Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fda To Mandate


GlutenFreeGuy

Recommended Posts

GlutenFreeGuy Newbie

As you may (or may not) know just because something says “Gluten-Free” doesn


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

There has been some discussion about this.

Tiffany (tarnalberry) said it best here: Open Original Shared Link

As long as there is a rule, there will be a threshold based upon testing capability. A negative can not be proven; there is no test that accurate.

blueeyedmanda Community Regular

I was all for the gluten free labeling and then I read something that made me open my eyes. It was on the Wegmans site and I am going to copy the link and paste it below. This is a letter they sent the FDA concerning the new gluten free labeling. It really made me think. What about you guys?

Open Original Shared Link

I am one of their customers who is very grateful for the "G" on my products. I know a lot of people who live in other parts of the US and our friends who live outside of the US do not shop here but they are very good with celiac and have gotten awards from the Celiac foundation. I feel the letter really opened me to things that maybe I was unclear of about the new labeling. Well let me know what you think.

psawyer Proficient

Amanda, thank you for that link. Wegman's raise some very valid concerns.

I used to shop at Wegman's from time to time, when my family owned a vacation home in the finger lakes region of New York. I always liked their stores and customer-oriented attitude. I haven't been there in a couple of years, though.

Like the Canadian rules, this is not about defining gluten-free. It is about not allowing labels that say gluten-free on certain products that are inherently gluten-free and processed in a manner to ensure that they are so. In Canada, eggs (for example) may not be labelled as gluten-free. Go figure.

blueeyedmanda Community Regular

Peter,

It really opened my eyes and it got me to thinking. I am not sure if you had been in there store when they had the gluten free labels on their products yet, but it is such a help. I currently travel to shop there, but in Sept our store is opening. I have always had great service when I went into that store, and I have been in a few different locations. I buy a lot of their brand now due to that labeling and I have not yet been disappointed by the quality or by getting sick.

They are good with CC too, one day a woman was giving samples of salad and the sample was for their new dressing. Well the salad had croutons already added into it. I passed and explained. She said to me, let me make you your own bowl without the croutons, picking them out is not safe. They have contaiminated the lettuce. I about fell over, someone actually understood.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,423
    • Most Online (within 30 mins)
      7,748

    Maureen Jarchow
    Newest Member
    Maureen Jarchow
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.9k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Liquid lunch
      Thanks kitty, I needed reminding about thiamine. I ran out of magnesium so stopped taking it and that was ages ago, it definitely helps with my energy levels and general function. I just took some now and I’ll get some more magnesium. Although I don’t really understand the gundry list it does seem to correlate with foods I can/cannot eat, lectins are not all made equal and it seems to be personal which we react to but some are generally more problematic than others, I think he’s based the list on avoiding lectins that people are often reacting to on an igg test. I think it’s fructose I’m reacting to in fruit rather than histamine because I’m fine with coffee, not sure of the quantity of tannins but for me green tea is worse than black and coffee is fine. Interesting about wet beriberi as I nearly died from pneumonia when young so I wonder if it was related. I react differently to the different foods, lectins cause bloating bleeding and severe pain, sugar I feel wiped out but don’t get the bleeding, tea it’s just nausea. I’ve wondered about lectins being sugar binding proteins and my intolerance of sugars but the bleeding does seem to be a specific response to lectin consumption which I think is an autoimmune response because it improves when I take immune modulating mushrooms (reishi and cordyceps). I really do appreciate you being here to help whenever  I log in, than you 🙏
    • glucel
      hey knitty, thanks for the follow up. I did buy the benfotiamine before I saw a couple of the side effects that concerned me esp bracardia. I already have irregular heart beat and have had elevated liver enzymes before. I lowered the count by taking milk thistle in case anyone interested. I realize that many side effects are simply for legal protection but at my age and as a recovering heart patient can not take risk. Anyway, been strictly gluten-free since we last talked. I did add 200 mg of vit b1 in addition to the b complex. Not as much b1 as you suggested because of my conservative nature but at least an attempt. I still have substantial bloating which unfortunately is probably not caused by gluten, as I was hoping that gluten-free would clear it up a bit.  I wish that I could report a major benefit from going gluten-free but I can't. But I never got desperately ill as many have reported here and my poor brother who was completely overcome til diagnosed.  Take care  
    • knitty kitty
      Since lectins occur in almost everything, it's pretty unrealistic to avoid them all.  I didn't understand the rationale behind Dr. Gundry's lists either. Many fruits either contain high histamine amounts or are histamine releasers.  Histamine is made by our body, but we can also consume it in foods, because plants and animals make histamine, too.  Histamine is a neurotransmitter, that results in alertness.  That cup of coffee in the morning?  Releases histamine, so we wake up more.  But histamine is released as part of the immune response in Celiac and other illnesses, causing inflammation.   Our body can clear histamine, but if the body can't keep up with the histamine we are making ourselves as well as the histamine we're eating, we can have serious problems, digestive problems, insomnia, depression.  Some fruits can have high levels of fructose, one kind of sugar in fruits.  Some intestinal bacteria can ferment fructose, resulting in gas, bloating, diarrhea.  So, yes, Fructose Malabsorption can occur in Celiac.   Your dont list...Honey, maple syrup, lectins (and their attached carbohydrates), sugar... ....bedridden...These are all carbohydrates, sugars.  We need Thiamine to turn carbohydrates into energy.  Without sufficient thiamine, we can develop Gastrointestinal BeriBeri which has the classic digestive symptoms, nausea, diarrhea, abdominal pain. Tannins in tea and coffee cleave thiamine in two, making it nonfunctional.   Your do list...hazelnuts, pistachios, pressure cooked potatoes, and yogurt, butter, cheese.... These are foods that contain thiamine.  Pressure cooked mashed potatoes have more thiamine than boiled potatoes.  Those nuts are high in thiamine.  Dairy products are a good source of thiamine.   I can't diagnose, I'm not a doctor.  You read these articles and let me know if anything rings a bell with you.  Yes, I see thiamine deficiency everywhere because it is unrecognized by doctors.  I recognize it because I had it. Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ Thiamine deficiency disorders: a clinical perspective https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/ Refeeding Syndrome https://www.ncbi.nlm.nih.gov/books/NBK564513/ Refeeding Syndrome (a different article...) https://pubmed.ncbi.nlm.nih.gov/33232094/
    • knitty kitty
      The AIP diet restricts carbohydrates for the first few weeks.  Excluding carbohydrates changes your microbiome.  The bacteria that live in the intestines that feed on carbs get starved out when you don't eat carbs.  Small Intestinal Bacterial Overgrowth (SIBO) occurs frequently in Celiac Disease.  SIBO can cause gas, bloating, and diarrhea, symptoms similar to Celiac symptoms.   When the digestive system is feeling better, then additional foods are added back slowly to look for reactions.  I did not consume carbs for a several months because I felt better without them.  Currently, a "Modified AIP diet" has allowed rice, but doing this won't starve out the SIBO that occurs in celiac disease. I took vitamins and minerals throughout the day and felt great improvement because those essential nutrients were finally being absorbed. Thanks for letting me share what made my celiac journey better.
    • knitty kitty
      Hello there!  Just wondering how things are going for you.  Did you try the Benfotiamine?  I'm always curious how others fare after taking thiamine.  Hope you can post an update. Hope you're doing well!  
×
×
  • Create New...