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Diagnosed Celiac- Test Results ?

Degas24
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Degas24 Newbie
Degas24
Posted

My daughter was diagnosed with celiac at age 7.  She is now 17.  Her levels were tested a year ago and they were off the charts.  So she met with a nutritionist again and has been doing better. Her primary doctor retested her IgA levels.  A year ago it was 52 mg/dl. Now it is 46 mg/dl. It say normal range is 61-386 mg/dl.  It is a Friday and her doctor is gone for the weekend and I just want to know what this means?  

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trents Grand Master
trents
Posted

It points to the likelyhood that she is doing well with her efforts to eat gluten free.

Do you have any other antibody numbers. IgA is not the only indicator and may not be the best one for evaluating celiac disease.

Scott Adams Grand Master
Scott Adams
Posted

I agree, they normally do a ttg test as well, is that the only test that was done?

Degas24 Newbie
Degas24
Posted
  • Author
10 hours ago, Scott Adams said:

I agree, they normally do a ttg test as well, is that the only test that was done?

Her current TTIgA is 241.5 CU (was 545.5 CU in 2019).

12 hours ago, trents said:

It points to the likelyhood that she is doing well with her efforts to eat gluten free.

Do you have any other antibody numbers. IgA is not the only indicator and may not be the best one for evaluating celiac disease.

Her current TTIgA is 241.5 CU (was 545.5 CU in 2019).

Scott Adams Grand Master
Scott Adams
Posted

On the ttIgA does it show the markers for normal, and the high mark? Each lab seems to have their own scale, so it would be helpful to have this. 

DJFL77I Experienced
DJFL77I
Posted

Normal ttg is like 0 to 3 isn't it.

DJFL77I Experienced
DJFL77I
Posted

My ttg was 120ish at diagnosis.. they were tested again at 6 months in December and were at 11.

0 - 3 was marked as normal so it needs to come down a little more but I'm expecting that to take no more than a month or so.. I get it tested again in April...  Eating only fresh foods.. only packaged stuff I was eating is almond butter, Lara bar with 2 ingredients, Greek yogurt, some vanilla icecream, 

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Degas24 Newbie
Degas24
Posted
  • Author
On 1/15/2021 at 1:20 PM, Scott Adams said:

On the ttIgA does it show the markers for normal, and the high mark? Each lab seems to have their own scale, so it would be helpful to have this. 

It says that <20 is normal.

Scott Adams Grand Master
Scott Adams
Posted

The new protocol is that if someone scores 10x the celiac disease level, then they can be diagnosed with the blood test alone, however, not all doctors are following this. I would just make sure that she's not cheating on her diet, as that can happen with teenagers. My daughter is a perfect example of this!

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