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munkee41182

Celiac Make You Spacy?

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I've noticed that I've been spacey (very spacey) lately....almost where at times I feel like a real idiot. I know it's not nice to say things like that about yourself....but since I just started going back on the diet....I'm kind of thinking....was me being a "space cadet" linked to going off my diet???


Jami

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Gluten can absolutely make someone who has celiac disease or intolerant spacey. We often call it brain fog. I was aware of it to some extent in myself but saw it even more clearly when I had started to get well and my head cleared up. I could see it in my sister when I was trying to encourage her to get tested. She was really incapable of making rational decisions sometimes. I rarely see her in person and could really tell the difference as she healed when I talked with her over the phone. I could tell that she was thinking more clearly. It is caused not only by the effects of gluten itself but also can stem from the nutritional deficiencies that come with a damaged intestinal tract.


Me: GLUTEN-FREE 7/06, multiple food allergies, T2 DIABETES DX 8/08, LADA-Latent Autoimmune Diabetes in Adults, Who knew food allergies could trigger an autoimmune attack on the pancreas?! 1/11 Re-DX T1 DM, pos. DQ2 Celiac gene test 9/11

Son: ADHD '06,

neg. CELIAC PANEL 5/07

ALLERGY: "positive" blood and skin tests to wheat, which triggers his eczema '08

ENTEROLAB testing: elevated Fecal Anti-tissue Transglutaminase IgA Dec. '08

Gluten-free-Feb. '09

other food allergies

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I describe it as "gluten makes me dumb". I'm normally a sharp, smart person. On gluten, I've got the IQ and attention span of a puppy. One of the most frustrating parts of the disease for me, in all honesty.


Positive Bloodwork 7/8/05

Inconclusive Biopsy 7/20/05

gluten-free since 7/23/05

Never felt better.

"So here's us, on the raggedy edge, come a day when there won't be room for naughty men like us to slip about at all. - Malcolm Reynolds"

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Could explain why my fiance looks at me weird when i say something....probably because I said it about 5 times already. There's been times when I haven't had a drink of alcohol and he's though I was drunk as a skunk talking to him about something.


Jami

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This is the worst part for me, too. I'm usually very sharp and on top of things, but when I get glutened, I sometimes forget names of people I've known for ages and can't follow a conversation. It's embarrassing.


Gluten-Free since September 15, 2005.

Peanut-Free since July 2006.

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I refer to it as "gluten stupid" :D

I get clumsy, foggy-headed and sometimes words don't come out of my mouth right...kinda like my tongue is too big. Definately embarassing.


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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Yes I definitly hear you on the embarrassing part....sometimes I got so frustrated that I would stomp my feet and make a loud noise and just walk away from the conversation I had with my fiance....then he'd think that he did something wrong. Poor guy. Not only does he think hormones are a crock....he's going to think that this new revelation is a crock too. lol


Jami

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Jami, I just read your other thread, about denial.... doesn't it scare you at all that this kind of thing happens to your ability to think? :o You can add a third symptom to your list! :)

My main motivation in staying strictly gluten free is the number gluten does on my head. I could live with the digestive symptoms, but I hate the way I feel if I accidentally get gluten, spacy, unable to concentrate, forgetting words, depressed...

Send your fianc

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He now thinks my new revelation (gluten stupid revelation) is legit. Depression....never though about that. We went out for breakfast two-three weeks ago, I had some bread and all I wanted to do when I got home was go to bed. 10pm last night he wanted me to call my primary to find a new GI doc. I moved 3 hours away from my old GI doc (love him to bits, but not so much where I'll drive 3 hours to see him). Hopefully I won't need a biopsy again....i can just send my old files up to the new doc, run some blood work and call it a day (oh if it was just that easy). He though celiac was just the stomach lining being "eaten away" he had no clue about nutrients. I'll definately send him this way...we can all be hormonal on him :D:blink:

Off to a bridal shower with my boxed lunch in hand :-)


Jami

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I've noticed that I've been spacey (very spacey) lately....almost where at times I feel like a real idiot. I know it's not nice to say things like that about yourself....but since I just started going back on the diet....I'm kind of thinking....was me being a "space cadet" linked to going off my diet???

I have the same problem. As soon as I get some gluten in my system, we can tell right away. It's almost like most of my higher reasoning is switched off. Drives my wife crazy, but we get through.


Ryan

Positive blood work May 06

Positive results with diet change

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