Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Dizziness


allison

Recommended Posts

hathor Contributor

Something to try --

Some years ago I got off the ship following a short cruise and found that I felt like I was still onboard. It didn't go away; my doctor prescribed something which didn't work.

So I did a lot of research on the internet and discovered what I had (MDD). It is something for which there is no test and so there were plenty of doctor horror stories in the support board I found. There is no official cure. I'm not saying any of you have this, just that there can be disorders that don't have any tests!

I tried chiropractic adjustments, exercises the chiropractor recommended, and some other balance exercises I found. Didn't work.

Then I read on one medical school's site that they suggest ginkgo for people with balance or dizziness problems. I took it for a couple days and my symptoms went away (I had had this for a couple months). I had to take it for some time. How did I know when to stop? I would stop and see if my symptoms returned ... I did have to take the strongest dosage I could find; a weaker one didn't work.

Now when I travel I always have ginkgo pills with me, since a couple times these symptoms have come back.

I believe it works because it improves blood flow.

Don't take this if you have a bleeding disorder or are taking any blood thinners, etc.

I thought it would be worth mentioning. Let me know if any of you try it and it works!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jesscarmel Enthusiast
Something to try --

Some years ago I got off the ship following a short cruise and found that I felt like I was still onboard. It didn't go away; my doctor prescribed something which didn't work.

So I did a lot of research on the internet and discovered what I had (MDD). It is something for which there is no test and so there were plenty of doctor horror stories in the support board I found. There is no official cure. I'm not saying any of you have this, just that there can be disorders that don't have any tests!

I tried chiropractic adjustments, exercises the chiropractor recommended, and some other balance exercises I found. Didn't work.

Then I read on one medical school's site that they suggest ginkgo for people with balance or dizziness problems. I took it for a couple days and my symptoms went away (I had had this for a couple months). I had to take it for some time. How did I know when to stop? I would stop and see if my symptoms returned ... I did have to take the strongest dosage I could find; a weaker one didn't work.

Now when I travel I always have ginkgo pills with me, since a couple times these symptoms have come back.

I believe it works because it improves blood flow.

Don't take this if you have a bleeding disorder or are taking any blood thinners, etc.

I thought it would be worth mentioning. Let me know if any of you try it and it works!

thanks for the info. i was thinking of seeing a naturopath if this does not clear up soon since traditional medicine does not seem to be workign for me. my dr is goign to try me on some migraine meds if my other tests are normal. i geuss if those work, it will prove it was migraine related.....

tarnalberry Community Regular

My migraines involve a type of dizziness. It's not a 'stand up and spin around a bunch then stop and now you feel dizzy' type, it's more of a disorientation and lack of ability to think clearly. Similar to the glutened brain-fog, but less foggy-thinking than foggy spatial perception. It's hard to describe, and it's not so severe that I can't walk in a straight line, but I have to work at it. It's not at all like a lack of balance for being drunk either. It's like you can sense the motion of the world around you, and you want it to stop *right now*. :P

num1habsfan Rising Star

i always have the dizziness. and like some of yyou guys have said in here, i never had it until going gluten-free. i have an example even today: I leaned over to get something off a chair, and just about tipped over sideways and tripped over other things :ph34r:. it usually some pretty nasty dizziness, sometimes i can barely stand.

~ lisa ~

jesscarmel Enthusiast
i always have the dizziness. and like some of yyou guys have said in here, i never had it until going gluten-free. i have an example even today: I leaned over to get something off a chair, and just about tipped over sideways and tripped over other things :ph34r:. it usually some pretty nasty dizziness, sometimes i can barely stand.

~ lisa ~

i just think its so weird that we only got it AFTER going gluten free. it makes no sense to me. for me its only gotten worse too. for me the room shifts rather than spin. have you seen anyone for it. my neuro doesnt think its related to going gluten free. im really annoyed already with this dizziness ....at least im not the only one

num1habsfan Rising Star
i just think its so weird that we only got it AFTER going gluten free. it makes no sense to me. for me its only gotten worse too. for me the room shifts rather than spin. have you seen anyone for it. my neuro doesnt think its related to going gluten free. im really annoyed already with this dizziness ....at least im not the only one

i saw all my family docs about it and honestly theyve never been able to explain any of the symptoms, they just all say its from celiac

~ lisa ~

tarnalberry Community Regular

I'd be curious if you find out whether or not it's migraine related. My migraines have fairly significantly shifted in their pattern (and I don't think that it's gluten related, but occured around our move), and this can happen over time. A bit disturbing, but apparently not all that atypical.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jesscarmel Enthusiast

well i guess the dr is right. i was at whole foods today and i felt the floor was pushing me up- really weird vertigo feeling. 20 minutes later i got a horrendous headache that i geuss was a migraine??!! the weird feeling kept coming for an hour and the headache is still going :(

i geuss i will end up taking the migrained medication he said he would give me.

