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Pale stools


Misslee

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Misslee Apprentice

Hello

I haven't been diagnosed because my GP doesn't take anything I say seriously. I plan on changing GP but most are full and don't take new clients.

Anyway so I started to get severe acne in Mars 2019 and left side abdominal pain I went to the ER but they found no issue. My sister told me to stop gluten and when I did no more acne and pain. 

I didn't think I needed to get a diagnose as my issues were gone.

But I've had pale stools since summer 2019 maybe before but I don't quite remember exactly. 

And I disnt think much of it but I'm sure it's part of my hair falling and dry skin. I looked up pale stools and it means malabsorbation of nutrients a d now I'm super worried 😭am I gonna die of malnutrition. How come my gluten-free diet isn't helping this issue?

I'm going to a gastro Dr sorry for my bad English I'm French anyway but my appointment is next month. 

 

am I one of those unlucky ppl who is gluten-free diet but their stomach wont heal? I read refractory celiac disease. 😭

 

Also I sometimes eat traces of gluten by mistake because anytime it happens I get a pimple, will this not allow me to heal? is this the reason why?

 

please help I'm very worried I'm gonna die of malnutrition.


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trents Grand Master

Several recent studies have shown that most people who claim to be eating gluten free have actually lowered the amount of gluten they are ingesting but have not totally eliminated it. This can be from ignorance of how gluten is disguised by terminology, cross contamination or just cheating now and then. These same studies show this is particularly true of those who still dine out.

We are also finding out that the original gluten free standard of 20 parts of gluten per million may not be strict enough for some Celiacs. Because of this, at least one gluten free certification organization has adopted 10 ppm as their standard for gluten free certification. 

Please realize also that living a gluten free lifestyle involves diligence that extends beyond the food we eat. It also means checking to make sure that any medications or supplements we use are gluten free.

Misslee Apprentice
4 hours ago, trents said:

Several recent studies have shown that most people who claim to be eating gluten free have actually lowered the amount of gluten they are ingesting but have not totally eliminated it. This can be from ignorance of how gluten is disguised by terminology, cross contamination or just cheating now and then. These same studies show this is particularly true of those who still dine out.

We are also finding out that the original gluten free standard of 20 parts of gluten per million may not be strict enough for some Celiacs. Because of this, at least one gluten free certification organization has adopted 10 ppm as their standard for gluten free certification. 

Please realize also that living a gluten free lifestyle involves diligence that extends beyond the food we eat. It also means checking to make sure that any medications or supplements we use are gluten free.

Hey 

thanks so much for the reply.

There is not much info available online in French..

I've been wanting to buy some books about celiac disease now. But until recently I thought I was allergic so I didn't think much about it. But my stools makes me believe I have celiac.

Ok so are you saying those gluten free pastas bread or cookies labels gluten-free I sometimes eat aren't really gluten free? Thanks a lot I had no idea.

I'm ready to stop eating out and stop eating those food saying gluten free.

I only cheated once since goinf gluten free and had I know I had celiac I would have done it.

I just want my health to get better and to digest properly.

Do you think my stools will become normal if I eat strictly meat and vegetables. 

I found out this week salt has gluten I bought the cheapest one and I got a pimple.

its true I also bought iron supplements once and I had no idea there was gluten until I got pimples. I now but Solgar cause I've read there wasn't gluten.

I'm going to be really strict about the diet I don't wanna die from malnutrition. ☹

Anyway thanks a lot for posting.

 

trents Grand Master
(edited)

You said: "I only cheated once since goinf gluten free and had I know I had celiac I would have done it." This is why we usually recommend people to get the testing done to confirm a diagnosis of Celiac Disease. Human nature is such that we otherwise find a way to rationalize it away and cheat. The other good reason to get the testing done, including the intestinal biopsy, is to have something to compare with to judge progress in healing later on if another biopsy is done at a later date.

I'm not saying that all foods that claim to be gluten free are not. I'm saying sometimes they are not. There is a difference between the label "Gluten Free" and the label "Certified Gluten Free." The latter is more reliable.

I wouldn't blame all your pimples on gluten.

I wouldn't put too much emphasis on the color of your stool but Celiacs often don't digest fats well. This can cause oily stools and "floaters."

