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Elassila

Healing after celiacs testing

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I had been gluten free for about a year and suspected celiacs when my doctor insisted that I eat some wheat to get tested. It was miserable and I tested positive on 2 blood tests. Now my gut is very messed up after about a month of eating wheat. Terrible doctor. What can I do to heal? It's been about 2 months and I'm still experiencing issues. So far I've tried bone broth, apple cider vinegar, and intermittent fasting.These all helped but I'm not 100%. Now I'm going to try cutting out dairy for awhile.

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1 hour ago, Elassila said:

I had been gluten free for about a year and suspected celiacs when my doctor insisted that I eat some wheat to get tested. It was miserable and I tested positive on 2 blood tests. Now my gut is very messed up after about a month of eating wheat. Terrible doctor. What can I do to heal? It's been about 2 months and I'm still experiencing issues. So far I've tried bone broth, apple cider vinegar, and intermittent fasting.  These all helped but I'm not 100%. Now I'm going to try cutting out dairy for awhile.

Blood antibody testing is usually the first step in celiac diagnosis.  The second step is an endoscopy to take biopsy samples of the small intestine lining.  if your doctor is planning to do an endoscopy you will need to be eating gluten for a couple weeks before it.  So it would be good to talk to the Dr. and find out what's next.

Stopping dairy and oats can both be helpful to relieve GI symptoms.  Also you can try probiotics, peppermint tea, and Betaine HCL.   Whole foods instead of processed foods are also helpful.


Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."

Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.

Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, eggplant, celery, strawberries, pistachios, and hard work. Have a good day! 🙂 Paul

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I do wonder if a gluten challenge for some people is worth the risks, especially in your case where it seemed that you had figured it out, and were happily gluten-free. Obviously I wasn't privy to your conversation, but asking a celiac, even a self-diagnosed one, to eat gluten for a month to prove that your self diagnosis is correct is just wrong.

If you go to your doctor and are unsure of your self diagnosis, and wish to be certain, I can understand a doctor recommending a gluten challenge. It sounds like your doctor wanted to prove that your self diagnosis was wrong in this case, and in the process has negatively impacted your health. It's too bad this had to happen, because the gluten-free diet, as long as you make healthy choices, is not in any way harmful, even to someone who might not need it and might have misdiagnosed themselves. 


Scott Adams

Celiac.com - Celiac Disease Board Moderator

Founder Celiac.com

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Your doctor isn’t terrible, he/she is just following established guidelines recommended for the official diagnosis of celiac disease.  Unfortunately those guidelines are absolutely terrible for some patients.

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I may have been too harsh, especially not knowing how the conversation went, but my thought here was that if you told them you’re gluten-free and doing fine, but they pushed you into a gluten challenge, that approach seems wrong to me. I would have told you that you’ve probably got gluten sensitivity and not pursued a celiac diagnosis unless that’s what you wanted.

Hopefully you’ll recover quickly!


Scott Adams

Celiac.com - Celiac Disease Board Moderator

Founder Celiac.com

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11 hours ago, Scott Adams said:

I may have been too harsh, especially not knowing how the conversation went, but my thought here was that if you told them you’re gluten-free and doing fine, but they pushed you into a gluten challenge, that approach seems wrong to me. I would have told you that you’ve probably got gluten sensitivity and not pursued a celiac diagnosis unless that’s what you wanted.

Hopefully you’ll recover quickly!

Completely agree with you, Scott.

I have been diagnosed celiac via bloods for nearly 2 years - that's 2 years of gluten free lifestyle & my symptoms have been relieved for some time now. My doctor has been pushing for the endoscopy, however I know how backwards I go when I am exposed to cross contamination, and cannot bare the thought of the damage that could occur for a 100% accurate diagnosis of the disease.

In other cases where symptoms haven't been relieved from a gluten free lifestyle, I can understand the importance of further testing and diagnosis. It's really about listening to your body - we generally know what is right for ourselves if we listen to what our body tries to tell us. 

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On 1/1/2021 at 7:06 PM, Elassila said:

I had been gluten free for about a year and suspected celiacs when my doctor insisted that I eat some wheat to get tested. It was miserable and I tested positive on 2 blood tests. Now my gut is very messed up after about a month of eating wheat. Terrible doctor. What can I do to heal? It's been about 2 months and I'm still experiencing issues. So far I've tried bone broth, apple cider vinegar, and intermittent fasting.These all helped but I'm not 100%. Now I'm going to try cutting out dairy for awhile.

Hei! 

For me, what helped a lot to recover is probiotics, B12 supplementation, vitamins and i started eating only certain vegetables for a few weeks, mostly soups. I have a fiber supplement too. I have seen some improvements, but it is very easy to eat something that reacts. In my case, soy, oats, quinoa (the worst) and nuts. I would advise to search in the forum about any ingredient you wish to add to your diet before doing so. And since you have still symptoms, rotate the things that are already in your diet. Any of them could be reacting :)

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