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Misslee

Pale stools

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Hello

I haven't been diagnosed because my GP doesn't take anything I say seriously. I plan on changing GP but most are full and don't take new clients.

Anyway so I started to get severe acne in Mars 2019 and left side abdominal pain I went to the ER but they found no issue. My sister told me to stop gluten and when I did no more acne and pain. 

I didn't think I needed to get a diagnose as my issues were gone.

But I've had pale stools since summer 2019 maybe before but I don't quite remember exactly. 

And I disnt think much of it but I'm sure it's part of my hair falling and dry skin. I looked up pale stools and it means malabsorbation of nutrients a d now I'm super worried 😭am I gonna die of malnutrition. How come my gluten-free diet isn't helping this issue?

I'm going to a gastro Dr sorry for my bad English I'm French anyway but my appointment is next month. 

 

am I one of those unlucky ppl who is gluten-free diet but their stomach wont heal? I read refractory celiac disease. 😭

 

Also I sometimes eat traces of gluten by mistake because anytime it happens I get a pimple, will this not allow me to heal? is this the reason why?

 

please help I'm very worried I'm gonna die of malnutrition.

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Several recent studies have shown that most people who claim to be eating gluten free have actually lowered the amount of gluten they are ingesting but have not totally eliminated it. This can be from ignorance of how gluten is disguised by terminology, cross contamination or just cheating now and then. These same studies show this is particularly true of those who still dine out.

We are also finding out that the original gluten free standard of 20 parts of gluten per million may not be strict enough for some Celiacs. Because of this, at least one gluten free certification organization has adopted 10 ppm as their standard for gluten free certification. 

Please realize also that living a gluten free lifestyle involves diligence that extends beyond the food we eat. It also means checking to make sure that any medications or supplements we use are gluten free.

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4 hours ago, trents said:

Several recent studies have shown that most people who claim to be eating gluten free have actually lowered the amount of gluten they are ingesting but have not totally eliminated it. This can be from ignorance of how gluten is disguised by terminology, cross contamination or just cheating now and then. These same studies show this is particularly true of those who still dine out.

We are also finding out that the original gluten free standard of 20 parts of gluten per million may not be strict enough for some Celiacs. Because of this, at least one gluten free certification organization has adopted 10 ppm as their standard for gluten free certification. 

Please realize also that living a gluten free lifestyle involves diligence that extends beyond the food we eat. It also means checking to make sure that any medications or supplements we use are gluten free.

Hey 

thanks so much for the reply.

There is not much info available online in French..

I've been wanting to buy some books about celiac disease now. But until recently I thought I was allergic so I didn't think much about it. But my stools makes me believe I have celiac.

Ok so are you saying those gluten free pastas bread or cookies labels gluten-free I sometimes eat aren't really gluten free? Thanks a lot I had no idea.

I'm ready to stop eating out and stop eating those food saying gluten free.

I only cheated once since goinf gluten free and had I know I had celiac I would have done it.

I just want my health to get better and to digest properly.

Do you think my stools will become normal if I eat strictly meat and vegetables. 

I found out this week salt has gluten I bought the cheapest one and I got a pimple.

its true I also bought iron supplements once and I had no idea there was gluten until I got pimples. I now but Solgar cause I've read there wasn't gluten.

I'm going to be really strict about the diet I don't wanna die from malnutrition. ☹

Anyway thanks a lot for posting.

 

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You said: "I only cheated once since goinf gluten free and had I know I had celiac I would have done it." This is why we usually recommend people to get the testing done to confirm a diagnosis of Celiac Disease. Human nature is such that we otherwise find a way to rationalize it away and cheat. The other good reason to get the testing done, including the intestinal biopsy, is to have something to compare with to judge progress in healing later on if another biopsy is done at a later date.

I'm not saying that all foods that claim to be gluten free are not. I'm saying sometimes they are not. There is a difference between the label "Gluten Free" and the label "Certified Gluten Free." The latter is more reliable.

I wouldn't blame all your pimples on gluten.

I wouldn't put too much emphasis on the color of your stool but Celiacs often don't digest fats well. This can cause oily stools and "floaters."

 

Edited by trents

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10 hours ago, trents said:

You said: "I only cheated once since goinf gluten free and had I know I had celiac I would have done it." This is why we usually recommend people to get the testing done to confirm a diagnosis of Celiac Disease. Human nature is such that we otherwise find a way to rationalize it away and cheat. The other good reason to get the testing done, including the intestinal biopsy, is to have something to compare with to judge progress in healing later on if another biopsy is done at a later date.