 

Edited by trents
Misslee Apprentice
10 hours ago, trents said:

You said: "I only cheated once since goinf gluten free and had I know I had celiac I would have done it." This is why we usually recommend people to get the testing done to confirm a diagnosis of Celiac Disease. Human nature is such that we otherwise find a way to rationalize it away and cheat. The other good reason to get the testing done, including the intestinal biopsy, is to have something to compare with to judge progress in healing later on if another biopsy is done at a later date.

I'm not saying that all foods that claim to be gluten free are not. I'm saying sometimes they are not. There is a difference between the label "Gluten Free" and the label "Certified Gluten Free." The latter is more reliable.

I wouldn't blame all your pimples on gluten.

I wouldn't put too much emphasis on the color of your stool but Celiacs often don't digest fats well. This can cause oily stools and "floaters."

 

You say this as if I didn't want a diagnose. I said my Dr doesn't take my issues seriously. and I'm sure I'm not the only sick person that has encourentered doctors who barely believe you. so I don't understand why you're putting the blame on me.

My pimples are directly linked to gluten since I've never had acne in my life and they only appear after I digest gluten by mistake.

I don't understand your tone in your post. It is very offensive.

I might have more luck in some other forums.

Bye.

trents Grand Master

You said: "I only cheated once since goin gluten free and had I know I had celiac I would have done it." This is why we usually recommend people to get the testing done to confirm a diagnosis of Celiac Disease. Human nature is such that we otherwise find a way to rationalize it away and cheat. The other good reason to get the testing done, including the intestinal biopsy, is to have something to compare with to judge progress in healing later on if another biopsy is done at a later date.

I'm not saying that all foods that claim to be gluten free are not. I'm saying sometimes they are not. There is a difference between the label "Gluten Free" and the label "Certified Gluten Free." The latter is more reliable.

I wouldn't blame all your pimples on gluten.

I wouldn't put too much emphasis on the color of your stool but Celiacs often don't digest fats well. Then can cause oily stools and "floaters."

 

trents Grand Master
(edited)

It is easy to misunderstand one's tone when all you have is text to go by. I certainly did not intend to come across as suggesting you don't really want a diagnosis. If your doctor is not taking you seriously then seek another. Your experience with your doctor is not uncommon as there are still some doctors who are view Celiac Disease as the latest fad disease and don't take it seriously. 

If you go back and reread my original post I think you will see I was actually encouraging you to pursue the possibility of Celiac Disease further. That's why I said that we encourage people to seek a biopsy for confirmation so that they don't lose their resolve to eat gluten free.

Now that you added the information about you only get pimples when you consume gluten then the association between those two makes more sense. Pimples is not one of the commonly listed conditions associated with Celiac Disease but our knowledge of the disease is growing all the time. Please understand that when people first become aware that they have Celiac Disease it is typical that they start to blame all their health issues on that so I was just trying to interject a little reality there.

I hope you will remain with the forum and contribute your experience as part of the community's knowledge base.

Edited by trents

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knitty kitty Grand Master
On 10/14/2020 at 7:40 AM, Misslee said:

Hello

I haven't been diagnosed because my GP doesn't take anything I say seriously. I plan on changing GP but most are full and don't take new clients.

Anyway so I started to get severe acne in Mars 2019 and left side abdominal pain I went to the ER but they found no issue. My sister told me to stop gluten and when I did no more acne and pain. 

I didn't think I needed to get a diagnose as my issues were gone.

But I've had pale stools since summer 2019 maybe before but I don't quite remember exactly. 

And I disnt think much of it but I'm sure it's part of my hair falling and dry skin. I looked up pale stools and it means malabsorbation of nutrients a d now I'm super worried 😭am I gonna die of malnutrition. How come my gluten-free diet isn't helping this issue?

I'm going to a gastro Dr sorry for my bad English I'm French anyway but my appointment is next month. 

 

am I one of those unlucky ppl who is gluten-free diet but their stomach wont heal? I read refractory celiac disease. 😭

 

Also I sometimes eat traces of gluten by mistake because anytime it happens I get a pimple, will this not allow me to heal? is this the reason why?

 

please help I'm very worried I'm gonna die of malnutrition.

Misslee,

Welcome to the forum!

