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      Frequently Asked Questions About Celiac Disease   04/24/2018

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What is Celiac Disease and the Gluten-Free Diet? What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

ch88

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  1. ch88 started following Celiac and OCD, Great Value Sausage, Breastfeeding-- Does Gluten Travel Through Breastmilk? and and 7 others
  2. I have had them and I didn't react. I think they are fine. Some sausages contain wheat though (beer flavoring) so check the label.
  3. Here is some more information on the topic from my research and things I have found online. Anything under 20 ppm gluten is generally considered safe for someone with celiac disease. I have never heard of any milk containing gluten contamination above 20 ppm. I don't know what the limit is for a wheat allergy but it may be much lower. Wheat is a common food allergy. Unless there is cross contamination that happens diary farm, there isn't any risk. Meat and blood is always gluten free even if the animal has been fed wheat. Very very very trace amounts of gluten can get into milk but they are below the threshold for celiac disease. https://www.glutenfreedietitian.com/gluten-peptides-in-human-breast-milk-implications-for-cows-milk/ Also if someone has the genes for for celiac disease they may or may not develop celiac disease at some point in their life. Screening for celiac disease is a good idea. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4720595/ https://academic.oup.com/ajcn/article/75/5/914/4689407
  4. I have heard some people can get disassociation after traumatic life experiences. Other people say that there disassociation was not caused by any event. There is a strong genetic component to mental illness, in some cases at least. Probably everyone with a mental disorder should be screened for celiac disease. https://www.psychologytoday.com/us/blog/diagnosis-diet/201706/ketogenic-diets-psychiatric-disorders-new-2017-review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4083629/
  5. I never had ataxia but I did have confusion before I went gluten free. I feel very anxious within about 2 minutes of eating gluten. Before I went gluten free I was extremely paranoid about certain things but not other things. I could barely understand social interactions before I went gluten free. The anxiety comes back within a couple minutes. Other symptoms (like extreme hyperfocus) take a day or two before they come back. They last for about a week and then all of them go away. My symptoms cleared up about 90 to 95 percent. The differences that I still have are very minor in comparison but some are still there. Fortunately I don't have the emotional problems that I had before. I have been recovering in steps. Going gluten free helped and there were extreme changes the (things looked and sounded way different to me after I went gluten free) that happened suddenly. Others slowly went away over about a year. Eliminating cross contamination, and avoiding oats helped tons. Also I think if I avoid corn, milk, alchohol take L-glutamine powder, and a complete multivitamin/multi mineral tablet every day I feel best. I don't know if I have celiac disease, NCGS, and/or a wheat allergy. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3641836/
  6. L-glutamine is the primary food source for the cells that line the gut. The cells in the gut act differently when they have lots of food. Leaky gut is linked to inflammation and stress in the gut. In the link below, there is a diagram which shows how glutamine supplementation can lead to improved control over tight junctions within the gut. The idea is that L-glutamine supplementation increases the production of other proteins that help protect against leaky gut syndrome. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4369670/
  7. Did the Popsicle contain wheat? Celiac disease should not cause anaphylaxis. I am not a doctor though so this isn't medical advice. Food or chemical allergies can be dangerous. Celiac disease is a lot different from a food allergy although some symptoms can overlap. During an allergic reaction IGE antibodies are created along with histamine. Celiac disease can cause digestive problems in the stomach and intestine as well as a lot of other types of health problems. Shampoo and soap (unless they happen to have wheat in them and unless they get into your mouth somehow) should not cause problems for people with celiac disease.
  8. Here is a link on getting tested for Celiac disease. https://celiac.org/celiac-disease/understanding-celiac-disease-2/celiacdiseasesymptoms/
  9. What type of wheat allergy testing did you have done? Was it a blood test?
  10. Do you eat oats?
  11. There is wheat allergy, wheat intolerance and celiac disease. Without the correct testing it is not possible to distinguish them. Different varieties of wheat, how it is cooked the state of your immune system (it can wind up and wind down), the health of your gut and lots of other things can effect how you feel and the reaction that you get. Some sourdough bread for example tests very low in gluten but shouldn't be eaten if you have celiac disease. The symptoms you mentioned match with celiac disease and I recommend considering that possibility very seriously.