I'm not saying that all foods that claim to be gluten free are not. I'm saying sometimes they are not. There is a difference between the label "Gluten Free" and the label "Certified Gluten Free." The latter is more reliable.

I wouldn't blame all your pimples on gluten.

I wouldn't put too much emphasis on the color of your stool but Celiacs often don't digest fats well. This can cause oily stools and "floaters."

 

You say this as if I didn't want a diagnose. I said my Dr doesn't take my issues seriously. and I'm sure I'm not the only sick person that has encourentered doctors who barely believe you. so I don't understand why you're putting the blame on me.

My pimples are directly linked to gluten since I've never had acne in my life and they only appear after I digest gluten by mistake.

I don't understand your tone in your post. It is very offensive.

I might have more luck in some other forums.

Bye.

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You said: "I only cheated once since goin gluten free and had I know I had celiac I would have done it." This is why we usually recommend people to get the testing done to confirm a diagnosis of Celiac Disease. Human nature is such that we otherwise find a way to rationalize it away and cheat. The other good reason to get the testing done, including the intestinal biopsy, is to have something to compare with to judge progress in healing later on if another biopsy is done at a later date.

I'm not saying that all foods that claim to be gluten free are not. I'm saying sometimes they are not. There is a difference between the label "Gluten Free" and the label "Certified Gluten Free." The latter is more reliable.

I wouldn't blame all your pimples on gluten.

I wouldn't put too much emphasis on the color of your stool but Celiacs often don't digest fats well. Then can cause oily stools and "floaters."

 

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It is easy to misunderstand one's tone when all you have is text to go by. I certainly did not intend to come across as suggesting you don't really want a diagnosis. If your doctor is not taking you seriously then seek another. Your experience with your doctor is not uncommon as there are still some doctors who are view Celiac Disease as the latest fad disease and don't take it seriously. 

If you go back and reread my original post I think you will see I was actually encouraging you to pursue the possibility of Celiac Disease further. That's why I said that we encourage people to seek a biopsy for confirmation so that they don't lose their resolve to eat gluten free.

Now that you added the information about you only get pimples when you consume gluten then the association between those two makes more sense. Pimples is not one of the commonly listed conditions associated with Celiac Disease but our knowledge of the disease is growing all the time. Please understand that when people first become aware that they have Celiac Disease it is typical that they start to blame all their health issues on that so I was just trying to interject a little reality there.

I hope you will remain with the forum and contribute your experience as part of the community's knowledge base.

Edited by trents

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On 10/14/2020 at 7:40 AM, Misslee said:

Hello

I haven't been diagnosed because my GP doesn't take anything I say seriously. I plan on changing GP but most are full and don't take new clients.

Anyway so I started to get severe acne in Mars 2019 and left side abdominal pain I went to the ER but they found no issue. My sister told me to stop gluten and when I did no more acne and pain. 

I didn't think I needed to get a diagnose as my issues were gone.

But I've had pale stools since summer 2019 maybe before but I don't quite remember exactly. 

And I disnt think much of it but I'm sure it's part of my hair falling and dry skin. I looked up pale stools and it means malabsorbation of nutrients a d now I'm super worried 😭am I gonna die of malnutrition. How come my gluten-free diet isn't helping this issue?

I'm going to a gastro Dr sorry for my bad English I'm French anyway but my appointment is next month. 

 

am I one of those unlucky ppl who is gluten-free diet but their stomach wont heal? I read refractory celiac disease. 😭

 

Also I sometimes eat traces of gluten by mistake because anytime it happens I get a pimple, will this not allow me to heal? is this the reason why?

 

please help I'm very worried I'm gonna die of malnutrition.

Misslee,

Welcome to the forum!

I understand about doctors being dismissive of symptoms.  I went undiagnosed for years and suffered severe vitamin deficiencies because my doctors did not take me seriously either.  

I'm curious about your breaking out in acne when you eat gluten.  I'm wondering if this could be Dermatitis Herpetiformis (DH), a manifestation of Celiac Disease in the skin.  Visit the DH topic section on this forum to learn more.

You said "I found out this week salt has gluten I bought the cheapest one and I got a pimple."  And you mentioned an iron supplement caused pimples.