I understand about doctors being dismissive of symptoms.  I went undiagnosed for years and suffered severe vitamin deficiencies because my doctors did not take me seriously either.  

I'm curious about your breaking out in acne when you eat gluten.  I'm wondering if this could be Dermatitis Herpetiformis (DH), a manifestation of Celiac Disease in the skin.  Visit the DH topic section on this forum to learn more.

You said "I found out this week salt has gluten I bought the cheapest one and I got a pimple."  And you mentioned an iron supplement caused pimples.

Wheat usually isn't added to salt.  Was it iodized salt?  Iodine is often a trigger for DH lesions to appear whether gluten is ingested or not. Some iron supplements contain iodine as well as iron.

You could eat gluten or that iodized salt, have a break out and get a biopsy by a dermatologist who is familiar with DH.  A positive DH diagnosis is a Celiac Disease diagnosis because DH only happens in Celiac Disease.

Glad to hear you've got an appointment with a doctor next month.  I would suggest you request testing for gall bladder function, thyroid function, and Celiac Disease testing (complete panel of blood tests), as well as testing for vitamin and mineral deficiencies.  Putting your request in writing with your list of symptoms and dates, and showing it to your doctor may be beneficial.  

The gall bladder secretes bile when you eat that helps with digestion.  The bile gives your poop that brown color normally.  Pale poop could mean that your gall bladder is not functioning properly.  Gall bladder problems can be related to Celiac Disease.  Many undiagnosed Celiacs have gall bladder problems.  Several of us on the forum have had their gall bladders removed.  

Thyroid dysfunction is also linked to Celiac Disease.  Hair loss and dry skin can be caused by your thyroid not working properly.

Testing for Celiac Disease requires you to be eating some gluten every day (called a gluten challenge) so that your body will make antibodies against gluten, then the antibodies will be found in the blood.  A follow-up endoscopy with samples taken of the small intestine are done to examine microscopically the tissue in the small intestine to confirm the diagnosis. 

Some people are not able to continue eating gluten because their symptoms are so severe.  An endoscopy done without a gluten challenge beforehand may still show damage, or it may not because the small intestine may heal rapidly in some people.

Sometimes a genetic test for specific Celiac Disease genes and a resolution of symptoms on the gluten free diet is acceptable as a diagnosis.  

New Celiacs are encouraged to stay away from processed gluten free foods and eating out while healing because there may be gluten contamination or the additives or other ingredients may cause problems.  

Eating fresh veggies and meats cooked at home so you know they're gluten free is recommended.  Staying away from dairy products, beans (legumes), nightshades (potatoes, tomatoes, aubergine, and peppers), and other grains is beneficial while your body heals.  

Hope this helps!  Keep us posted on your progress!

 

ch88 Collaborator
On 10/14/2020 at 6:40 AM, Misslee said:

Hello

I haven't been diagnosed because my GP doesn't take anything I say seriously. I plan on changing GP but most are full and don't take new clients.

Anyway so I started to get severe acne in Mars 2019 and left side abdominal pain I went to the ER but they found no issue. My sister told me to stop gluten and when I did no more acne and pain. 

I didn't think I needed to get a diagnose as my issues were gone.

But I've had pale stools since summer 2019 maybe before but I don't quite remember exactly. 

And I disnt think much of it but I'm sure it's part of my hair falling and dry skin. I looked up pale stools and it means malabsorbation of nutrients a d now I'm super worried 😭am I gonna die of malnutrition. How come my gluten-free diet isn't helping this issue?

I'm going to a gastro Dr sorry for my bad English I'm French anyway but my appointment is next month. 

 

am I one of those unlucky ppl who is gluten-free diet but their stomach wont heal? I read refractory celiac disease. 😭

 

Also I sometimes eat traces of gluten by mistake because anytime it happens I get a pimple, will this not allow me to heal? is this the reason why?

 

please help I'm very worried I'm gonna die of malnutrition.

 

Some people with Celiac disease might have difficulty absorbing the proper vitamins. B12, for example, requires a number of steps in order for it to be absorbed correctly. With b12, a higher dosage will mean that some gets absorbed anyway. I would magnesium, zinc and extra b vitamins. 

