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Mental Health and Celiacs Desease

Mathew

By Mathew
in Related Issues & Disorders

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Mathew Contributor
Mathew
Posted

Hi me again. Quick question, im really struggling with my mental health on the back of a glutening almost 9 days ago. My mood is so low, im on ssri's to help, this glutening has either done some neurological damage or im just sick of being sick. Im slowly losing friends around me and fam getting well annoyed with me. Any advice?

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Patty harrigan Apprentice
Patty harrigan
Posted

I’m by nature a happy, upbeat, energetic person. After I get glutened, I become a lethargic, weeping mess. I actually don’t care if I sit down and die. This can take months to disappear. It’s not suicidal, it’s an overwhelming feeling of ennui; that life is too hard and I just would like to sit down and close my eyes. That I’m not safe anywhere. I become afraid of eating and being left alone. I cry all day and I hate crying. It does eventually lift and normal life resumes. It’s why I don’t eat any food prepared out of my own kitchen. Sad way to live but I feel as though I lose so much that I’d rather live a restricted life than a joyless life. Gluten does effect your brain.

trents Grand Master
trents
Posted
5 hours ago, Mathew said:

Hi me again. Quick question, im really struggling with my mental health on the back of a glutening almost 9 days ago. My mood is so low, im on ssri's to help, this glutening has either done some neurological damage or im just sick of being sick. Im slowly losing friends around me and fam getting well annoyed with me. Any advice?

Investigate what vitamins and minerals that SRI use depletes and supplement.

Mathew Contributor
Mathew
Posted
  • Author
1 hour ago, trents said:

Investigate what vitamins and minerals that SRI use depletes and supplement.

Had bloods back today and full blood count, celiac, folate all fine. Vit D, Calcium a little low and thyroid a lttle over active. 

I.M.Celiac Apprentice
I.M.Celiac
Posted
1 hour ago, Mathew said:

Had bloods back today and full blood count, celiac, folate all fine. Vit D, Calcium a little low and thyroid a lttle over active. 

Hi Mathew!

My heart goes out to you. The struggle from the family is especially rough. (Celiac is genetic but they don't want to hear about it. So frustrating!) Are there any Celiac meet-ups near you? Or maybe start a "Visit-a-gluten-free-bakery" meet-up? Rate it on a scale and post about it?  Once I had other friends with gluten-free issues, it got easier. 

I use an over-the-counter Centrum multivitamin. It helps more than I first realized. 

Maybe go to a therapist to vent how your family is dropping the ball? It helped me. (My family used bartenders as therapists for generations. Not a great choice!)

I thought relatives would understand why I was sick all of my life and now I feel better. That, uh was not the case.

Good luck! Most of us on this site have felt how isolating and frustrating having Celiac can be.

Sending good vibes! 

 

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    • cristiana
      Coeliac or not coeliac

      By cristiana · Posted

      Hi @CC90 Ah... that is very interesting.  Although it is very annoying for you to have to go through it all again, I would say that almost sounds like an admission that they didn't look far enough last time?   I could be wrong, but I would not be at all surprised if they find something on the next attempt.  Coeliac damage can be very patchy, as I understand it, so that's why my own gastroenterologist always likes to point out that he's taken lots of samples!  In the kindest possible way (you don't want to upset the person doing the procedure!) I'd be inclined to tell them what happened last time and to ask them in person to take samples lower down, as  if your health system is anything like the one in my country, communication between GPs, consultants and hospitals isn't always very good.  You don't want the same mistake to be made again. You say that your first endoscopy was traumatic?  May I ask, looking at your spelling of coeliac, was this done at an NHS hospital in England?  The reason for the question is that one of my NHS diagnosed friends was not automatically offered a sedative and managed without one.  Inspired by her, I tried to have an endoscopy one time, in a private setting, without one, so that I could recover quicker, but I had to request sedative in the end it was so uncomfortable.    I am sorry that you will have to go through a gluten challenge again but to make things easier, ensure you eat things containing gluten that you will miss should you have to go gluten free one day. 😂 I was told to eat 2 slices of normal wholemeal bread or the equivalent every day in the weeks before , but I also opted for Weetabix and dozens of Penguin chocolate biscuits.  (I had a very tight headache across my temple for days before the procedure, which I thought was interesting as I had that frequently growing up. - must have been a coeliac symptom!)  Anyway, I do hope you soon get the answers you are looking for and do keep us posted. Cristiana  
    • CC90
      Coeliac or not coeliac

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    • Wheatwacked
      Coeliac or not coeliac

      By Wheatwacked · Posted

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    • trents
      Coeliac or not coeliac

      By trents · Posted

      Cristiana asks a very relevant question. What looks normal to the naked eye may not look normal under the microscope.
    • cristiana
      Coeliac or not coeliac

      By cristiana · Posted

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