Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

-blood Results And + Biopsy

akcandle

Recommended Posts

akcandle Newbie
akcandle
Posted

I have had a chance to read a lot of your posts and feel like I have more information on the subject.

I just got back from yet another gastro appt. I won't even mention my doc's reaction when I started quoting from the Enterolab web site..... :rolleyes:

He did agree to put me back on for the upper endo for a biopsy and did admit that he has had patients in the past test negative on the blood path and then positive on the intestinal biopsy. My question is for all of you, how many of you have had the same, negative blood and positive biopsy?

Im just trying to decide if I really want the biopsy or give myself a rest period and just go gluten-free and see if I feel better?

Thanks for listening

Carla

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tom Contributor
tom
Posted

I always vote to go gluten-free. Feeling better and better every day is hard to beat.

The endoscopy looks for villi damage and the info i read when i 1st went gluten-free last year said it's 6 mo - 2 yrs for them to fully heal. Don't make yourself sick for a scope that can see damaged villi w/out making yourself sick.

darlindeb25 Collaborator
darlindeb25
Posted

Carla--What if the biopsy comes back negative--then what? Many times a biopsy will come back negative--you can be gluten intolerant and not have severe damage as of yet and what if the area they tests doesnt show damage yet, but there is damage in an untouched area---myself, I dont need a biopsy to know i must be gluten-free--its a personnel choice--I'm with Tom--feeling beter day after day is hard to beat ;) Deb

akcandle Newbie
akcandle
Posted
  • Author

I've thought and thought and thought about this and with my family history, my current symptoms (7 months of them)a sure fire trigger (Started immediately following the birth of my 3rd child), a recent colonoscopy that showd a healthy bowel (and a couple benign polyps they removed) I have decided to cancel the upper endo. I have been tested and tested and tested with blood tests, stool tests etc and I am just so exausted with the I don't know's. I am kinda done for a while. Im already sick so I am going to try and enjoy my last Christmas holiday eating all the crap I want and then switch to Gluten free and see if I feel better. If I do, then Ill spend the $$ and pop for the Enterolab tests. I think this is best. I just love food, as I have mentioned before (Emril is my hero) I'll just learn to cook/grill/roast/bake things that are gluten free! My new project. (sigh)

All that matter's to me at this point is to feel better. The worst is having to "lamaze breathe" to make it through the abdominal cramps while I am desperately searching for a bathroom (why is it our bowels just KNOW when we are in the car or in a public place???) several times a day.

There just comes a point to being continually poked and prodded where you finally are just "ENOUGH"

I certainly am preaching to the choir aren't I? ;):lol:

Thanks guys

Carla

Edited for horrible typo's! ;)

plantime Contributor
plantime
Posted

Yes, you are preaching to the choir, don't we sing so magnificently! :lol: Many of us have been in your position, and know exactly how you feel! Give yourself a rest and enjoy your holidays!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,075
    • Most Online (within 30 mins)
      10,442
    Nan7472
    Newest Member
    Nan7472
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
    • Aretaeus Cappadocia
      Terrible Neurological Symptoms

      By Aretaeus Cappadocia · Posted

      You have an odd story there. To me, the mechanical trigger suggests a mechanical problem and lower leg pain is a classic sciatica symptom. The fact that the clear mechanical linkage is no longer there does not take away from the fact that it was - maybe something shifted and the simple alignment is no longer there. There's also a good chance I am wrong and it's something else entirely. @Scott Adams's mention of shingles is interesting. It seems possible but unlikely to me, but who knows. However, I am writing here to reinforce the idea of getting the shingles vaccine. Ask anyone who has ever had shingles and they will bend your ear telling you how bad it is. I watched my wife go through it and it scared the bejeebers out of me. Even if you had the chicken pox vaccine, you really want to get the shingles vaccine.
    • HectorConvector
      Terrible Neurological Symptoms

      By HectorConvector · Posted

      Oddly this effect has gone now, just happened yesterday evening, the nerve pain is now back to its usual "unpredictable" random self again - but that was the only time I ever had some mechanical trigger for it, don't know why! There's no (or wasn't) actual pain in my neck - it was inside the leg, but when I looked down, now though, the leg pain just comes and goes randomly as before again.
×
×
  • Create New...