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PickyEmmy

Strange oral allergy?

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brief intro, I’m female in my early 20s diagnosed Celiac and Gastroparesis (Gastroparesis was this year it’s been rough)


I’ve noticed lately if I eat cereal or have certain foods I get this long white vein like thing in my mouth I also get red blisters inside my lip. I took a Benadryl the other day that contained the red dye and mouth broke out on the inside I stopped taking it and it went away I take the dye free ones and have no issues so far.

 

today I ate lactose free milk with corn flakes and now my mouth is all blistered again and the white veins are in my cheeks.

 

i noticed the same thing with oats too. 
 

with eggs my lips get tingly. These “allergies” literally came out of nowhere. I dislike taking Benadryl but it relieves the itching I get from certain foods.

 

my diet is very limited due to Gastroparesis and Celiac disease not being able to eat full meals I wonder if these mouth sores are due to malnutrition. 
 

Doctors think I’m a little nutty when I mention these things to them they think I just don’t want to eat and prescribe me anti depressants.

im running out of options here.

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Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):


I have corn and dairy allergies among some others, I do get the red sores (mine are a bit more like blood blisters) in my mouth. But yes keeping antihistamines around is daily life. Some stores around here have a liquid version that taste awful but works faster/better. Food allergies are very common in celiacs, common ones are dairy, soy, legumes (peanuts), nightshades (Tomatoes, peppers, potatoes) garlic, onion, etc. You should also avoid oats as about 10% celiacs react to them the same, as a side note double check they are Gluten Free. As for you issues with eggs, the are often considered histamine liberators.
On a side note, mine have tone down over the years to not be as bad, but for a short while they got worse when ignored.

I did deal with gastroparesis for awhile and found easy to break down and digest foods to be best, in my case I would often blend stuff into eggs before cooking slowly and having to chew til swish able -_-.But seemed the main issues was easy to break down, and nothing that would float. I often found digestive enzymes helped, few other little things to promote digestion. Literally was like a list of quirks and maybes with how random it would be. It would flare up daily no matter what for weeks after a gluten exposure of any kind.

Trying a elimination diet might help to find foods that do not affect any of your issues.


Diagnosed Issues
Celiac (Gluten Ataxia, and Villi Damage dia. 2014, Villi mostly healed on gluten-free diet 2017 confirmed by scope)
Ulcerative Colitis (Dia, 2017), ADHD, Bipolar, Asperger Syndrome (form of autism)
Allergies Corn, Whey
Sensitivities/Intolerances
Peanuts (resolved 2019), Cellulose Gel, Lactose, Soy, Yeast
Olives (Seems to have resolved or gone mostly away as of Jan, 2017), Sesame (Gone away as of June 2017, still slight Nausea)
Enzyme issues with digesting some foods I have to take Pancreatic Enzymes Since mine does not work right, additional food prep steps also
Low Tolerance for sugars and carbs (Glucose spikes and UC Flares)
Occupation Gluten Free Bakery, Paleo Based Chef/Food Catering

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Have you ever considered getting food allergy tests done to find the culprits, and then avoid them if possible? If you can't avoid them perhaps you could at least rotate your diet so that you don't eat them as often. I will assume that you are 100% gluten-free and that isn't causing you issues, but it never hurts to double check your diet to be sure.


Scott Adams

Celiac.com - Celiac Disease Board Moderator

Founder Celiac.com

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What brand corn flakes did you use? Was it labelled "gluten free"? Some corn flakes have malted barely which is not gluten free. 

Oats are also a very problematic ingredient (in that some people react to all oats) and they are very likely to be cross contaminated, unless they have a gluten free label. 

An egg allergy sometimes may go along with a soy allergy.

https://www.thehealthyhomeeconomist.com/egg-allergy-really-soy-allergy/

Do you react to dairy? If so there are alternatives that you might be able to tolerate. 


I take glutamine powder and theanine for my IBS. (See the posts on my profile for more information.)

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