Here is a link about vitamins. 

https://ods.od.nih.gov/factsheets/list-VitaminsMinerals/

I have had pale stools before. An elimination diet seemed to help with that. I didn't notice any improvements in my IBS symptoms when I took vitamins. They did make me a bit clearer headed though. 

The cells in the intestine need lots of glutamine in order to grow (they only last 3 days on average). Glutamine, I think also acts as the main antioxidant in the gut. 

Theanine also helps with cell survival and growth in the intestine. 

 

Posterboy Mentor

Misslee,

I agree with Knitty Kitty....

Pale stools usually is a gall bladder problem.

Here is a quick google search about it...

https://www.healthline.com/health/stools-pale-or-clay-colored#complications

If you want to try and move stone....many home remedies recommend Lemon Juice...you can google it...

I hope this is helpful but it is not medical advise.

Posterboy,

Misslee Apprentice

 

hello everyone thanks a lot for the replies.

I have tried to stay away from dairy to see if the stools will be normal again I feel like there were less pale but still not a proper normal brown color. I've always been a big dairy consumer but my sister is lactose intolerant but she has symptoms like pain whenever she eats dairy and paler stools. I don't feel any pain. but she suggested I tried to stop dairy for a few weeks.

Also I never had digestive issues before this disease so yeah it's very difficult to understand.

Also I've been losing a lot of hair since 2019 my dermatologist thinks it may be lack of vitmains as I was really depressed I was almost homeless I was living with my sister as i had no where to live and ate very badly and small portions and had low meat intake I had panic attacks.

I have my own place now and I feel more positive but I'm still really worried for my health. I feel like all this come from the pain the sadness the anxiety the despair. Anyways 

I'm going to go for some testings for hashimoto as well because of my hair loss changed texture dry dull grey gross skin I will do it on my own since my doctor won't take anything I say seriously.

My sister also was told about a woman doctor who really listens and take her patients seriously she lives in another city but I don't mind I just wanna be heard and be helped.

 

I read all your posts and I will implement your advice. thanks so much that gives me some relief.

 

Misslee Apprentice

Also the salt has anti coagulant? which can be gluten I visited a blog on the hidden gluten in groceries and I read my salt and there was anti coagulant in it.

It's so tricky with the groceries even the mayonnaise has gluten but I'm getting better at it.

Posterboy Mentor
4 hours ago, Misslee said:

 

hello everyone thanks a lot for the replies.

I have tried to stay away from dairy to see if the stools will be normal again I feel like there were less pale but still not a proper normal brown color. I've always been a big dairy consumer but my sister is lactose intolerant but she has symptoms like pain whenever she eats dairy and paler stools. I don't feel any pain. but she suggested I tried to stop dairy for a few weeks.

Also I never had digestive issues before this disease so yeah it's very difficult to understand.

Also I've been losing a lot of hair since 2019 my dermatologist thinks it may be lack of vitmains as I was really depressed I was almost homeless I was living with my sister as i had no where to live and ate very badly and small portions and had low meat intake I had panic attacks.

I have my own place now and I feel more positive but I'm still really worried for my health. I feel like all this come from the pain the sadness the anxiety the despair. Anyways 

I'm going to go for some testings for hashimoto as well because of my hair loss changed texture dry dull grey gross skin I will do it on my own since my doctor won't take anything I say seriously.

My sister also was told about a woman doctor who really listens and take her patients seriously she lives in another city but I don't mind I just wanna be heard and be helped.

 

I read all your posts and I will implement your advice. thanks so much that gives me some relief.

 

Misslee,

Try taking a B-complex.  They can help depression.

Here is a link about nutrition and depression entitled "Understanding nutrition, depression and mental illnesses"

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2738337/

Magnesium is also important for depression.

See this research about Magnesium and depression entitled "Rapid recovery from major depression using magnesium treatment".

https://pubmed.ncbi.nlm.nih.gov/16542786/

I have got my nephew started on some Magnesium and his depression is already showing some improvement.

Once you begin taking a B-complex with meals....your urine will begin to turn yellow....

The longer it takes to turn yellow the lower you are in Riboflavin. If takes more than 3 days to turn your urine yellow you have probably been deficient for a while...

