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Rachel--24

Omg...i Might Be On To Something

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Yeah...it chelates from the brain. I would be very catious. You dont really want to chelate from the brain until you've done everything else....its pretty much the last step.

Hmmm, I'm on ALA. This is not their normal protocol though for heavy metals. It's because mine tested so low that they are using this protocol .... so maybe I'm ready for it.

This Cipro is causing some herxing ... not my regular, monthly herx, but the new med is stirring things up. I didn't even get dressed today ... just laying around the house wearing what I slept in.

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Yeah...it chelates from the brain. I would be very catious. You dont really want to chelate from the brain until you've done everything else....its pretty much the last step.

I just have to laugh though cuz he's the one who told me to take it on my last visit...he didn't say how much though, so today I only took one pill instead of two.

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Jin

Your right stressing causes worsening of problems. Thank you Jin for being their for me. Sometimes that physical pain is a downer huh Jin?

Carla

Did you get mercury toxic from fish or teeth? Are you going through the same thing me and Rachel are going through?

Rachel

Is that oxypowder kicking in yet? Any moldening symptoms?

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Sorry about the 5+5 confusion. I rate my days on a scale of 1-10 (yes- I do recall Andrea saying a 0 was DEAD :lol: :lol: :lol: and Tuesday was a 10! I felt HUMAN!

Yay!!!!!! (I'm in betw 'reconnections'. Havin' a blast still every minute.)

Not sure if the old "wish I were dead" comes in at -1 or 1. Hmmmmm

I posted this on DS but I'll post it here too:

What's DS again? Seen it mentioned a few times.

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I just have to laugh though cuz he's the one who told me to take it on my last visit...he didn't say how much though, so today I only took one pill instead of two.

Yeah...I know I saw that in your post. Nice that he warned you about it AFTER you've already been taking it. :rolleyes:

Anyways...I had seen ALA always mentioned in various protocols so I had bought it at WF before my appt. with Dr. Amy......cuz I wanted her to test it and see if it would work out for me.

I started reading more about it after I bought it and decided I wouldnt risk trying it. It said it doesnt form a strong bond with the mercury and causes redistribution if theres not another chelator taken with it. Everything I've read says it crosses the BBB and has a weak bond on its own.

Alpha lipoic acid should not be used alone, as it only mobilizes mercury with a weak bond. Without additional chelators present, such as DMPS or DMSA, the mercury may just redistribute elsewhere in the body instead of being removed.

The guy who wrote my book on mercury poisoning suggests a very specific protocol with ALA used in conjunction with DMSA (or sometimes DMPS)....but not ALA by itself.

He says it will move mercury all over the place and make you really sick. He says you have to use it in a careful and controlled manner and at the appropriate time.

I dont refer to this book too often because the author's opinions on treatment vary greatly from Klinghardts. They dont agree on alot of things (i.e. the author suggests the same protocol for everyone) but it seems like they would both use ALA with great caution.

I dont think Amy even tested me for the ALA...she just said it wouldnt be a good idea for me right now...that it will redistribute mercury.

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OK...I got my Methyl B-12....I'm totally scared to do the shot!! :blink:

I canceled my blood draw.....resceduled for Monday. The B12 just got here. They put like 7 reuseable ice packs in there....which is cool cuz I could really use those things! :)

All the shots are ready to go. Theres a 2 month supply....a whole bunch of syringes with the B12 already in them. I guess I dont have to do anything except poke myself with it?? :huh:

I'm scared. :(

Theres no directions but I could go watch those demonstration videos.....or I can have the nurses show me Monday when I go for my blood draw.

I wanna take my first shot today though.

Oh....and if the shot is to be given every 3 days....does that mean my next shot would be Sunday...or Monday?? :unsure:

I'm thinking Sunday but I just wanna make sure. :)

I'm not too scared of getting a reaction....its compounded....it doesnt have preservatives or anything else....just the Methyl B12.....I'll report back later (possibly with a sore butt :lol: ).

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Is that oxypowder kicking in yet? Any moldening symptoms?

