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JerryK

Just Ordered A Gene Test

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I just ordered Enterolab's gene panel for Celiac. Inquiring minds need to know! What'll be interesting is..if it comes out that I don't have the Celiac gene markers...then what? Just non-genetic gluten intolerance? The way I understand it is a negative test indicates that Celiac Disease cannot develop in that individual...

I look forward to additional knowledge:) jerry


Dental Enamel Defects

Gastro symptoms

Positive Dietary Response

Enterolab Antigliadin IgA positive 12/06

Transglutaminase IgA Positive

Blood TG IgA Negative 2/07

HLA-DQ 3,1 (Subtype 7,5)

Gluten Intolerant...Likely non Celiac

Western Oregon (Or-ee-gun) US

Why Worry?...YOU are a sentient being on a habitable world in a cosmos largely filled with nothing.

You

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Jerry:

Please correct me if I am wrong, but have you not felt better eliminating gluten from your life. I know that you have added it into your diet to test. I know that everyone needs to do what they feel comfortable with. If you feel you need the written word, then go for the testing. It is all a personal choice

If you do test and it is negative, you still know that you feel better gluten free. Sooo, that's up for you to decide.

I was different. I was in the bathroom for two months and could not leave the house, much less the room. I was tested by a gastro dr. I had scalloped walls, flat villi, gastritis and a large hiatal hernia.

They told me I had Celiac, and I asked what in the world is that. And the door slammed on my you know what. Hence, my arrival here.


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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My full panel test is coming on Friday from Enterol labs...let's hope we kind some answers.

judy in Philly


Judy in Southern CA

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I keep wondering if I should do the same. How long does it take to get them? How long for the results? Do they take credit cards?


Dx'd with lymphocytic colitis 1/07

Dx'd by Enterolab 3/07--+IgA, +Ttg, DQ2 and DQ8

Dx'd celiac by Dr. Lewey 4/07--without +blood or biopsy

gluten-free 3/7/07

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HI

I tried to log into sight on a Thursday nite last week

Chickened out when it came to 'hitting send key'

Mmost of my infor was there.

I must link anyway to their site b/c called and placed my order on Fri late in Texas.

Since my info was there already, she took my card over the phone.

You can do it all on line.

There are many options you can pick to test.

My tests should arrive this Thurs or Fri..so that's fast and maybe 2 week turn around they said to get results.

There is a nurse on staff to go over the results if you want to call and talk to them.

This woman i talked to Cathy was really nice and very knowledgeable.

I hope this link will work for you

https://www.enterolab.com/StaticPages/Frame_TestInfo.htm#stool_gene_complete


Judy in Southern CA

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I just ordered Enterolab's gene panel for Celiac. Inquiring minds need to know! What'll be interesting is..if it comes out that I don't have the Celiac gene markers...then what? Just non-genetic gluten intolerance? The way I understand it is a negative test indicates that Celiac Disease cannot develop in that individual...

I look forward to additional knowledge:) jerry

About 90% of the people with celiac disease have DQ2. Another 8% have DQ8. That leaves 1 - 2% who have celiac who don't have either one of those. So it is possible you could still have celiac disease.


Karen

gluten free 4/06

casein free 7/06

DQ1, DQ8

Daughter (11) gluten free 5/06, casein free 6/06

Daughter (9) gluten free 3/06, casein free 7/06, soy free, trying peanut free

vegetarian

gluten lite on and off since 1999

All dx'ed by Enterolab

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About 90% of the people with celiac disease have DQ2. Another 8% have DQ8. That leaves 1 - 2% who have celiac who don't have either one of those. So it is possible you could still have celiac disease.

So given this fact, why should I do this test I just ordered?

There still would be no proof :ph34r::blink: right???

I know that I'll never eat gluten again reguardless of what the tests says as it makes me sick..but wanted for my son and also if not celiac ..still could be gluten intollerance which they're to test for.

