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Will The Thrill

How We Can Do Something To Help Cure Are Celiac

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Even though i am only 13, listen to what i have to say. everybody has heard of diabetes, so millions of dollars and fund razers are going to help find a cure, but in my school of 700 only 10 kids have ever heard of it. We need to educate the public so more donations and effort to finding a cure will be made. Most people have seen the help us find a cure diabetes commercial, and i think there should be a celiac commercial to. If we educate the public, changes might be made. This is not an impossible task, after all the lactated has been developed to help with lactose intolerance, so something like a glutaid, could be invented to cue gluten intolerance. Tell me if you think this might work or at least help


It's raining snowman parts!!!!!!!!!!

people need to appreciate the little things in life........ like socks

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Someday I hope they cure "auto-immune" diseases period. I believe Genetic therapy will be the key. I support stem cell research. I may get bashed for saying it. But I do.


GLUTEN FREE 4/4/08. LEGUME/SOY FREE 5/15/08. YEAST FREE. CORN FREE. GRAIN FREE. DAIRY FREE. I am eating all meats, eggs, veggies, fruits, squash, nuts and seeds. I just keep getting better every day. :)

Do not let any of the advice given here substitute for good medical care. Let this forum be a catalyst for research. Find support for any post in here before you believe it to be true. Arm yourself with knowledge. Let your doctor be your assistant. Listen to their advice, but follow your own instincts as well. Miracles are within your reach. You can heal!

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Even though i am only 13, listen to what i have to say. everybody has heard of diabetes, so millions of dollars and fund razers are going to help find a cure, but in my school of 700 only 10 kids have ever heard of it. We need to educate the public so more donations and effort to finding a cure will be made. Most people have seen the help us find a cure diabetes commercial, and i think there should be a celiac commercial to. If we educate the public, changes might be made. This is not an impossible task, after all the lactated has been developed to help with lactose intolerance, so something like a glutaid, could be invented to cue gluten intolerance. Tell me if you think this might work or at least help

Will, there is a cure for celiac disease. It is called the gluten-free diet. Diabetics will NEVER be cured, as insulin injections aren't a cure, or else they wouldn't be dependent on insulin all their lives. And still, they'll end up with problems as they get older.

On the other hand, you can be perfectly healthy by just avoiding gluten. No medicine needed.

Lactaid isn't a cure for dairy intolerance either, it is better and healthier to just avoid what passes for milk (pasteurized milk is denatured and dead, and homegenized milk is even worse). If you would drink unpasteurized milk (from certified dairies), you wouldn't need lactaid, as the enzyme that helps you digest milk (and all the other enzymes and friendly bacteria) wouldn't be killed by heat.


I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma

------------------------------------------------------------------------------------------------------------------

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Someday I hope they cure "auto-immune" diseases period. I believe Genetic therapy will be the key. I support stem cell research. I may get bashed for saying it. But I do.

:) I love your posts, Shay. And I see all of the new things you have eliminated this year - wow. I need to start getting serious myself.

Will, your thinking about highlighting public awareness on celiac disease is on the right track. Even if there isn't a "cure", at least public awareness will increase the amount of products and services for us out there.


-First overt but unrecognized symptoms after reintroducing dairy and wheat to my diet after a 2-month absence, 2002.

-First appearance of chronic aphthous stomatiti, 2002.

-Giardia infection and treatment with albenzole, 2005.

-Persistent symptoms and treated for Giardia again with Flagyl twice (without testing), 2006.

-Dx milk allergy from a blood test, April 2007.

-Also presented for anemia, high white blood cell count, and candida in the same test. Dx IBS, April 2007.

-Response to diet and self-diagnosis through overwhelming symptoms and possible genetic link (hypothyroidism, fibromyalgia runs in the family), April 2008

-Currently learning to go gluten-free (April 2008), and coping with new sensitivities.

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Amen! Improved public awareness would really be great, so that people in restaurants and grocery stores could be more helpful. Educating doctors so that people are diagnosed before they develop umpteen other problems would be wonderful. And research for a cure, or at least for the cause, might help a lot of other autoimmune diseases as well as celiac. This discussion is very interesting.

http://www.glutenfreeforum.com/index.php?s...mp;#entry449910

I think this will get you to the thread. If not, google Celiac: The Autoimmune Connection A quantum leap is coming (July 24)


diagnosed with celiac disease in 2002--all test numbers off the charts

dairy free since 2000, soy free since 2007

other food intolerances: citrus, sesame, potatoes, corn, coffee

fibromyalgia, osteoporosis

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Just my two cents but both my naturopath and acupuncturist truly believe that the "lazy" diagnosis of IBS is having its swan song. Awareness is rising and every time I reveal my health challenges to someone I don't know, they always know someone else with the same condition. We all need to share and 'gently' demand recognition. Keep talking this up, soon the lightbulbs will be illuminating over the heads of those who have accepted that lame and catch-all diagnosis, and the "live with it" attitude that is attached to it.