Nothing from the OxyPowder yet.....I feel wierd after taking it but not sure if its a moldening yet. My stomach was REALLY noisy all night and this morning. I actually think I might have felt like I needed to have a bm...but it didnt actually happen. :(

The site says someone with alot of impacted stool might take a few days to start kicking in.....it says everyones different....give it a minimum of 5 days to start working.

I'm still doing enemas because I just cant let myself be constipated....so I'm not sure if that will interfere with the oxypowder or not. :unsure:

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Carla

Did you get mercury toxic from fish or teeth? Are you going through the same thing me and Rachel are going through?

Don't know ... there's a lot of mercury in our environment. I had my amalgams out in 1991 and chelated back then, so I'm having different issues than you and Rachel.

My primary issue is Lyme. I have a minor problem with metals. No problem with candida at the moment, but I'm on Nystatin and a anti-candida-lite diet to prevent one since I'm on so many antibiotics. Basically, I did the mercury/candida stuff 16 years ago.

OK...I got my Methyl B-12....I'm totally scared to do the shot!! :blink:

Divide the cheek into quadrants ... the shot goes into the upper/outer quadrant. I'd watch the video. :)

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The guy who wrote my book on mercury poisoning suggests a very specific protocol with ALA used in conjunction with DMSA (or sometimes DMPS)....but not ALA by itself.

This explains it ... I'm taking another chelator with it.

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This is very interesting. I've been thinking a lot about this lately.

My gluten-intolerance started about a year after when I think I contracted Lyme. It was so complicated though because my mom had just died in 2003 (the summer I got bit) and I was pretty fatigued. I thought it was grief (a lot of it was). I had definitely become lactose intolerant right after she died.

But about a year went by before I REALLY started to feel horrific.

I have the DQ8 gene but....

doubt I'll challenge this EVER knowing what I know about gluten now!

I would think the only way you could possibly NOT have Celiac is if your bloodwork was only IgG positive.

If you were totally recovered and just really wanted to know FOR SURE....you could do a challenge. When you're all better you might just be at peace with everything and it might not matter one way or the other.

I know for sure I dont have Celiac but my Enterolab was positive and BioSET showed big problems with gluten. I know for me its because of the mercury/candida/leaky gut.

I dont know if the problem will resolve itself once I'm healed but I had planned on the same thing as Carla...I know there are Big Macs and pizza in my future...oh and I cant forget the Cinnabons. :P

I've decided to still use ART even after I'm recovered. I'll get myself tested maybe a couple times a year to stay on top of everything and see how I'm doing. I'll use BioSET and ART to determine whether or not I can safely eat gluten.

Obviously the Celiac tests are useless for me...and I dont have a ton of faith in Enterolab (at least not until he publishes)....so thats the way I'm gonna handle it when the time comes. I figure I can find out a whole lot more about my body in one ART session than what I can find out with one stool test from Enterolab...and Enterolab costs more.

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About Enterolab ... If I remember correctly ... it's been months since I've been on that website ... his whole deal is that the people he finds positive for gluten intolerance feel better off gluten. The thing is, we all do feel better off gluten, so he's right.

Beyond that, I don't believe the tests show more than the person will feel better off gluten. I don't think it can differentiate between celiac (which he admits), true gluten intolerance (I do believe this exists), and gluten intolerance due to other reasons (leaky gut, Lyme, mercury, etc.).

It also casts a huge doubt on the results that my casein score was 32, yet I felt no difference off the dairy ... or when I reintroduced it six months later.

ROFL, I'm watching Friends ... Joey just came into the coffee shop with makeup on. He has a job modeling for the health center .... someone mentioned that the asthma guy was cute then asked him what disease he would have. He said he didn't know but Lyme Disease was still open! :lol:

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Divide the cheek into quadrants ... the shot goes into the upper/outer quadrant. I'd watch the video. :)

Well I did the shot already...I guess I just stuck myself anywhere. :rolleyes:

I guess it would be the lower/outer quadrant. :unsure:

Does it make a difference in how its absorbed?? Next time I'll do it higher.

I cant watch the video from my home computer...dial-up...I forgot about that. I'll get a pause for "rebuffering" every 2 seconds...it sucks. :angry:

The good news is that I didnt even feel the shot! :D

Scott had said these are really easy to use compared to most...he wasnt kidding! The needle is so tiny I didnt even feel it go in. There's no measuring or anything cuz every shot is pre-loaded.