Oh this gets so confusing..

sigh! Judy


Judy in Southern CA

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The consensus of those "in the know" is that mere gluten sensitivity is NOT to be dismissed or taken lightly. Many doctors feel the syndrome should ALL be designated as gluten sensitivity, with celiac disease merely being a small subset of this. Gluten sensitivity can cause all the same symptoms/discomfort/sickness etc., and it can even cause intestinal damage. Without a specifically identified celiac gene you wouldn't likely get celiac disease....I say "likely" because there are still people who have gotten it without the known celiac genes....apparently there are still some unidentified celiac genes, but the % is tiny.

Gluten sensitivity that is ignored can still cause tissue and organ damage, and potentially lead to certain cancers. You don't ignore it, and the advice seems to be whether you have celiac disease or are gluten sensitive, you DON'T EAT GLUTEN!!! NOT EVER!


CAROLE

-------------

Enterolab 1/2006

IgA & tTg Positive

DQ2-0201 (celiac) and DQ1-0604 (gluten)

Casein IgA positive

Mom has 2 celiac genes

Both kids have a celiac gene.

Lots of celiac disease in my family, both sides.

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Jerry:

Please correct me if I am wrong, but have you not felt better eliminating gluten from your life. I know that you have added it into your diet to test. I know that everyone needs to do what they feel comfortable with. If you feel you need the written word, then go for the testing. It is all a personal choice

If you do test and it is negative, you still know that you feel better gluten free. Sooo, that's up for you to decide.

Absolutely the results of this test will not make me deviate from my plan to go gluten free. I have a doctors appointment in 1 week...after I have a blood test, I do not plan to eat gluten again.

I'm looking at the gene test as another piece of data that I can take to family members and urge them to be on the lookout for Celiac type symptoms. It's just more data. The symptoms I feel are enough to convince me.


Dental Enamel Defects

Gastro symptoms

Positive Dietary Response

Enterolab Antigliadin IgA positive 12/06

Transglutaminase IgA Positive

Blood TG IgA Negative 2/07

HLA-DQ 3,1 (Subtype 7,5)

Gluten Intolerant...Likely non Celiac

Western Oregon (Or-ee-gun) US

Why Worry?...YOU are a sentient being on a habitable world in a cosmos largely filled with nothing.

You

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I just ordered the full panel from Enterolab. It took about a week and a half for the results but they said to give them 3 weeks. They do take credit cards.

I got the gene test, and found out I carry 2 genes for gluten sensitivity, meaning that both of my children have at least one gene, and that both my parents carry them. I am so glad I got the gene test, for my children and my family.

My brother is going to get himself tested, and his 3 sons, one of which has unexplained seizures. So, who knows? I am glad that they took it so seriously. My other brother, not so much, but at least I gave them the information, and they can decide what to do with their health.

And, Dr. Fine himself said that a positive response from going gluten free should be evidence enough, but I have to admit, it's great to see something in black and white, and KNOW.


Gluten free since Sept. 2006

Improved on gluten free diet

Enterolab results confirmed suspicions on Jan. 29th 2007

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'264569']

....I say "likely" because there are still people who have gotten it without the known celiac genes....apparently there are still some unidentified celiac genes, but the % is tiny.

Gluten sensitivity that is ignored can still cause tissue and organ damage, and potentially lead to certain cancers. You don't ignore it, and the advice seems to be whether you have celiac disease or are gluten sensitive, you DON'T EAT GLUTEN!!! NOT EVER!

oK NOW THIS MAKES TOTAL SENSE TO ME...

THANKS FOR THE ANSWER..

MY COMPUTERS BEEN DOWN FOR 2 DAYS..

GOT MY 'TEST KIT' BOX YESTERDAY AND NOW HAVE TO WAIT CAUSE CAN'T SENT THURS -SUN BUT THAT'S OK THEY SAID TO SAVE WHAT I GOT TODAY DIDN'T HAVE TIME TO READ ALL DIRECTIONS WHICH ISN'T LIKE ME BUT ALOT GOING ON TODAY..

SO AGREE WITH WHAT YOU SAID HERE---

Gluten sensitivity that is ignored can still cause tissue and organ damage, and potentially lead to certain cancers. You don't ignore it, and the advice seems to be whether you have celiac disease or are gluten sensitive, you DON'T EAT GLUTEN!!! NOT EVER!


Judy in Southern CA

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