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alittle
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alittle Newbie
alittle
Posted

Hello,

I’ve had IBS for as long as I can remember. I live overseas and my gut seems to to be getting worse since I moved here (coming up on 2 years from Canada). I had a colonoscopy back in my 20s (almost 40 now) but it didn’t show anything. I’m currently awaiting blood results but thought I’d ask you your thoughts while I wait.

Family history- mother has diverticulitis, brother has ulcerative colitis, cousin has celiac. 
 

Here are my symptoms:

- gut wrenching pain- like someone is wringing out my insides

- bloating and burping

- diarrhea 

- nausea

- bouts of what appears to be food poisoning (twice in the last 6 months)

- super iron deficient

- tired all the time

- HLA- DQ2.5 genetic variant 

- Zonulin level high 

- positive for anti- nuclear anti-bodies.

I’ve never really had a problem with gluten before or at least I don’t think I do. So, I’ve never even tried a gluten-free diet and now I’m not going to until I’ve had scopes which I’m pretty sure will be my next steps.

thoughts or advice?

Thanks in advance!

 

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cristiana Veteran
cristiana
Posted

Hello alittle and welcome to the forum!

Here in the UK where I live a large percentage of IBS sufferers turn out to be coeliacs when they are finally tested.  There was a big campaign about it here a few years ago - the number was astonishing, I think it was nearly  a third, although I've just read another figure - one in four.   Of course, there can also be overlap - I happen to have both conditions, according to my gastroenterologist! So I think you are very wise to try to rule out coeliac disease.  

Keep us posted!

Cristiana

GodsGal Community Regular
GodsGal
Posted
2 hours ago, alittle said:

Hello,

I’ve had IBS for as long as I can remember. I live overseas and my gut seems to to be getting worse since I moved here (coming up on 2 years from Canada). I had a colonoscopy back in my 20s (almost 40 now) but it didn’t show anything. I’m currently awaiting blood results but thought I’d ask you your thoughts while I wait.

Family history- mother has diverticulitis, brother has ulcerative colitis, cousin has celiac. 
 

Here are my symptoms:

- gut wrenching pain- like someone is wringing out my insides

- bloating and burping

- diarrhea 

- nausea

- bouts of what appears to be food poisoning (twice in the last 6 months)

- super iron deficient

- tired all the time

- HLA- DQ2.5 genetic variant 

- Zonulin level high 

- positive for anti- nuclear anti-bodies.

I’ve never really had a problem with gluten before or at least I don’t think I do. So, I’ve never even tried a gluten-free diet and now I’m not going to until I’ve had scopes which I’m pretty sure will be my next steps.

thoughts or advice?

Thanks in advance!

 

Hi! Sorry you are feeling so bad! That's no fun. I am not a medical professional. Please don't take any of this as medical advice. I think that you are definitely on the right track and that you are wise to wait on going gluten free until you get the tests/scans done. 

A couple of questions are coming to mind:

1) You mentioned that your symptoms are worse since moving. Have there been any significant changes in your diet?

2) Have you ruled out any other intolerances (i.e. dairy, eggs, corn, etc)?

I hope this helps and that you can get relief soon! Keep us posted!

Dianasolvei Rookie
Dianasolvei
Posted

I have IBS as well as the DQ8 gene. I kept going gluten free because every time I eat something with it I get super sick. Dr. tested me, but I’d been off gluten for many months. She wanted to do a gluten challenge with me but I’m not going there! I don’t want to have to face recovery and lose months of health for it! Her current recommendation is just to completely avoid gluten as there is a suspicion of celiac. I had similar symptoms to you, and it ended up that my blood sugar was too high. Turned out to be the start of pre-diabetes. Ugh.

Scott Adams Grand Master
Scott Adams
Posted

Hi @Dianasolvei, welcome to the forum!

If I were pre-diabetic I would go on a paleo diet. Everything I've read on this points to too many carbs & sugar. Being gluten-free if you are gluten sensitive of celiac could also help improve your blood sugar.

Dianasolvei Rookie
Dianasolvei
Posted
29 minutes ago, Scott Adams said:

Hi @Dianasolvei, welcome to the forum!

If I were pre-diabetic I would go on a paleo diet. Everything I've read on this points to too many carbs & sugar. Being gluten-free if you are gluten sensitive of celiac could also help improve your blood sugar.