Its mostly the autistic kids getting these shots from this pharmacy so I think they probably make them as easy to administer as possible....easy for the parent...less traumatic for the kid.

I'm glad because all my fears about the shots are gone now. :)

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Rachel, glad it went well.

The nurse that showed me where to give it said that if you give it in the wrong spot you can hit a nerve ... so next time, upper/outer.

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I am glad you are having a good time here! :P I think it's just about perfect weather right now...not too hot, but warm enough to get out and enjoy it...evenings and mornings cool!

All I can say about the friend is :blink: I definitely could not converse with that friend AFTER work. :P:lol:

It is another beeeeeeeee-yuuuuu-teeee-Full day in sannozay!!!

<gah gotta finish this in ~ an hr. Buddy called>

Ok he's in the bank.

Anyway - that guy, Tony; I couldn't converse w/ him for yrs. Talked a ton in my glory days of '05, then nothin' 'til now.

Way b4 that, talked regularly until I couldn't understand at all ~'00-02 maybe.

Met him while interviewing him to work where I was in '92.

He'll be talking something technical or academically literature-ish and toss in Dennis Miller-esque references that while somewhat obscure & totally out of the blue, are still familiar enough for me to get the joke.

<ffwd 1 hr>

Uhhh oh ya! Carla, he doesn't play an instr.

Jabbering just = pointless fun conversation. (Guessing it was seen like "jamming"??? :huh: )

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I dont know if the problem will resolve itself once I'm healed but I had planned on the same thing as Carla...I know there are Big Macs and pizza in my future...oh and I cant forget the Cinnabons. :P

HAHA yeah use that mind over matter it works great right. Oh got to go. Need to do an enyma. Guts feel like they want to explode. Should not have racheled that avacado and flax seed last night.! :rolleyes

P.S.

I know that noisey stomach and rumbling sounds, to familiar. I believe it's from mold but maybe not enough of it Rachel. Sometimes when I molden myself a little I'm not quite there with the diarrhea. But a little bit more mold and behold there is the diarrhea.

I also hear if your are sensitive to mold that if you keep moldening yourself it could accumulate in your lungs and start a mold ball. I hear that's dangerous.

Take care

Liza M

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Uhhh oh ya! Carla, he doesn't play an instr.

I was just teasing you ... it's my band friends who talk like you're describing and like you talk ... so I was making fun of you being a band geek. ;):D

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Retracing is when you are doing something to make your body heal ... it could be anything from cleaning up diet and taking supplements to taking a particular herb.

What happens is that our bodies do all they can to heal the most urgent task at hand and sometimes cannot heal it completely ... toxins, etc. are left behind. When it all of a sudden gets more energy and tools to heal, then it goes back and heals old issues that it couldn't completely heal the first time around.

. . . . . .

. . . . .Oh, this is where I meant to talk about retracing. :rolleyes: It's not really relapsing, it's having the energy to go back and fix what wasn't completely fixed before. Relapsing is when it's coming back and getting worse.

Ahhh probably best, most sensible explanation I've seen. (Hence me calling it mysterious)

So maybe 1 step back but 2 steps fwd?

(I prev thought it more relapse-y - 1 step back, another step back . . . . Occasional fwd, back back back [homerun! {Oops forget that part}])

:)

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Sorry about the 5+5 confusion. I rate my days on a scale of 1-10 (yes- I do recall Andrea saying a 0 was DEAD and Tuesday was a 10! I felt HUMAN!

Got a good laugh out of reading everyone's confusion though

.....

I did too. :D

Glad you liked my words. :wub:

.....

So thats my final theory.

I think it would be interesting to ask Dr. Amy since she treats mostly Lyme patients and autistic kids (who also have lyme). I'm assuming most of the kids would be Gluten-free Casein-free so it would be interesting to see if the diet itself can improve detox enough that the metals start coming out and the Lyme flares up.

I've seen it posted here lots of times...people going on the diet and then a few months later a whole flare-up of symptoms.

I think your theory is brilliant. I don't know if it is true or not but it seems like dealing with Lyme is like being in a battle where you are surrounded and you have to fight back on different fronts, sometimes all at once and sometimes piece by piece.