  12. Celiac and OCD

    ch88 replied to Bookgirl32's topic in Celiac Disease - Coping With

    Everyone messes up occasionally on the gluten free diet and I don't think that is a very big deal. It is good to be careful but I wouldn't worry if you mess up occasionally. There are a lot of processed foods though that contain gluten in them though and that can cause problems for people with celiac disease. Oats, for example are often heavily cross contaminated. This forum is good place to ask if you are unsure about whether or not a food has gluten in it.

  13. Celiac and OCD

    ch88 replied to Bookgirl32's topic in Celiac Disease - Coping With

    Celiac disease can cause anxiety disorder and ocd. There is a good chance that going gluten free will help your ocd, but I don't know for sure. A lot of people on this forum are able to go gluten free even in a shared kitchen. I am very careful about cross contamination but It is not something I worry about. Like I put a seat belt on when I drive but I don't worry about crashing. I think getting into a routine helps with that. Nobody does a perfect job of avoiding wheat. Cheating on the diet, on purpose, on other hand is risky. The idea is to avoid enough wheat to allow the intestine to heal. If you , only eat certified gluten free foods or whole foods, and are careful about washing all dishes before using them there is a very low risk of significant cross contamination. A lot of people on this forum share kitchens with other people who eat wheat. It can be difficult to avoid cross contamination in that situation but it can be done. If you put a plate in the dishwasher, for example, and it comes out clean it is very unlikely to be still contaminated with gluten. If you follow all of the tips in the newbie 101 thread you are probably fine. If you are still worried about it you can get another blood test later on to see how well you are doing.
  14. So I am trying to avoid corn. I think I react to corn badly. I am trying to figure out if high fructose corn syrup is considered safe on a corn free diet. High fructose corn syrup is made by separating corn starch from the corn zein. I am not sure if trace amounts still remain or there may be other ingredients is soda or candy that are made from corn. I came across an article which I found interesting. I did realize that food that contains wheat starch can now be labeled gluten free. It still has to have wheat starch listed in the ingredients though. I am really glad it still has to be labeled in the ingredients though. https://www.glutenfreeliving.com/gluten-free-foods/ingredients/new-word-on-wheat-starch/ "In Europe the standard for Codex wheat starch is 200 ppm gluten or less, meaning it must be further diluted during manufacturing to give a final product that tests safely below 20 ppm. According to the FDA, this will also be acceptable for products in the United States “as long as the final food product contains less than 20 parts per million (ppm) of gluten.”
  15. Hi, I am glad you are feel better on the gluten free diet. Two months is a really long time for the digestive problems to go away. A lot of people with celiac disease recover quickly (maybe a week or two) on a gluten free diet. Other medical problems could slow down the healing process. Some people make a food journal and rotate foods to see if there are certain foods that they don't digest well. Some people don't digest dairy very well, do best if they avoid high fat foods/sugar, or avoid consuming too much fructose. https://draxe.com/h-pylori/ I take a little bit of gluten free glutamine powder daily. It is available in walmart along with other protein powders. Glutamine is the primary food of the cells that line the gut. There is evidence that it may help with repairing stomach after an h-pylori infection. A whole foods, grain free diet has helped some people with celiac disease. It might be worth a shot. Dairy and rice were allowed in this diet, but they can be problematic for some people. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC359883a9/

  16. Brain Fog?

    ch88 replied to IrishTwins2009's topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms

    In certain cases a doctor may recommend shortening the gluten challenge. It might be a good idea to get tested ASAP. https://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/ Celiac disease can cause brain and nerve damage. A lot of people on this forum get anxiety or brain fog. The hearing changes are a bit more worrisome to me though based on what I have read online. I am not a doctor but I can't guarantee that continuing the gluten challenge is safe. I don't think there is anyway to tell for sure what is causing that.