Wheat usually isn't added to salt.  Was it iodized salt?  Iodine is often a trigger for DH lesions to appear whether gluten is ingested or not. Some iron supplements contain iodine as well as iron.

You could eat gluten or that iodized salt, have a break out and get a biopsy by a dermatologist who is familiar with DH.  A positive DH diagnosis is a Celiac Disease diagnosis because DH only happens in Celiac Disease.

Glad to hear you've got an appointment with a doctor next month.  I would suggest you request testing for gall bladder function, thyroid function, and Celiac Disease testing (complete panel of blood tests), as well as testing for vitamin and mineral deficiencies.  Putting your request in writing with your list of symptoms and dates, and showing it to your doctor may be beneficial.  

The gall bladder secretes bile when you eat that helps with digestion.  The bile gives your poop that brown color normally.  Pale poop could mean that your gall bladder is not functioning properly.  Gall bladder problems can be related to Celiac Disease.  Many undiagnosed Celiacs have gall bladder problems.  Several of us on the forum have had their gall bladders removed.  

Thyroid dysfunction is also linked to Celiac Disease.  Hair loss and dry skin can be caused by your thyroid not working properly.

Testing for Celiac Disease requires you to be eating some gluten every day (called a gluten challenge) so that your body will make antibodies against gluten, then the antibodies will be found in the blood.  A follow-up endoscopy with samples taken of the small intestine are done to examine microscopically the tissue in the small intestine to confirm the diagnosis. 

Some people are not able to continue eating gluten because their symptoms are so severe.  An endoscopy done without a gluten challenge beforehand may still show damage, or it may not because the small intestine may heal rapidly in some people.

Sometimes a genetic test for specific Celiac Disease genes and a resolution of symptoms on the gluten free diet is acceptable as a diagnosis.  

New Celiacs are encouraged to stay away from processed gluten free foods and eating out while healing because there may be gluten contamination or the additives or other ingredients may cause problems.  

Eating fresh veggies and meats cooked at home so you know they're gluten free is recommended.  Staying away from dairy products, beans (legumes), nightshades (potatoes, tomatoes, aubergine, and peppers), and other grains is beneficial while your body heals.  

Hope this helps!  Keep us posted on your progress!

 

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On 10/14/2020 at 6:40 AM, Misslee said:

Hello

I haven't been diagnosed because my GP doesn't take anything I say seriously. I plan on changing GP but most are full and don't take new clients.

Anyway so I started to get severe acne in Mars 2019 and left side abdominal pain I went to the ER but they found no issue. My sister told me to stop gluten and when I did no more acne and pain. 

I didn't think I needed to get a diagnose as my issues were gone.

But I've had pale stools since summer 2019 maybe before but I don't quite remember exactly. 

And I disnt think much of it but I'm sure it's part of my hair falling and dry skin. I looked up pale stools and it means malabsorbation of nutrients a d now I'm super worried 😭am I gonna die of malnutrition. How come my gluten-free diet isn't helping this issue?

I'm going to a gastro Dr sorry for my bad English I'm French anyway but my appointment is next month. 

 

am I one of those unlucky ppl who is gluten-free diet but their stomach wont heal? I read refractory celiac disease. 😭

 

Also I sometimes eat traces of gluten by mistake because anytime it happens I get a pimple, will this not allow me to heal? is this the reason why?

 

please help I'm very worried I'm gonna die of malnutrition.

 

Some people with Celiac disease might have difficulty absorbing the proper vitamins. B12, for example, requires a number of steps in order for it to be absorbed correctly. With b12, a higher dosage will mean that some gets absorbed anyway. I would magnesium, zinc and extra b vitamins. 

Here is a link about vitamins. 

https://ods.od.nih.gov/factsheets/list-VitaminsMinerals/

I have had pale stools before. An elimination diet seemed to help with that. I didn't notice any improvements in my IBS symptoms when I took vitamins. They did make me a bit clearer headed though. 

The cells in the intestine need lots of glutamine in order to grow (they only last 3 days on average). Glutamine, I think also acts as the main antioxidant in the gut. 

Theanine also helps with cell survival and growth in the intestine. 

 


Wheat sensitive. Probably Celiac disease but it could be an allergic response. I get very strong anxiety and then autistic symptoms whenever I eat wheat. It is probably a form of encephalitis (swelling in the brain due to wheat) but I am not sure.  Things that I avoid: All grain, alcohol, eggs, dairy, processed food.

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Misslee,

I agree with Knitty Kitty....

