Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Just Looking For Answers


amromkey

Recommended Posts

amromkey Newbie

This is my first post anywhere. So, please bear with me. My 16 month old is cranky all the time, does not sleep very well. I've noticed recently that she really is the happiest after she has a bowel movement, which are almost always solid.

She has a distended stomach, skinny arms and legs and her feet have not grown very much. She has no other symptoms. I had gestational diabetes during pregnancy, but celiac does not run in my family that I know of.

Am I naive to think that my baby should have runny stools or rashes to have an allergy or celiacs? She's been a screamer since birth, however, and is usually calmed by me holder her. But, she does seem in distress sometimes....

I certainly hope I am not babbling and I'm really just looking for some insights. I'm thinking I should start to remove things from her diet and move on from there.....

Thank you for any help and support that you can give me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Simply-V Newbie
Am I naive to think that my baby should have runny stools or rashes to have an allergy or celiacs? She's been a screamer since birth, however, and is usually calmed by me holder her. But, she does seem in distress sometimes....

Are you naive? Yes and no. Its possible that her solid stools are too solid and thus constipation which can be caused by food allergies and/or celiac. And yes, generally there are other problems such as rashes, fussiness, breathing problems, failure to thrive, etc that accompany allergic reactions and celiac.

Its really hard to say what the problem is from here, but it could simply be upset stomach or a personality issue with your daughter. And things like that happen from time to time.

That said, she could have a food intolerance (or even an allergy or celiac) which is causing her not to be able to digest her food properly. I would suspect Milk, Wheat, or Soy and put her on a diet avoiding those and see if there is improvement. Then add them back (one every three days) and see if you notice any problems when she eats them.

You should also keep a food journal during this time, if you're still breastfeeding then you need to keep one for you as well as her. Note any issues that occur that you notice: sleeping more or less than usual, fussiness, more or less gas than usual, stomach looks less or more distended, rashes, dark circles, wants food or doesn't want food, etc. Eventually you may start seeing patterns develop. In your food journal btw, I'd also make sure you list brand names where possible, as you may find that one brand of cereal is fine, but another brand of similar kind isn't... this will help you narrow down suspects.

Good Luck.

RiceGuy Collaborator

I think the possibility of your child being gluten intolerant is high, and the best thing I can suggest is to start the gluten-free diet immediately. It is often helpful to avoid dairy and maybe soy at the same time.

Other members will also have plenty of good advice. I hope your child feels better soon.

Welcome to the Board!

AliB Enthusiast

Hiya. At least 80% of the population is carbohydrate intolerant, whether they know it or not. Gluten is certainly one of the largest culprits, the other being sugar, with intolerances to other foods like corn, soy, dairy etc., following up the rear!

Your poor baby is obviously not a very happy bunny with her digestion. Intolerance can take all kinds of forms from diarrhea to constipation, headaches, migraines, joint and bone pains, muscular aches, and many other presentations - not always stomach related. In children, with any kind of growth limitation or malformation, one of the first suspicions should be intolerance as the damage to the digestion stops the body from being able to absorb properly and any malabsorption issue will always impact on the body in some form or other.

Things like 'growing pains' have always just been put down to a normal childhood occurrence, but there is nothing 'normal' about it. It is the body's way of telling us something is wrong. It can be down to a deficiency of essential nutrients. Digestion problems will also impact on the legs causing restless leg syndrome and pain. Your daughter is too young to describe her symptoms so you are going to have to do some detective work.

One of my grandsons has been having stomach problems and diarrhea. He is six, so has been able to describe how he feels. In a baby although it in more difficult, there are still signs we can look for. The diarrhea or constipation, colic, wind, screaming, perhaps when you hold her you are subconsciously rubbing her back or stomach which would make it easier for her.

This week my grandsons have been to stay. I have managed to keep them off most gluten and dairy (although an odd bit has crept in here and there). This morning though, back home with his Mom, he had Weetabix with milk, and lo and behold, he had the stomach ache and diarrhea. My daughter is going to see the doctor tomorrow to see if he will sign a sheet for him to have gluten-free (I suspect he is also dairy intolerant too). The reaction to the Weetabix after going mainly gluten-free all week was pretty conclusive. I suspect it would be good for the 4 YO as well as he is small for his age and has learning delay and mild autistic spectrum tendencies.

He is addicted to sweet things particularly cookies and chocolate and eats very little in the way of veg or fruit, but we are going to have to try and wean him off the carbs and sugar as much as possible and try to get him to eat more good carbs in the way of veg and fruit. Sugar has gone from being an occasional treat to an overwhelming all day, every day consumption and it is killing us. Our bodies were never designed to eat the amount of carbohydrate that we consume and we are paying the price for it.

I have been gluten-free, dairy free, low carb and sugar for a month now and am feeling a lot better for it. I am sleeping better, have more energy, my stomach has settled and my stools are now virtually restored to normal (my body has been up and down over this time but I have been clearing out the last 50 years worth of rubbish which won't happen overnight!). My blood pressure is coming down, I do not need so much insulin (I am diabetic) and I am starting to finally shake off the fatigue that has been following me around for the last 50 years. It works, believe me!

I hope you manage to work out which foods are distressing your dear baby and help her to settle. It is wonderful reading the different posts on this forum to see how amazed people are by the difference in both themselves and their children just through changing their diet.

kim26 Apprentice

Hi! And welcome!

