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Any Cream Or Lotion Help Heal Dh Scars?

Sharon C.

By Sharon C.
in Dermatitis Herpetiformis

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Sharon C. Explorer
Sharon C.
Posted

Although my dermatologist reached inconclusive skin biopsy results, I strongly believe I have DH. Where these spots begin to heal and eventually go away, I have dark purplish scars. Is there anything at all that can help them fade or go away faster? I am using pure coco butter. BEfore I came to the DH conclusion, I used pure Vitamin E oil (from wheat germ) and the rash seemed to get aggrivated. Also, when I have an allerigic reaction to other foods, because I think I'e developed leaky gut since I am allergic to just about everything and that's been verified by skin prick tests, the DH rash seems to react, too. Is that normal?

Gluten free one month now- not on Dapsone, and self diagnosed by circumstantial evidence.

Thanks.

Also, my Cetafil lotion doesn't seem to help, and I often wonder if it's aggrivating the rash.

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Sophiekins Rookie
Sophiekins
Posted

Sorry, Sharon. . .I'm mostly here to sympathise. I'm not on Dapsone either, and I still have scars (and a few scabs. . .the really, really, really bad ones) six years later - the good news is they're no longer livid purple, more a pale pink but visible as I have REALLY fair skin.

Don't be too down though, there is hope: I met a naturopathic physican a couple of months ago (this is NOT the same as a naturopath. . .don't be fooled. . .they have to be an MD as WELL. . .licensed to prescribe traditional pharma medications as well as proven herbal remedies) who has suggested a clinic in London (UK) where there is a naturopathic dermatologist who specialises in DH. . .she did wonders for a friend of a friend, but it is tricky to get an appointment, so I've not tried it yet. I think the only NMD group in the States is in Seattle. . .sorry I don't have the name, but I'll post if I manage to get in to see the dermatologist.

SarahTorg Apprentice
SarahTorg
Posted

I guess I'm no help either, but was curious as well. I have such horrible scarring all over my body. I am thankful though, that my face was spared. Maybe someone on here has some good advice. I'll be watching this thread.

Sorry, Sharon. . .I'm mostly here to sympathise. I'm not on Dapsone either, and I still have scars (and a few scabs. . .the really, really, really bad ones) six years later - the good news is they're no longer livid purple, more a pale pink but visible as I have REALLY fair skin.

Don't be too down though, there is hope: I met a naturopathic physican a couple of months ago (this is NOT the same as a naturopath. . .don't be fooled. . .they have to be an MD as WELL. . .licensed to prescribe traditional pharma medications as well as proven herbal remedies) who has suggested a clinic in London (UK) where there is a naturopathic dermatologist who specialises in DH. . .she did wonders for a friend of a friend, but it is tricky to get an appointment, so I've not tried it yet. I think the only NMD group in the States is in Seattle. . .sorry I don't have the name, but I'll post if I manage to get in to see the dermatologist.

Felidae Enthusiast
Felidae
Posted
I met a naturopathic physican a couple of months ago (this is NOT the same as a naturopath. . .don't be fooled. . .they have to be an MD as WELL. . .licensed to prescribe traditional pharma medications as well as proven herbal remedies)

I didn't realize there was a difference. Thank you for posting this.

Sweetfudge Community Regular
Sweetfudge
Posted

i don't know about dh specifically, but i have seen a huge difference in people with scarring using a specific oil and cream. It is from a company called Lame Advertisement, which is a botanical health and wellness company. Their products are great! Don't mean to sound like an ad, but I've seen significant improvement in my own scars, and have heard from other people the same. Here's a link to the two products - a skin conditioning oil and a rejuvenating cream:

https://www.Lame Advertisement.com/shop_online/showCat...sp?category=145

clbevilacqua Explorer
clbevilacqua
Posted

I don't know if it will help, but Aquaphor is an amazing product. You can get it at most any pharmacy (some have it behind the counter even though it is an over-the-counter product). It is the consistency of petroleum jelly but very different in results. It was originally developed for burn victims to maintain moisture during healing of scar tissue. My dr recommended it for a contact dematitis that my daughter had (it cleared up mostly overnight) and we use it liberally for sunburn-it will cool it literally in a matter of hours.

Also, I don't know if external scar tissue is the same as internal but I do know that for the scar tissue inside my knee to heal properly and not continue to grow out of control and get hard in needs to be deeply (and painfully) massaged to promote healing.

Good luck! Cathy

  • 12 years later...
Roz D Newbie
Roz D
Posted

Thanks everyone I have had celiac for the past nine years and had only a few spots that cMe and went over the years. I’m also a diabetic on insulin developed at the same time as my celiac.  The doctor changed my insulin in February and it failed after about 6 weeks,which I did not notice it failed. In return I got this crazy rash. I believe dh but my doctors don’t know what it is, so itchy and lovely purple scars. They gave me Blexen with is like Benadryl just took the itch out and a hydroquartion cream mixed with a moisturizer.  So the rash has not flared up now for three weeks, I’m on month 5 but still have all the scars. We can’t buy dapson in canada but I was thinking of asking the Shriners hospitals what they use on the kids that have serve burns maybe they will have an answer.

goodluck everyone if anything works please let me know

Roz d

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