As to people getting better initially and then beginning to relapse my own suspicion is that Lyme and Babesia are really at epidemic proportions and it is just not acknowledged.

This is very interesting. I've been thinking a lot about this lately.

My gluten-intolerance started about a year after when I think I contracted Lyme. It was so complicated though because my mom had just died in 2003 (the summer I got bit) and I was pretty fatigued. I thought it was grief (a lot of it was). I had definitely become lactose intolerant right after she died.

But about a year went by before I REALLY started to feel horrific.

I have the DQ8 gene but....

doubt I'll challenge this EVER knowing what I know about gluten now!

I've been wondering about the immune system and the relationship stress plays in our illness. It seems to me that in a very basic way the well being of our immune system is directly connected to our desire to live.

I wonder about the effect of sorrow and rage on our immune system.

I know for me I used to go to a dark place where I felt that my life had little value and it made no difference if I lived or died. In my younger years I went through a period of months where I dressed all in black, when asked why I always wore black I would reply, "I'm in mourning for a life that is already dead". :lol::lol::lol:

The winter I had the rash and I first got ill was also a traumatic time emotionally. Then I seemed to get over it for a while and then the hip pain started followed by all the other symptoms of Lyme.

I wonder how it is that one person may be bitten and not get ill and another is bitten and becomes desperately ill. I know it is a combination of circumstances, perhaps one person is already mercury toxic and the other is not.

Has anyone heard of IRT?

.....

You're already in a much better place than I was....you're gonna make it through this.

I think of everyone here as a close friend....my extended family....we're in this together. :wub:

We're all in a better place now, with much thanks to this thread. :wub:

OMG, I think it is a :wub: fest. :lol::lol::lol: Donna started it. :P

See:

I'm feeling in a VERY thankful mood today, so just thought I'd speak up and say a big:

THANK YOU

to everyone here!

:wub::wub::wub::wub::wub::wub:

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The thing is, we all do feel better off gluten, so he's right.

Yeah....but I feel better off of rice too. :P

I feel better off of ALOT of things.

If I react to wheat...I dont know if its mold, mercury, pesticeds, gluten....or something else. Too much going on with the sensitivities right now.

I do believe that I'm intolerant to gluten because of the leaky gut...I do believe if I eat it there will be imflammation, more candida problems, etc....but I cant say Enterolabs test is accurate in every case.

Most everyone comes back positive but some people notice no difference when they eliminate gluten.

Most people do feel better but if you cant just eat a normal gluten-free diet (i.e all the gluten-free goodies) and you still have to stick to meat and veggies (like me).....then how can you be certain that you feel better because you're off of gluten??

How can you be certain you're not feeling better because you also eliminated a whole bunch of other toxic things (preservatives, additives, pesticides, food dyes, sugar, etc)??

Thats where I'm at....not doubting my gluten intolerance (because I know I have leaky gut)...but I dont see how Dr. Fine can determine that his tests are accurate based on "most people who test positive feel better off gluten".

It seems like most of these people have to be off of a whole lot more than just gluten....so when someone is eliminating major food groups (wheat, dairy, etc) and eating a more natural diet....wouldnt they feel better anyways?? :unsure:

If everyone was walking around with Lara bars, Pamelas cookies, eating Enjoy Life cereal for breakfast, eating peanut butter and jelly on WF Gluten-free Bakehouse bread, having gluten-free cupcakes and ice cream for desert....well then I might think differently.

It just doesnt seem to happen that way for most non-Celiacs "diagnosed" with gluten intolerance by Enterolab.

I dont think his tests are diagnostic for anything. At least if I spend the money on ART I can find out if I react to gluten + *WHY* I'm reacting to gluten. Seems like a better deal to me.

Oh yeah....I know we are on the same page here....I just went off on my own Enterolab rant again...dont mind me. :P:rolleyes:

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but I dont see how Dr. Fine can determine that his tests are accurate based on "most people who test positive feel better off gluten".

I dont think his tests are diagnostic for anything.

That was my point. :rolleyes: So ... his tests say you'll feel better off gluten, and you do ... but they don't tell more than that.