I am pretty new here as well, but my daughter has already received a diagnosis. I can assure you that you have found a WONDERFUL site! I am slowly but steadily working through all of the information there is out there to make this diet work for our family, but i will share what little knowledge i have with you. My little girl is 7 years old, she tested positive on her blood test and negative on her biopsy, which from what i understand is quite typical in children since they may not have had time to do a large amount of intestinal damage yet. We brought her to the doctor after years of struggling with unexplained nausea, diarrhea, gas, bloating, leg pains, and an extreme and seemingly worsening case of clingy-ness, to say nothing of how "sensitive" she was emotionally to the most benign things. She too was a "screamer" as a baby, my husband and i spent MANY and most nights up with her begging her to give us a sign of how to help her. And NOTHING ever did, it was heartbreaking. Fast forward to now... we have had her on the gluten free diet for only a month and EVERYTHING has gotten so much better. The gi symptoms have been cut in half. She's already a more confident, happier, stable and MUCH less clingy child. I think many of the kids that go undiagnosed do so because the word is not completely out yet about the presentation of this disease and many others as behavioral and not just gi or "physical". Just my opinion. You could have your child tested but i doubt it would be very accurate at this age. Elimination diet, though tedious is probably the best way to go. Also, the article written by Dr. Kenneth Fine of Enterolab about early diagnosis is a GREAT one to read, you can find it on this site. Hope this helps, and feel free to "babble" anytime! lol I know i do! Besides, that's why we are all here :-) Good luck~K

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

    2. - CC90 replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

    3. - Wheatwacked replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

    4. - Wheatwacked commented on Scott Adams's article in Origins of Celiac Disease
      19

      Do Antibiotics in Babies Increase Celiac Disease Risk Later in Life? (+Video)

    5. - trents replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,187
    • Most Online (within 30 mins)
      10,442

    Dennis E. Schertz
    Newest Member
    Dennis E. Schertz
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      Hi @CC90 Ah... that is very interesting.  Although it is very annoying for you to have to go through it all again, I would say that almost sounds like an admission that they didn't look far enough last time?   I could be wrong, but I would not be at all surprised if they find something on the next attempt.  Coeliac damage can be very patchy, as I understand it, so that's why my own gastroenterologist always likes to point out that he's taken lots of samples!  In the kindest possibly way (you don't want to upset the person doing the procedure!) I'd be inclined to tell them what happened last time and to ask them in person to take samples lower down, as  if your health system is anything like the one in my country, communication between GPs, consultants and hospitals isn't always very good.  You don't want the same mistake to be made again. You say that your first endoscopy was traumatic?  May I ask, looking at your spelling of coeliac, was this done at an NHS hospital in England?  The reason for the question is that one of my NHS diagnosed friends was not automatically offered a sedative and managed without one.  Inspired by her, I tried to have an endoscopy one time, in a private setting, without one, so that I could recover quicker, but I had to request sedative in the end it was so uncomfortable.    I am sorry that you will have to go through a gluten challenge again but to make things easier, ensure you eat things containing gluten that you will miss should you have to go gluten free one day. 😂 I was told to eat 2 slices of normal wholemeal bread or the equivalent every day in the weeks before , but I also opted for Weetabix and dozens of Penguin chocolate biscuits.  (I had a very tight headache across my temple for days before the procedure, which I thought was interesting as I had that frequently growing up. - must have been a coeliac symptom!)  Anyway, I do hope you soon get the answers you are looking for and do keep us posted. Cristiana  
    • CC90
      Hi Cristiana   Yes I've had the biopsy results showing normal villi and intestinal mucosa.  The repeat endoscopy (requested by the gastro doc) would be to take samples from further into the intestine than the previous endoscopy reached.      
    • Wheatwacked
      Transglutaminase IgA is the gold-standard blood test for celiac disease. Sensitivity of over 90% and specificity of 95–99%. It rarely produces false positives.  An elevated level means your immune system is reacting to gluten.  Non-Celiac Gluten Sensitivity (NCGS) does not typically cause high levels of tTG-IgA. Unfortunately the protocols for a diagnosis of Celiac Disease are aimed at proving you don't have it, leaving you twisting in the wind. Genetic testing and improvement on a trial gluten free diet, also avoiding milk protein, will likely show improvement in short order if it is Celiac; but will that satisfy the medical system for a diagnosis? If you do end up scheduling a repeat endoscopy, be sure to eat up to 10 grams of gluten for 8 - 12 weeks.  You want  to create maximum damage. Not a medical opinion, but my vote is yes.
    • trents
      Cristiana asks a very relevant question. What looks normal to the naked eye may not look normal under the microscope.
    • cristiana
      Hello @CC90 Can I just ask a question: have you actually been told that your biopsy were normal, or just that your stomach, duodenum and small intestine looked normal? The reason I ask is that when I had my endoscopy, I was told everything looked normal.  My TTG score was completely through the roof at the time, greater than 100 which was then the cut off max. for my local lab.  Yet when my biopsy results came back, I was told I was stage 3 on the Marsh scale.  I've come across the same thing with at least one other person on this forum who was told everything looked normal, but the report was not talking about the actual biopsy samples, which had to be looked at through a microscope and came back abnormal.
×
×
  • Create New...