I used to have the Anxiety and near panic attacks you mentioned....it got better when I took some Riboflavin aka B2.

Here is a nice overview on Riboflavin.

https://www.urologyofva.net/articles/category/healthy-diet/4388519/understanding-riboflavin-vitamin-b2-deficiency-in-celiac-disease

Anxiety can be the first sign someone is low  in B2.

Quoting from the article

"Riboflavin plays an important role in making other nutrients fully available, especially iron, zinc, folic acid, niacin (vitamin B3) and vitamin B12."

This is important because low Iron has also been linked to panic attacks.....if you are low in Riboflavin....taking it can help your Iron absorption.

Here is a nice overview of a Riboflavin deficiency.

https://pubmed.ncbi.nlm.nih.gov/29262062/

I hope this is helpful but it is not medical advise.

Posterboy,

  • 2 weeks later...
Misslee Apprentice

Hello everyone

I just wanted to give you guys an update.

so I haven't been eatinf dairy for a month to see if that was my issue and indeed my stools started to get darker and darker.

Yesterday I ate milk and cream with my recipe and also a milk shake and somehow I had reallt bad stomach pain and my stools were so pale and greasy again. So I think I can't eat too much dairy anymore I will onl.y eat buttrr maybe my enzymes got destroyed because I have eaten dairy all my life until now never had an issue so oh well it makes me sad as dairy was a huge part of my diet :(

but I rather have normal stools so yeah its OK at least I know whats going on.

I'm still constipated and I still don't know why so I'm still going to keep my appointment to the gastroenterologist.

 

I've also been losing a lot of hair since 2019 but I was more focused on the pale stools.

I'm still taking the B vitamins and the zinc for now.

I will get tested for my iodine too because I haven't been eating salt on a regular basis for years and Im also grt tested for t3 t4 and antibodies.

Also I have found non processesed natural Gray salt to be working with me I don't get pimples at all. I think the problems was the processesed salt where they add chemicals.

 

Thanks everyone you're really helping me and giving me relief I don't know anyone in real life with this issue so I was very lost and confused.

Misslee Apprentice
On 10/22/2020 at 12:25 AM, Posterboy said:

Misslee,

Try taking a B-complex.  They can help depression.

Here is a link about nutrition and depression entitled "Understanding nutrition, depression and mental illnesses"

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2738337/

Magnesium is also important for depression.

See this research about Magnesium and depression entitled "Rapid recovery from major depression using magnesium treatment".

https://pubmed.ncbi.nlm.nih.gov/16542786/

I have got my nephew started on some Magnesium and his depression is already showing some improvement.

Once you begin taking a B-complex with meals....your urine will begin to turn yellow....

The longer it takes to turn yellow the lower you are in Riboflavin. If takes more than 3 days to turn your urine yellow you have probably been deficient for a while...

I used to have the Anxiety and near panic attacks you mentioned....it got better when I took some Riboflavin aka B2.

Here is a nice overview on Riboflavin.

https://www.urologyofva.net/articles/category/healthy-diet/4388519/understanding-riboflavin-vitamin-b2-deficiency-in-celiac-disease

Anxiety can be the first sign someone is low  in B2.

Quoting from the article

"Riboflavin plays an important role in making other nutrients fully available, especially iron, zinc, folic acid, niacin (vitamin B3) and vitamin B12."

This is important because low Iron has also been linked to panic attacks.....if you are low in Riboflavin....taking it can help your Iron absorption.

Here is a nice overview of a Riboflavin deficiency.

https://pubmed.ncbi.nlm.nih.gov/29262062/

I hope this is helpful but it is not medical advise.

Posterboy,

Thanks a lot there is b2 in the vitamin B complex I take. I think it took a few days for my urine to change.

I'm going to get blood test for b2 b1 b9.

.

 

trents Grand Master

The fatty stools with dairy may be due to the fat itself in the dairy. Do you get this if you drink skim milk?

Misslee Apprentice
6 hours ago, trents said:

The fatty stools with dairy may be due to the fat itself in the dairy. Do you get this if you drink skim milk?

I'm not sure. I'm going to stop dairy for now because my stomach is weird right now.

but as soon as feel completely fine I will try skim milk to see if the problem is still there or not.

