new one.

GFCO

trents Grand Master

The article I was referencing must have it wrong then but I also quoted the article incorrectly. Having a bad day. Upon more research here is what I found:

Here is a direct copy paste from the article: 

In addition to these organizations, there are also three programs which offer certification for gluten free foods: The Gluten Intolerance Group’s Gluten-Free Certification Organization (GFCO), the Celiac Support Association (CSA), and the Allergen Control Group. Each of these groups has its own tests and standards for the levels of trace gluten they will allow. Here is a quick overview:

Gluten-Free Certification Organization (GFCO) – This group requires tested foods to contain less than 20 ppm of gluten, though many foods contain less or even no detectable traces of gluten.

Celiac Support Association (CSA) – This group requires tested foods to contain less than 5ppm of gluten – they also require that foods be free from oats, even gluten free oats.

Allergen Control Group – This group requires tested foods to contain less than 20 ppm of gluten and it is endorsed by Beyond Celiac as the Gluten-Free Certification Program (GFCP).

But the CSA has the strictest standard it seems - 5 ppm.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,494
    • Most Online (within 30 mins)
      7,748

    DeniseC2219
    Newest Member
    DeniseC2219
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • JA917
      I was just thinking this same thing - requesting repeat testing prior to giving up gluten. Makes sense. Thanks!
    • knitty kitty
      Since you're having a last hurrah with gluten, request another round of blood tests for celiac antibodies.  Make sure you're eating ten grams or more daily for those few weeks before your capsule endoscopy.  You probably weren't eating a sufficient amount of gluten needed to provoke sufficient antibody production.   
    • cristiana
      Hello all I am taking some time out from work today to make my annual Christmas cake along the lines of a tried and tested English recipe which means a fruit cake, with marzipan  and icing.   As usual, I've left it too late - we're meant to bake these things some time  in advance to improve the flavour.    I never remember.  But it never seems to matter! I thought I'd share it in case any UK coeliacs still haven't made theirs and don't have a recipe, or any of my friends across the Pond want to try making one.  Do you make iced fruit cakes like this in the US for Christmas? - I have no idea! I adapt it slightly as instead of fondant icing I make Royal Icing which sets hard and you can create exciting snow scenes with it if you can find any tiny model houses, churches and trees to put on it!  (my Mum used to do this).   https://www.coeliac.org.uk/information-and-support/your-gluten-free-hub/home-of-gluten-free-recipes/1511804/ With thanks to the charity Coeliac Uk for this recipe. Cristiana  
    • trents
      Welcome to the forum, @Art Maltman! Ask your physician to order serum antibody tests specifically designed to detect celiac disease. That's the place to start but you shouldn't be on a gluten free diet some weeks before the blood draw. You certainly have some symptoms that are characteristic of celiac disease and you have a first degree relative that has celiac disease. So, I think this would be an appropriate request to bring to your physician. Here is an article outlining the various serum antibody tests that can be ordered when checking for celiac disease:   The physician may not be open to ordering a full panel but push for at least these two: total IGA and tTG-IGA. By the way, absence of gut pain is very common in the celiac population. We call them "silent" celiacs as they have no or very minor symptoms. There are over 200 symptoms and spinoff health issues that have become associated with celiac disease and the range of symptoms and effects produced by the disease in different individuals various tremendously. 
    • Art Maltman
×
×
  • Create New...