Pale stools usually is a gall bladder problem.

Here is a quick google search about it...

https://www.healthline.com/health/stools-pale-or-clay-colored#complications

If you want to try and move stone....many home remedies recommend Lemon Juice...you can google it...

I hope this is helpful but it is not medical advise.

Posterboy,

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hello everyone thanks a lot for the replies.

I have tried to stay away from dairy to see if the stools will be normal again I feel like there were less pale but still not a proper normal brown color. I've always been a big dairy consumer but my sister is lactose intolerant but she has symptoms like pain whenever she eats dairy and paler stools. I don't feel any pain. but she suggested I tried to stop dairy for a few weeks.

Also I never had digestive issues before this disease so yeah it's very difficult to understand.

Also I've been losing a lot of hair since 2019 my dermatologist thinks it may be lack of vitmains as I was really depressed I was almost homeless I was living with my sister as i had no where to live and ate very badly and small portions and had low meat intake I had panic attacks.

I have my own place now and I feel more positive but I'm still really worried for my health. I feel like all this come from the pain the sadness the anxiety the despair. Anyways 

I'm going to go for some testings for hashimoto as well because of my hair loss changed texture dry dull grey gross skin I will do it on my own since my doctor won't take anything I say seriously.

My sister also was told about a woman doctor who really listens and take her patients seriously she lives in another city but I don't mind I just wanna be heard and be helped.

 

I read all your posts and I will implement your advice. thanks so much that gives me some relief.

 

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Also the salt has anti coagulant? which can be gluten I visited a blog on the hidden gluten in groceries and I read my salt and there was anti coagulant in it.

It's so tricky with the groceries even the mayonnaise has gluten but I'm getting better at it.

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4 hours ago, Misslee said:

 

hello everyone thanks a lot for the replies.

I have tried to stay away from dairy to see if the stools will be normal again I feel like there were less pale but still not a proper normal brown color. I've always been a big dairy consumer but my sister is lactose intolerant but she has symptoms like pain whenever she eats dairy and paler stools. I don't feel any pain. but she suggested I tried to stop dairy for a few weeks.

Also I never had digestive issues before this disease so yeah it's very difficult to understand.

Also I've been losing a lot of hair since 2019 my dermatologist thinks it may be lack of vitmains as I was really depressed I was almost homeless I was living with my sister as i had no where to live and ate very badly and small portions and had low meat intake I had panic attacks.

I have my own place now and I feel more positive but I'm still really worried for my health. I feel like all this come from the pain the sadness the anxiety the despair. Anyways 

I'm going to go for some testings for hashimoto as well because of my hair loss changed texture dry dull grey gross skin I will do it on my own since my doctor won't take anything I say seriously.

My sister also was told about a woman doctor who really listens and take her patients seriously she lives in another city but I don't mind I just wanna be heard and be helped.

 

I read all your posts and I will implement your advice. thanks so much that gives me some relief.

 

Misslee,

Try taking a B-complex.  They can help depression.

Here is a link about nutrition and depression entitled "Understanding nutrition, depression and mental illnesses"

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2738337/

Magnesium is also important for depression.

See this research about Magnesium and depression entitled "Rapid recovery from major depression using magnesium treatment".

https://pubmed.ncbi.nlm.nih.gov/16542786/

I have got my nephew started on some Magnesium and his depression is already showing some improvement.

Once you begin taking a B-complex with meals....your urine will begin to turn yellow....

The longer it takes to turn yellow the lower you are in Riboflavin. If takes more than 3 days to turn your urine yellow you have probably been deficient for a while...

I used to have the Anxiety and near panic attacks you mentioned....it got better when I took some Riboflavin aka B2.

Here is a nice overview on Riboflavin.

https://www.urologyofva.net/articles/category/healthy-diet/4388519/understanding-riboflavin-vitamin-b2-deficiency-in-celiac-disease

Anxiety can be the first sign someone is low  in B2.

Quoting from the article

"Riboflavin plays an important role in making other nutrients fully available, especially iron, zinc, folic acid, niacin (vitamin B3) and vitamin B12."

This is important because low Iron has also been linked to panic attacks.....if you are low in Riboflavin....taking it can help your Iron absorption.

Here is a nice overview of a Riboflavin deficiency.

https://pubmed.ncbi.nlm.nih.gov/29262062/

I hope this is helpful but it is not medical advise.

Posterboy,

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