Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

chlobo

Confused About Testing: Blood Vs. Stool

Rate this topic

Recommended Posts

My daughter (4 yrs old) has had weird digestive issues for a while now. So through her chiropractor I had a GI function test done (via metametrix). It showed gluten sensitivity. So we had a second test done through enterolab, which also showed gluten sensitivity as well as dairy sensitivity.

I asked her pediatrician about the test and he said "he saw no value in it" but would be happy to do a blood test. We went for the test and they screwed up and did not get enough blood for the test and I was told we'd have to go back. The test was sooooo traumatic I'm not anxious to do that.

Then, since she had a gene, we decided to have my husband tested. He has similar issues to my daughter. His results, also done through enterolab, also showed gluten & dairy sensitivity. He has two celiac genes. He just sent the results to his primary care doc who said "Gluten sensativity cannot be detected by stool tests, although many uncertified labs claim to do so. It causes GI and neurologic manifestations. Food allergies in adults rarely cause rashes, and when they do, it is not something that's limited to the hands."

Is the stool test really reliable? If it is, why do allopathic doctors just dismiss it and its results? Does everyone test sensitive on the stool test?

Confused about this and I know my DH is looking for a way out of the diet.

Share this post


Link to post
Share on other sites

Your husband's primary care doc is wrong. By the time celiac disease testing of the blood is positive, the villi are usually destroyed and have caused leaky gut, which is why the antibodies are in the blood. Since the damage is in the intestines, it makes perfect sense that the antibodies would be detected in stool long before they can be detected in blood.

Those doctors who claim that Enterolab has no value are just ignorant of their methods. Plus, most doctors will dismiss everything they haven't learned in medical stool as quackery, even though a lot they've learned in med school really IS quackery!

Your hubby's doc doesn't even know that celiac disease is not an allergy! He appears to be quite ignorant of celiac disease. And yes, in fact, from what I have seen and heard, ALL rashes, eczema, dermatitis ARE caused by food intolerances.

My oldest daughter has five children. The three oldest used to have terrible eczema. The oldest so bad that she was covered in it from head to toe, looking (and feeling) like she was covered in scales. It was dreadful.

When at the age of two she tested positive (by a naturopathic doctor) to a dairy intolerance and was taken off dairy, she had gorgeous, clear skin within weeks. Her siblings (who had other intolerances, two of them to nightshade vegetables) had equally dramatic results.

Now that they are all gluten-free, none of them have any more rashes of any kind at all. The same goes for my second oldest daughter's two little ones. Both of them had rashes, which cleared up completely on a gluten-free, dairy free diet.

I had psoriasis before eliminating gluten. It is gone now. My youngest daughter had eczema, it cleared up on a gluten-free, dairy free diet.

And actually, when I get glutened, I will get little watery blisters ONLY on my hands. They are itchy and hurt, and might be DH (even though the ignorant dermatologist I went to claimed it couldn't be).

Anyway, just ignore the ignorant doctors and keep going with the gluten-free diet, you are doing the right thing.

Share this post


Link to post
Share on other sites

The doctors do not take Enterolab results seriously because the founder Dr. Fine has never published his results and I highly doubt that other scientists or doctors have tested the accuracy of his testing methods. This means that his claims are unproven. He has not taken steps to prove the accuracy of his tests to the medical community, as publishing a paper is one of the first steps.

Many people do believe Enterolab is great and provides accurate results, but this has never been proven. If your daughter is still on gluten I would redo her blood work. I know it's a horrible experience, but if you want her diagnosis to be taken seriously by doctors it is a necessary step. I would give her a week or so to recuperate and try again. I understand her pain. My son completely freaks out when his blood is drawn and it is hard on us as parents, however if she is diagnosed with celiac disease then periodic blood work will be a routine part of her life.

Share this post


Link to post
Share on other sites

Thanks for the info.

She's been "off" gluten & dairy for several weeks. I put quotes because we haven't been diligent about cross contamination & because we seem to have missed a few things (such as dairy in imitation crab meat). So she hasn't been entirely gluten free. Would this be good enough for theh blood test? Or would we need to let her eat gluten for a while to get a truly accurate result?

Also, what benefit is the blood test? If she tests negative it won't change the fact that we need to be gluten free will it?

Share this post


Link to post
Share on other sites

I just wanted to add here that my oldest dd's gastroenterologist supports the Enterolab results. He did do bloodwork on her which came back negative, but he said that was probably because she was doing well staying gluten free. He also did a gastroscopy (he was taking biopsies for celiac and for eosinophilic esophagitis - if it had just been for celiac we wouldn't have had the scope done). We haven't had our follow-up appointment yet, but after looking at her upper small intestine he basically said he would diagnose her celiac no matter how the biopsy came back. He said only 1-2% of celiacs show up positive in the biopsy.

My pediatrician also has upheld the Enterolab results. Part of that may be because of all the information he has received about my oldest dd from the gastroenterologist. When my pediatrician saw the Enterolab results of my 2 yr old, he commented that he was celiac. When I said the 2 yo hasn't been "officially" diagnosed celiac, he said that was what the results meant. I will be seeing the 2 yo's pediatric gastroenterologist soon and we will see where he goes with it (different GI than my oldest dd's.)

Anyway - some doctors DO accept Enterolab. My doctors are not naturopaths/holistic/etc. My dd's gastroenterologist does seem to stay on top of all the latest information though. He talked extensively about all the myths about celiac disease and how much things have changed in the last few years.

I would suggest that your dh find a gastroenterologist. I would not expect the average primary care doctor to be on top of all the latest info in the specialty of GI. I would check to see if you have a local celiac support group and get recommendations from them (I did an internet search.)

Good luck,

Cathy

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • March 20, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
  • Member Statistics

    • Total Members
      86,777
    • Most Online
      4,125

    Newest Member
    Sdceliac
    Joined
  • Forum Statistics

    • Total Topics
      112,052
    • Total Posts
      956,601
  • Who's Online (See full list)

  • Forum Discussions

    I am celiac and eat gluten-free, DF, SF and sunflower free because I'm highly reactive to all 4. I discovered about a year and a half ago that I would have severe and immediate GI reactions, similar to as if I ate dairy, to anything with sunflower/safflower products in it, but I think that's when using the oil became more prevalent too. Strange because I loved sunflower seeds as a kid. I've also linked it to places I've eaten out where everything was fine and then discovered they started using s
    So i recently had a baby and 3 months postpartum I started celery juicing and after juicing my stomach would be in so much pain. So I stopped it for a while and a whole month no pain or issues. I made an apt with a GI doctor to just get my blood work checked everything came back great except the Ema it was 1:20 he said it was strange because all the other Celiac panel test were negative my Ttg and the genetic screening even. So I made an apt with another doctor for second opinion she stated that
Potatoes are good for breakfast! Your concoction sounds pretty good. K, how about this? Peel & dice potatoes, fry them in just enough olive oil to keep them from sticking in a skillet until they begin getting crispy. Toss in diced sweet peppers or maybe chili peppers, onions to soften. I know you're not doing egg yolks b/c of iodine but you can do the whites. Pour egg white on top until the white is done. If you have a steak or some leftover steak, you can heat that on the side. YUM!
  • Blog Entries

  • ×
    ×
    • Create New...