Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Am I Gluten Intolerant?


monkey123

Recommended Posts

monkey123 Rookie

I got extremely sick when I was eating gluten and immedietly went on a gluten free diet. I eventually got a blood test but was negative. I am guessing because I had already been off gluten. After about a year my pain was completely gone and I figured it was all just a dream and I was making it up. Yesterday and today I ate gluten. I have had some stomach pains but nothing unabrable, and gone to the bathroom fairly shortly after I ate but nothing extremely significant. Except for getting a head ache, kinda light headed and tired. I don't remember getting a head ache before, I remember extremely bad stomach pains, diarrhea, and exhuastion. Could it be that I am not gluten intolerant? Or I am just reacting with the headaches, tiredness, and light headedness and not severe stomach pain? I am kind of confused and hopeful.

Any thoughts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tom Contributor

Some ppl have worse symptoms on day 2 or 3 than the day after a glutening.

I hope it doesn't get really bad, tho it would be solid proof, it seems.

Maybe the symptoms ARE relatively minor for you. But also maybe they'd build if you regularly had gluten.

Isn't the "maybe I'm not gluten intolerant?" question wishful thinking?

There were symptoms, right?

Your first line was "I got extremely sick when I was eating gluten .. ."

ksymonds84 Enthusiast
I got extremely sick when I was eating gluten and immedietly went on a gluten free diet. I eventually got a blood test but was negative. I am guessing because I had already been off gluten. After about a year my pain was completely gone and I figured it was all just a dream and I was making it up. Yesterday and today I ate gluten. I have had some stomach pains but nothing unabrable, and gone to the bathroom fairly shortly after I ate but nothing extremely significant. Except for getting a head ache, kinda light headed and tired. I don't remember getting a head ache before, I remember extremely bad stomach pains, diarrhea, and exhuastion. Could it be that I am not gluten intolerant? Or I am just reacting with the headaches, tiredness, and light headedness and not severe stomach pain? I am kind of confused and hopeful.

Any thoughts?

After you heal, your glutening symptoms may become milder but you are still doing damage to your intestines. After repeated exposures you will probably go back to square one again. If you really want to be sure, you will have to eat gluten for a couple of months to MAYBE get a positive blood test. You should listen to your body, the stomach pains and headaches, although bearabe right now are warning you that it didn't like it. A person with no problems with gluten wouldn't have these nice little warnings that your body is giving you. I think this is one of the reasons why if you can (I know its not always possible because of how ill informed most of our doctors are on gluten intolerance and celiac) get a formal diagnoses to begin with then there is never this temptation to cheat. Not putting you down at all, I think its probably human nature to test the theory from time to time when your self diagnosed. Good luck and keep us updated.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,084
    • Most Online (within 30 mins)
      10,442

    Melvac
    Newest Member
    Melvac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...