Do you think the issue is fat? But when I eat meat thank God it doesn't do anything bad to my stomach or stools.

I don't know what to conclude yet. Either my bile or lactose intolerance?

 

  • 3 weeks later...
Misslee Apprentice

Hello

Well my stools are still pale and I'm losing weight at an alarming rate.

I have my appointment the 26th so we will what the Dr says.

I'm still very worried though I feel like I'm dying 😕 I have anxiety so that doesn't help.

trents Grand Master

Do you think it's time for extensive workups like complete bloodwork (CBC + CMP) and maybe some imaging? Do you feel comfortable with being assertive with your physician?

Dinesh Desai Newbie
On 10/21/2020 at 11:11 PM, Misslee said:

 

hello everyone thanks a lot for the replies.

I have tried to stay away from dairy to see if the stools will be normal again I feel like there were less pale but still not a proper normal brown color. I've always been a big dairy consumer but my sister is lactose intolerant but she has symptoms like pain whenever she eats dairy and paler stools. I don't feel any pain. but she suggested I tried to stop dairy for a few weeks.

Also I never had digestive issues before this disease so yeah it's very difficult to understand.

Also I've been losing a lot of hair since 2019 my dermatologist thinks it may be lack of vitmains as I was really depressed I was almost homeless I was living with my sister as i had no where to live and ate very badly and small portions and had low meat intake I had panic attacks.

I have my own place now and I feel more positive but I'm still really worried for my health. I feel like all this come from the pain the sadness the anxiety the despair. Anyways 

I'm going to go for some testings for hashimoto as well because of my hair loss changed texture dry dull grey gross skin I will do it on my own since my doctor won't take anything I say seriously.

My sister also was told about a woman doctor who really listens and take her patients seriously she lives in another city but I don't mind I just wanna be heard and be helped.

 

I read all your posts and I will implement your advice. thanks so much that gives me some relief.

 

 

On 10/14/2020 at 6:10 PM, Misslee said:

Hello

I haven't been diagnosed because my GP doesn't take anything I say seriously. I plan on changing GP but most are full and don't take new clients.

Anyway so I started to get severe acne in Mars 2019 and left side abdominal pain I went to the ER but they found no issue. My sister told me to stop gluten and when I did no more acne and pain. 

I didn't think I needed to get a diagnose as my issues were gone.

But I've had pale stools since summer 2019 maybe before but I don't quite remember exactly. 

And I disnt think much of it but I'm sure it's part of my hair falling and dry skin. I looked up pale stools and it means malabsorbation of nutrients a d now I'm super worried 😭am I gonna die of malnutrition. How come my gluten-free diet isn't helping this issue?

I'm going to a gastro Dr sorry for my bad English I'm French anyway but my appointment is next month. 

 

am I one of those unlucky ppl who is gluten-free diet but their stomach wont heal? I read refractory celiac disease. 😭

 

Also I sometimes eat traces of gluten by mistake because anytime it happens I get a pimple, will this not allow me to heal? is this the reason why?

 

please help I'm very worried I'm gonna die of malnutrition.

My Colonoscopy shows Mild to moderate inflammation in illeum and i am strict Glutenfree on last 2 years and my TTG comes under control what it indicates?? 

ch88 Collaborator

 

On 10/14/2020 at 3:34 PM, Misslee said:

I'm ready to stop eating out and stop eating those food saying gluten free.

You are very likely to get cross contaminated at restaurants. I think this is a major reason why some people still have problems on a gluten free diet. Another thing you could try is just eating fruits vegetables and meat for a while. The aip diet is also very effective for treating IBS symptoms. I take b-vitamins, extra magnesium, zinc and selenium (you will want to balance out those three), some glutamine powder as well as some theanine regularly. These all are anti-inflammatory and help heal the intestine. 

  • 3 weeks later...
Misslee Apprentice
On 11/26/2020 at 4:03 AM, ch88 said:

 

You are very likely to get cross contaminated at restaurants. I think this is a major reason why some people still have problems on a gluten free diet. Another thing you could try is just eating fruits vegetables and meat for a while. The aip diet is also very effective for treating IBS symptoms. I take b-vitamins, extra magnesium, zinc and selenium (you will want to balance out those three), some glutamine powder as well as some theanine regularly. These all are anti-inflammatory and help heal the intestine. 