Hi Scott...thanks! Glad to find this forum. Yes...it looks like paleo is the way to go!

Posterboy Mentor
Posterboy
Posted
On 5/28/2021 at 12:25 PM, Dianasolvei said:

I have IBS as well as the DQ8 gene. I kept going gluten free because every time I eat something with it I get super sick. Dr. tested me, but I’d been off gluten for many months. She wanted to do a gluten challenge with me but I’m not going there! I don’t want to have to face recovery and lose months of health for it! Her current recommendation is just to completely avoid gluten as there is a suspicion of celiac. I had similar symptoms to you, and it ended up that my blood sugar was too high. Turned out to be the start of pre-diabetes. Ugh.

Diana,

Try taking some Chromium Poly.  It can help your elevated blood sugars. It did mine!

Chromium helps Insulin work better by a factor 100x to 1 is what I read once.....I was low in Chromium.....and doctor's don't study Vitamin(s) these days....because they don't believe they can help you.....

I dropped my A1C two whole points in 2 months going from Diabetic to prediabetic......and it has been well controlled since.

Also try taking you some Benfotiamine (a Fat Soluble B-1) found in the Diabetic section.

It can help any complications you might be having.

Benfotiamine has been used in the treatment of Diabetic Polyneuropathy.

Here is an article about it....

https://www.naturalmedicinejournal.com/journal/2018-11/thiamine-deficiency-and-diabetic-polyneuropathy

Thiamine works best when you take it with a highly absorbed Magnesium like Magnesium Citrate or Magnesium always with meals.

The Fat Soluble B-1s (Benfotiamine etc.) need a meal to help them be absorbed.

After taking Benfotiamine (again as a fat soluble B-1) I went from a diabetic with complications to an uncomplicated Pre-diabetic.

Thiamine can be good for Cholesterol as well.

Here is the reference work on the benefit of Thiamine for Cholesterol.

Entitled "Metabolic Benefits of Six-month Thiamine Supplementation in Patients With and Without Diabetes Mellitus Type 2"

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3921172/

I hope this is helpful but it is not medical advice.

Posterboy,

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Dianasolvei Rookie
Dianasolvei
Posted

Thanks! That’s an amazing accomplishment! Diet and nutrition play a huge role for sure. I will take a look at those supplements!🙂

Posterboy Mentor
Posterboy
Posted
On 5/27/2021 at 9:52 AM, alittle said:

Hello,

I’ve had IBS for as long as I can remember. I live overseas and my gut seems to to be getting worse since I moved here (coming up on 2 years from Canada). I had a colonoscopy back in my 20s (almost 40 now) but it didn’t show anything. I’m currently awaiting blood results but thought I’d ask you your thoughts while I wait.

Family history- mother has diverticulitis, brother has ulcerative colitis, cousin has celiac. 
 

Here are my symptoms:

- gut wrenching pain- like someone is wringing out my insides

- bloating and burping

- diarrhea 

- nausea

- bouts of what appears to be food poisoning (twice in the last 6 months)

- super iron deficient

- tired all the time

- HLA- DQ2.5 genetic variant 

- Zonulin level high 

- positive for anti- nuclear anti-bodies.

I’ve never really had a problem with gluten before or at least I don’t think I do. So, I’ve never even tried a gluten-free diet and now I’m not going to until I’ve had scopes which I’m pretty sure will be my next steps.

thoughts or advice?

Thanks in advance!

 

Alittle,

The High Zonulin levels might be a sign of either Low Stomach Acid or Low Niacin levels.

Here is the blog that links these connections.

https://alobar.livejournal.com/2930798.html#%2F2930798.html

I wrote about these connections in this Posterboy blog post....

It is kind of long....so you might want to read it more than once...the hard research is the 2nd part of the Blog post....

IN the ADDENDUM section....

You might also want to take some Thiamine and some Tryptophan.

Here is Posterboy blog post I wrote about Thiamine deficiency in Celiac disease.

Here is the research that shows how Tryptophan can help the Intestines of Celiac's heal faster...

https://www.news-medical.net/news/20201022/Tryptophan-found-in-turkeys-can-accelerate-intestinal-healing-in-people-with-celiac-disease.aspx

I hope this is helpful but it is not medical advice.

Posterboy,

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