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Someday I hope they cure "auto-immune" diseases period. I believe Genetic therapy will be the key. I support stem cell research. I may get bashed for saying it. But I do.

Why would you get bashed for saying you support stem cell therapy? Most people that are against it do not have a clue as to how stem cells are obtained and base their opinions on nonsense information. My sister works in this field and most stem cells are generally obtained from the placenta, after a live birth. People can donate the placenta and I can't see how that would offend anyone. You are right....stem cells are the way to go and it's been proven.

Will.....I can understand why a 13 year old would be upset to have Celiac Disease. However, as other's have said, there is a cure for it and the healthy eating that should result from a diagnosis will carry you well throughout the rest of your life. By the time you reach adulthood, there will most likely be MANY restaurants that have a gluten-free menu as it's becoming so mainstream. I know you don't want to hear this now but having celiac disease is something that becomes easier as you get older and will not impair your ability to have a good time with friends. I would rather research concentrate on diseases like cancer and the horrible ones that waste a human body to nothing because having to change your diet to get your health back is really no big deal. Maybe you should be the spokesperson for your school so others can learn more about it.

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:) I love your posts, Shay. And I see all of the new things you have eliminated this year - wow. I need to start getting serious myself.

Will, your thinking about highlighting public awareness on celiac disease is on the right track. Even if there isn't a "cure", at least public awareness will increase the amount of products and services for us out there.

Dead on. I think public awareness will make more people aware that they have this condition and it will also make the commercial market realize that we are a consumer base to be catered to. This will encourage manufacturer's not to stick gluten in everything and saturate the market with one ingredient and also encourage them to find tastier products especially when they have to start eating gluten free themselves. I really think that gluten sensitivity is a larger issue than has been thought of previously.


Gluten Free since 2003

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Dead on. I think public awareness will make more people aware that they have this condition and it will also make the commercial market realize that we are a consumer base to be catered to. This will encourage manufacturer's not to stick gluten in everything and saturate the market with one ingredient and also encourage them to find tastier products especially when they have to start eating gluten free themselves. I really think that gluten sensitivity is a larger issue than has been thought of previously.

The only problem with public awareness is that many, many people will still live in denial and will not even begin to entertain the idea of eating gluten-free. My whole family are like this and the majority of them all have celiac disease or GS yet they will not hear that they have it and will never go gluten-free. Most of them have several autoimmune diseases, all linked to celiac disease and are on medications to suppress their symptoms but that's OK.....it's better than eating that crazy diet I am on! :rolleyes: Plus you have a medical profession that makes a lot of money from treating symptoms alone and will not be happy if patients disappear after clearing up their health through diet.

I do agree that public awareness is sorely needed but I can see a whole lot of denial going on.

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I concur on the awareness thing. One major problem seems to be that doctors listen to drug reps too much, and since drug companies don't have a drug to push on doctors to prescribe, the docs don't hear about Celiac. So they think it's rare, or impossible, or imagined, etc. Thankfully this does appear to be changing, however far too slowly IMO.

On the stem cell thing, I've heard a lot about this. The research into adult stem cells is all-the-more interesting, since the potential there is that the cells can come from the same patient that receives them. So that solves the major ethical dilemma, unless you are against moving cells from one part of the body to another.

Some experts I've heard speak about this include Michel Levesque, MD, Dr. Warren Sherman, and Christian Wilde. You can find info, articles, and audio interviews with these and other researchers here.


A spherical meteorite 10 km in diameter traveling at 20 km/s has the kinetic energy equal to the calories in 550,000,000,000,000,000 Twinkies.

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The only problem with public awareness is that many, many people will still live in denial and will not even begin to entertain the idea of eating gluten-free. My whole family are like this and the majority of them all have celiac disease or GS yet they will not hear that they have it and will never go gluten-free. Most of them have several autoimmune diseases, all linked to celiac disease and are on medications to suppress their symptoms but that's OK.....it's better than eating that crazy diet I am on! :rolleyes: Plus you have a medical profession that makes a lot of money from treating symptoms alone and will not be happy if patients disappear after clearing up their health through diet.

I do agree that public awareness is sorely needed but I can see a whole lot of denial going on.