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Judging from my experience of waking up my Lyme after treatment with doxycycline, I would agree with Sherry that it's totally possible that she woke up the Lyme when she improved her health in other ways .... so in her case, maybe some of it was retracing, with the body trying to heal the hiding bacteria ... but it's different than retracing because this is something the body can't heal on its own ... the bacteria is coming out of hiding ... the immune system is awakened.

Makes a lot of sense, Carla.

The Gluten-free Casein-free diet could promote healing, more nutrients are absorbed, the body starts to detox itself much better. Its possible the metals are getting detoxed much more effectively now than they ever where before.

It would be interesting to see if the labs indicate the chelation is moving more metals out after the diet change.

That would definately explain the Lyme relapse. If metals started getting detoxed and there was no Lyme treatment to keep it in check...it would flare up....there would be a relapse.

The bugs can get out of control if metals are detoxed and the bugs arent being treated at the same time.

So thats my final theory. :)

I think it would be interesting to ask Dr. Amy since she treats mostly Lyme patients and autistic kids (who also have lyme). I'm assuming most of the kids would be Gluten-free Casein-free so it would be interesting to see if the diet itself can improve detox enough that the metals start coming out and the Lyme flares up.

I've seen it posted here lots of times...people going on the diet and then a few months later a whole flare-up of symptoms.

This is very interesting Rachel. I would be interested in Dr Amy's impressions.

Sherry

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I also hear if your are sensitive to mold that if you keep moldening yourself it could accumulate in your lungs and start a mold ball. I hear that's dangerous.

Take care

Liza M

I actually havent heard that could happen from repeated moldenings but the good news is that I was tested for fungal balls a few months back.

Apparantly I havent moldened myself enough yet. :lol:

You can get fungal balls from exposure (I think usually Aspergillus) but I dont think it comes from food exposure...cant remember exactly.

Anyways....yeah...I do get a noisy stomach from moldenings....thats why I'm not ruling mold out as the culprit yet. I'll give it a few more days. I did have some blurred vision after taking it and THAT is a pretty good indicator of mold...but still...the website said the "natural" citric acid chelates heavy metals.

So I dont know if the Oxy is moving stuff around or if its actually just moldening me. :rolleyes:

It doesnt "treat" candida but it does make the environment less desirable for candida so I would expect some discomfort for someone like me with massive amounts of yeast.

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That was my point. :rolleyes: So ... his tests say you'll feel better off gluten, and you do ... but they don't tell more than that.

I know. :P

Thats why I added that last sentence to my post. I just went on an Enterolab rant again....I cant stop myself. :ph34r:

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Ok, we are back and I'm in the process of catching up. Still have 2 pages to read. Forget what I wanted to comment on though. :ph34r:

For her testing she came up with quite a few things. HepB and Mumps came up. Sulfa family compounds (which is needed to be clear for detox). I was told that it was a possibility that if we had gone through DMPS/DMSA for chelation that it could have caused a backfire.

Regulation Open

Organs : adrenals, gut

Infections: yeast

Other: Metals are an issue - especially lead, cadmium, iron - methly mercury is underneath it all.

Short term plan : start detox w/modifilan? and support w/nutrition and ASYRA remedy.

start LED for detox and desensitization (LED does what it normally takes 50-100 days to do otherwise).

I need to try and get her to eat more veggies, any way I can. We are to continue the gluten-free/CF diet. She said whey protein would be a good thing to take. I forget what brand she mentioned and we forgot to stop by the store she mentioned. We did stop by WF which is only a few miles from there though. :)

I found it quite sad that she already has a problem with her adrenals. :(

She has LED for Sulpha as I've stated below, and then she'll have LED for foods and I forget what else.

I've very optomistic about this and like Dr. Elizabeth. She said she's been doing cold laser for 6 years and it was very easy to incorporate the LED. She was down at that training session. She thinks Scott is the greatest and is very pleased with his progress with ART testing.

Talitha has six supplement/support things to start taking. Poor child is going to have it tough next Wed afternoon - Fri afternoon since she won't be able to eat bread (eggs), onion or garlic. Mommy is going to have it tough trying to figure out what to feed her.

We go for LED treatment next week for the Sulpha Compound Group.

If anyone wants the complete list of things message me.

All in all I'm pleased with how things went today.

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