  • 2 weeks later...
icmarmots Newbie

I'm being worked up for Adrenal problems partially because of the dizzy spells. I'm an RN and work nights. One evening I passed out at work***left the pt room because I felt dizzy and collapsed in the hallway*** This last Friday I went to workout right after I work up and had to stop halfway through because of the dizziness.

I'm really tired of it. Have any of you been worked up for Addison's (no Adrenal function).

darlindeb25 Collaborator

i just think its so weird that we only got it AFTER going gluten free.

When I talked to my doctor about my dizzy spells, he told me he feels it is part of my neuropathy, has something to do with the nerves in my neck, which does make perfect sense to me.

I do have optical migraines or ocular migraines, yet I never get dizzy with those, yet optical migraines are different from regular migraines too.

  • 5 months later...
kristend Rookie
The migraine part I have never heard of, although, I do have migraines.

As for the dizziness, I do have it. I didn't have it before going gluten-free and it's only been bad for the last several months. It started slowly. I would be hugging Kev and look up, he learned to keep his arm tight around me because when I look up, I tip backwards. As of late, any movement around me makes me dizzy, someone tittering their legs, talking with their hands, cars moving very slowly next to me, any movement slowly in my periphreal vision--sometimes it just hits me. I do have neuropathy and the doctor does feel it may be a part of the neuropathy. Weird!

Hello. I found your post and I too have really bad dizziness after going gluten free. I have been gluten-free for a little over a year now and it is the worst it has ever been. I'm being worked up right now for seizures but I really attribute it to eating. I notice it is the worst the day after I eat out or I drink alcohol does this happen to anyone? Could it be that I am so senstive to gluten now? All of my blood work since going gluten-free has been normal so my dr. doesnt think it is gluten related. any ideas?? It is really disrupting my life

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      9

      Celiac flare years after diagnosis

    2. - Jmartes71 replied to Jmartes71's topic in Dermatitis Herpetiformis
      4

      Skin issues

    3. - Aretaeus Cappadocia commented on Scott Adams's article in Additional Concerns
      1

      This Common Blood Pressure Drug Can Mimic Celiac Disease Symptoms

    4. - Aretaeus Cappadocia replied to Aretaeus Cappadocia's topic in Gluten-Free Recipes & Cooking Tips
      2

      Zaalouk moroccan eggplant salad

    5. - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Recipes & Cooking Tips
      2

      Zaalouk moroccan eggplant salad

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,061
    • Most Online (within 30 mins)
      10,442

    Francisco1007
    Newest Member
    Francisco1007
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • nancydrewandtheceliacclue
      @Aretaeus Cappadocia thank you for your reply and the link, that is very helpful to get a visual of just how small of an amount can cause a reaction. I know I am not consuming gluten or coming into contact with gluten from any other source. I will stop touching/tossing bread outside! My diet has not changed, and I do not have reactions to the things I am currently eating, which are few in number. My auto immune reaction just seems so severe. The abdominal pain is extreme. It takes a lot out of me. I guess I will be this way for the rest of my life if I ever happen to come into contact with gluten? I appreciate the help. 
    • Jmartes71
      Thankyou I did find out the Infectious disease is the route to go rather than dermatologist. I did reach out to two major hospitals and currently waiting on approval for one of them in Infectious Diseases to call me. I also did have implants ( I didn't know and sense not properly in my medical. Neither did surgeon)in 2006 and there was a leak 2023 during the same time I was dealing with covid, digestive issues, eyes and skin.Considering I " should  be fine" not consuming gluten/wheat, taking vitamins for sibo and STILL feeling terrible.It has to be parasites. I also take individual eye drops prescribed, could there be an issue there? Anyways my pcp thinks I need therapy because again they don't acknowledge my digestive issues because in my records it shows im fine, hintz the reason I had to go back to bay area hospital:(  I thought skin issues maybe sibo related but I feel and have seen and seriously trying not to think about it because it's disgusting. 
    • Aretaeus Cappadocia
      oops. I didn't see that before posting or I would have at least referenced it. The two recipes are pretty similar, but I think the newer one is a little simpler/faster. Next time though I will search more before posting.
    • Scott Adams
      I love Middle Eastern food and eggplant, and here is another version we shared some time back:  
    • Scott Adams
      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...