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I have been having a terrible time eating almost everything. I went a whole day of not eating anything and was weak but felt ok. Yesterday I ate a baked potato now I am back to being in lots of pain and feeling sick stuck laying on the couch. I was reading about iorn poisoning do you think that is what it could be? It hurts on my right side and my upper top of my stomach. I have a new doctor and will be getting Another endoscopy done to confirm I have celiac and will get to eat 4 pieces of REAL bread the day before. I am sooooooooooooooooo excited about being able to eat some real food even if its only short lived. For me being on a gluten-free diet since March I am still having pain everyday and suffering non stop. I don't get it!!


Bobbie,

tested positive for celiac 2007

Gall bladder removed 2007

D/C a month after daughter was born 2005

Low Blood Pressure

Fainting disorder

food allergy to Dairy, pork,fish,most peanut butter,nutra sweet,aspartam and more to be determined.

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Eating 4 slices of bread the day before an endoscopy may not be enough for sufficient challenge test! I was told I had to eat LOTS of wheat/gluten products everyday for at least 3 weeks prior to testing! I did not want to do that because I have had 100% success with Gluten Free diet and no other allergies/food reactions and my symptoms were gone completely.

BUT, I do know that intestinal damage does not occur overnight after just one ingestion of gluten - it's a progressive thing, even if pretty fast - but not that fast (so my Dr says)!

As for the pain with eating anything at all, it sounds more like a stomach ailment unrelated to celiac or allergy. I would consult an Internal Medicine specialist, in addition to Gastro. Have you had Upper GI series? Lower GI series, Sonogram, Xrays, etc as well?

GOOD LUCK!!! Hope you find out what it is - sounds like what I had when I had gallstones - but you've been there done that already!

Franceen


Franceen

Diagnosed DH by Allergist via gluten-free Diet Success

Gluten-free since Dec 2005

Gluten-free works so why keep getting tests?

Neg skin biopsy & Neg bloodwork after gluten-free for 3 months

No Endoscopy - need to eat gluten for good test & won't do it

No other Allergies or major ailments!

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Good grief, your doctor is pretty clueless! If you've been diagnosed with celiac disease, what the heck is the point of re-checking if you really have it?

And in fact, if you want to get a positive biopsy (there is no point, though), you'd have to eat about four slices a day for three to six months (not three weeks) to even have a remote chance of getting a positive biopsy.

If you would do that, you would totally destroy your villi again and risk getting extremely ill. As well as possibly having permanent damage.

About the potato: I can't tolerate potatoes, they might (not always do) give me pretty much the same symptoms as eating gluten. You might have the same problem.

You need to do an elimination diet to figure out other intolerances. I see you have eliminated dairy. What about soy? Those are the first ones to cut out to see if it makes a difference.


I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma

------------------------------------------------------------------------------------------------------------------

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Good grief, your doctor is pretty clueless! If you've been diagnosed with celiac disease, what the heck is the point of re-checking if you really have it?

And in fact, if you want to get a positive biopsy (there is no point, though), you'd have to eat about four slices a day for three to six months (not three weeks) to even have a remote chance of getting a positive biopsy.

If you would do that, you would totally destroy your villi again and risk getting extremely ill. As well as possibly having permanent damage.

About the potato: I can't tolerate potatoes, they might (not always do) give me pretty much the same symptoms as eating gluten. You might have the same problem.

You need to do an elimination diet to figure out other intolerances. I see you have eliminated dairy. What about soy? Those are the first ones to cut out to see if it makes a difference.

This is a new doctor I am seeing he doesn't trust the one I had before which is why I am having the endo done Again. He said that for testing for celiac it came back at a 9 whatever that means and he is not sure if I have celiac he thinks it is something else. I have no soy in my diet either. My day consest of cocoa pebbles or cream of rice for the morning. Lunch is rice noddles with maybe a slice or 2 of Carl Budding turkey. Dinner is a bake potato,a veggie and sometimes some meat thats all I eat and to still have problems I don't understand. I suffer Everyday. I am on some meds and have even taken them out because I was wondering if that was my problem. I made sure they were All gluten-free. I was just in the hospital for pain this week it is not getting any better or letting up. I am so lost. I am about too just eat what I want since either way I am not getting any kind of relief. I am scared out of my mind what to do.


Bobbie,

tested positive for celiac 2007

Gall bladder removed 2007

D/C a month after daughter was born 2005

Low Blood Pressure

Fainting disorder

food allergy to Dairy, pork,fish,most peanut butter,nutra sweet,aspartam and more to be determined.

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Since you were just in the hospital for this, did they not do the Upper G.I.'s, lower G.I. x-rays ?? I would see a good gastroenterologist if you haven't already.

And don't worry til you know you have something to worry about. Anxiety makes EVERYTHING worse.

:)


CeeCee

Allergic to: wheat, peanuts and Penicillin

1995 severe anaphylactic reaction to Wheat

Gluten free since Sept. 2006

"Failure is only the opportunity to begin again, more intelligently"--- Henry Ford

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If you've been gluten-free for a while, eating four pieces of bread the day before a scope isn't going to get you a positive result. I've read different thoughts on how much gluten you have to eat to get a positive test, but most say 4 servings a day for at least 3-6 months to even hope to get a positive. Since you've been gluten-free for nine months, I'd guess that your villi are mostly healed and would take a long time of eating gluten to show the kind of villi damage you'd see in a scope. Do you feel at all better? I see no reason to do this just for your doctor's curiosity.


Gluten-Free since September 15, 2005.

Peanut-Free since July 2006.

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If you've been gluten-free for a while, eating four pieces of bread the day before a scope isn't going to get you a positive result. I've read different thoughts on how much gluten you have to eat to get a positive test, but most say 4 servings a day for at least 3-6 months to even hope to get a positive. Since you've been gluten-free for nine months, I'd guess that your villi are mostly healed and would take a long time of eating gluten to show the kind of villi damage you'd see in a scope. Do you feel at all better? I see no reason to do this just for your doctor's curiosity.

I am thinking about just eating what I want I only have one life and it is not going very well right now. I am so depressed and so unhappy. the doctors are so clueless and just seem to make me feel worse. For being gluten-free 9 months I should feel some kind of change by now.


Bobbie,

tested positive for celiac 2007

Gall bladder removed 2007

D/C a month after daughter was born 2005

Low Blood Pressure

Fainting disorder

food allergy to Dairy, pork,fish,most peanut butter,nutra sweet,aspartam and more to be determined.

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