Jump to content
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

Sharon C.

Any Cream Or Lotion Help Heal Dh Scars?

Rate this topic

Recommended Posts

Although my dermatologist reached inconclusive skin biopsy results, I strongly believe I have DH. Where these spots begin to heal and eventually go away, I have dark purplish scars. Is there anything at all that can help them fade or go away faster? I am using pure coco butter. BEfore I came to the DH conclusion, I used pure Vitamin E oil (from wheat germ) and the rash seemed to get aggrivated. Also, when I have an allerigic reaction to other foods, because I think I'e developed leaky gut since I am allergic to just about everything and that's been verified by skin prick tests, the DH rash seems to react, too. Is that normal?

Gluten free one month now- not on Dapsone, and self diagnosed by circumstantial evidence.

Thanks.

Also, my Cetafil lotion doesn't seem to help, and I often wonder if it's aggrivating the rash.

Share this post


Link to post
Share on other sites

Sorry, Sharon. . .I'm mostly here to sympathise. I'm not on Dapsone either, and I still have scars (and a few scabs. . .the really, really, really bad ones) six years later - the good news is they're no longer livid purple, more a pale pink but visible as I have REALLY fair skin.

Don't be too down though, there is hope: I met a naturopathic physican a couple of months ago (this is NOT the same as a naturopath. . .don't be fooled. . .they have to be an MD as WELL. . .licensed to prescribe traditional pharma medications as well as proven herbal remedies) who has suggested a clinic in London (UK) where there is a naturopathic dermatologist who specialises in DH. . .she did wonders for a friend of a friend, but it is tricky to get an appointment, so I've not tried it yet. I think the only NMD group in the States is in Seattle. . .sorry I don't have the name, but I'll post if I manage to get in to see the dermatologist.

Share this post


Link to post
Share on other sites

I guess I'm no help either, but was curious as well. I have such horrible scarring all over my body. I am thankful though, that my face was spared. Maybe someone on here has some good advice. I'll be watching this thread.

Sorry, Sharon. . .I'm mostly here to sympathise. I'm not on Dapsone either, and I still have scars (and a few scabs. . .the really, really, really bad ones) six years later - the good news is they're no longer livid purple, more a pale pink but visible as I have REALLY fair skin.

Don't be too down though, there is hope: I met a naturopathic physican a couple of months ago (this is NOT the same as a naturopath. . .don't be fooled. . .they have to be an MD as WELL. . .licensed to prescribe traditional pharma medications as well as proven herbal remedies) who has suggested a clinic in London (UK) where there is a naturopathic dermatologist who specialises in DH. . .she did wonders for a friend of a friend, but it is tricky to get an appointment, so I've not tried it yet. I think the only NMD group in the States is in Seattle. . .sorry I don't have the name, but I'll post if I manage to get in to see the dermatologist.

Share this post


Link to post
Share on other sites
I met a naturopathic physican a couple of months ago (this is NOT the same as a naturopath. . .don't be fooled. . .they have to be an MD as WELL. . .licensed to prescribe traditional pharma medications as well as proven herbal remedies)

I didn't realize there was a difference. Thank you for posting this.

Share this post


Link to post
Share on other sites

i don't know about dh specifically, but i have seen a huge difference in people with scarring using a specific oil and cream. It is from a company called Lame Advertisement, which is a botanical health and wellness company. Their products are great! Don't mean to sound like an ad, but I've seen significant improvement in my own scars, and have heard from other people the same. Here's a link to the two products - a skin conditioning oil and a rejuvenating cream:

https://www.Lame Advertisement.com/shop_online/showCat...sp?category=145

Share this post


Link to post
Share on other sites

I don't know if it will help, but Aquaphor is an amazing product. You can get it at most any pharmacy (some have it behind the counter even though it is an over-the-counter product). It is the consistency of petroleum jelly but very different in results. It was originally developed for burn victims to maintain moisture during healing of scar tissue. My dr recommended it for a contact dematitis that my daughter had (it cleared up mostly overnight) and we use it liberally for sunburn-it will cool it literally in a matter of hours.

Also, I don't know if external scar tissue is the same as internal but I do know that for the scar tissue inside my knee to heal properly and not continue to grow out of control and get hard in needs to be deeply (and painfully) massaged to promote healing.

Good luck! Cathy

Share this post


Link to post
Share on other sites

Thanks everyone I have had celiac for the past nine years and had only a few spots that cMe and went over the years. I’m also a diabetic on insulin developed at the same time as my celiac.  The doctor changed my insulin in February and it failed after about 6 weeks,which I did not notice it failed. In return I got this crazy rash. I believe dh but my doctors don’t know what it is, so itchy and lovely purple scars. They gave me Blexen with is like Benadryl just took the itch out and a hydroquartion cream mixed with a moisturizer.  So the rash has not flared up now for three weeks, I’m on month 5 but still have all the scars. We can’t buy dapson in canada but I was thinking of asking the Shriners hospitals what they use on the kids that have serve burns maybe they will have an answer.

goodluck everyone if anything works please let me know

Roz d

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


×
×
  • Create New...