Hello Yes I figured reading you guys I wasn't strict enough with my diet so I've stopped eating take outs or at restaurants. Now I only eat at home and mostly rice meat vegetables and fruits because whenever I eat something else I get cross contaminated even when you think it must be gluten free it isn't 😕. But food isn't as appetizing as it was now so that's kinda difficult although I have a whole food store with some stuff like gluten free cookies ice cream some soups so I treat myself from time to time but I feel like foos is boring now but I know health is more important. 

I went to the gastro and she gave me some probiotics and some exams to do like stool analysis and blood tests I told her about gluten but she hasn't gave me an endoscopy yet hopefully next time I see her as that was my first appointment.

 

trents Grand Master

An endoscopy and biopsy will not yield valid results if you have been eating gluten-free for any length of time before it is done.

Misslee Apprentice
1 hour ago, trents said:

An endoscopy and biopsy will not yield valid results if you have been eating gluten-free for any length of time before it is done.

Yes I will ask for an appointment after I eat gluten again I read it had to be for 6 weeks?

I will do that. 

My blood tests came back normal so it's not my liver or anything but I haven't done the stool analys yet either but I know it's the gluten.

Anyways thank you.

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    5. - Scott Adams replied to Whyz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Feeling ill


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    • PixieSticks
      Hi yes! I was diagnosed 10 years ago through a biopsy. I’ve been gluten free ever since but no one I’m around is gluten free. I sometimes wore a surgical mask in the kitchen. but I believe particles were still getting through. I’ll definitely look into n95 instead. thanks for the reply. 
    • BoiseNic
      Ya I used to react to iodine, but it doesn't bother me anymore after strict adherence to a gluten-free diet for many years now. I am happy to report that for the first time ever in my life, a probiotic formula is not making me break out, but actually seems to be helping. The strains in this formula have been specifically tested to help with skin issues. It is gluten and dairy free also. 
    • knitty kitty
      @Whyz, I take a combination of Thiamin (Benfotiamin), B12 Cobalamine and Pyridoxine B6 for my pain and headaches.  Really works well without hurting the digestive tract.  Riboflavin B2 also helps with migraines.  Most newly diagnosed people have vitamin and mineral deficiencies.  Check with your doctor and nutritionist.   If you follow the updated gluten challenge guidelines, you can wait until two weeks (minimum) before your appointment, then eat lots of gluten, like six slices of gluten containing bread or "name your poison".   Here's the Updated Gluten Challenge Guidelines: Recommended intake of gluten should be increased to 10 grams of gluten per day for at least two weeks. Or longer. While three grams of gluten will begin the immune response, ten grams of gluten is needed to get antibody levels up to where they can be measured in antibody tests and changes can be seen in the small intestine.   Keep in mind that there are different amounts of gluten in different kinds of bread and gluten containing foods.  Pizza crust and breads that are thick and chewy contain more gluten than things like cake and cookies.   References: https://www.beyondceliac.org/celiac-disease/the-gluten-challenge/ And... Evaluating Responses to Gluten Challenge: A Randomized, Double-Blind, 2-Dose Gluten Challenge Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7878429/?report=reader  "In our study, limited changes in Vh:celiac disease (villi height vs crypt depth - aka damage to the small intestine)  following 14-day challenge with 3 g of gluten were observed, in accordance with Sarna et al.  While the 3 g dose was sufficient to initiate an immune response, as detected by several biomarkers such as IL-2, the 10 g dose was required for enteropathy within the study time frame. Based on our data, we would suggest that gluten challenge should be conducted over longer durations and/or using doses of gluten of ≥ 3 g/day to ensure sufficient histological change can be induced." Keep us posted on your progress!
    • Scott Adams
      I don't believe that existing life insurance policies require such notifications--health checks are typically done before such policies are obtained. I believe it would primarily affect any new policy you get, and perhaps any policy renewal.
    • Scott Adams
      You could go gluten-free now, and then start eating lots of gluten for at least 2 weeks before your endoscopy--just be sure to tell your doctor about this beforehand. If your symptoms go away on a gluten-free diet, it is further evidence of celiac disease and/or non-celiac gluten sensitivity.  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.  
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