Yeah, but denial might be less if it becomes more visible and a lot easier to maintain. But, I do see major opposition, in two words: the wheat industry. Heck, maybe we can convince them to throw wheat into the lot of biofuels to help offset the high production cost of palm oil. (only a joke - I know alternative fuels are a lot more complicated). :P


-First overt but unrecognized symptoms after reintroducing dairy and wheat to my diet after a 2-month absence, 2002.

-First appearance of chronic aphthous stomatiti, 2002.

-Giardia infection and treatment with albenzole, 2005.

-Persistent symptoms and treated for Giardia again with Flagyl twice (without testing), 2006.

-Dx milk allergy from a blood test, April 2007.

-Also presented for anemia, high white blood cell count, and candida in the same test. Dx IBS, April 2007.

-Response to diet and self-diagnosis through overwhelming symptoms and possible genetic link (hypothyroidism, fibromyalgia runs in the family), April 2008

-Currently learning to go gluten-free (April 2008), and coping with new sensitivities.

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Gemini is basically right--just go on the diet and you're OK--if it was caught early enough. But I really want to see more research. I think it would help a lot of related autoimmune diseases. I also want accurate numbers on how common this disease is, and I want doctors to do routine blood testing for celiac on children they way I've heard they do in Italy. At least doctors should be trained to test for celiac whenever patients show malnutrition, diabetes, neuropathy, joint pain, fatigue--you know the list. Many doctors don't know that list yet.


diagnosed with celiac disease in 2002--all test numbers off the charts

dairy free since 2000, soy free since 2007

other food intolerances: citrus, sesame, potatoes, corn, coffee

fibromyalgia, osteoporosis

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Hi all,

The intention of the original poster, is to improve awareness of the Disease.

.

From Will.

Even though i am only 13, listen to what i have to say......We need to educate the public so more donations and effort to finding a cure will be made.

'

From Shay.

Someday I hope they cure "auto-immune" diseases period. I believe Genetic therapy will be the key. I support stem cell research. I may get bashed for saying it. But I do.

.

From Ursa.

Will, there is a cure for celiac disease. It is called the gluten-free diet. Diabetics will NEVER be cured, as insulin injections aren't a cure, or else they wouldn't be dependent on insulin all their lives.

.

From BallardWA.

Just my two cents but both my naturopath and acupuncturist truly believe that the "lazy" diagnosis of IBS is having its swan song. Awareness is rising and every time I reveal my health challenges to someone I don't know, they always know someone else with the same condition. We all need to share and 'gently' demand recognition. Keep talking this up, soon the lightbulbs will be illuminating over the heads of those who have accepted that lame and catch-all diagnosis, and the "live with it" attitude that is attached to it.

.

While the following maybe off the original theme of the topic, I think you all should find it interesting.

This will give you all something to think about and maybe open up further discussion.

I know that I personally found it very interesting and enlightening and made me aware

of a whole different angle on Autoimmune Diseases.

.

Biotoxins: We are not Immune to our Environment!

.

Best Regards,

David


Chronically Ill and lost 56lbs in 3 Months Prior to Diagnosis.

Diagnosed in Nov 2005 after Biopsy and Blood Tests

Cannot tolerate Codex Wheat Starch.

Self Taught Baker.

Bake everything from scratch using naturally gluten-free ingredients.

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Guest lorlyn

Hey Will,

I am the mother of a 11 year old with Celiac Diease and I agree with you. There needs to be more awareness of this disease. I had never heard of Celiac untill my daughter got it and I am 44 years old. Nobody I know has ever heard of it either. Any time my family gets the chance to educate people about this disease we do. People at our chuch now know about Celiac as well as people at her school. Just educate as many people as you can. Also welcome to this forum

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after reading your 1st post ...13 and wanting to increase awareness! you go! i felt this funny inspired thing like heck i'm 50 so i've had all these years of pizza and cinibuns and stuff many of this next generation will need to all do differently .

YOU GO ! i can't say it enough . did you see the movie "pass it on" you remind me of the kid . you have stumbled on the whole service to humanity is the best work of life ... thinking... also you should read "when bad things happen to good people".

you are a good person you aren't gonna let this get the better of you ... you can beat it at it's own game..

lisen to jack johnson and john mayer you are bigger than your body...

i applaud you ....do something....i'm gonna see great things from you by the time you are my age i have no doubt of it.

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Will, there is a cure for celiac disease. It is called the gluten-free diet. Diabetics will NEVER be cured, as insulin injections aren't a cure, or else they wouldn't be dependent on insulin all their lives. And still, they'll end up with problems as they get older.

On the other hand, you can be perfectly healthy by just avoiding gluten. No medicine needed.

Lactaid isn't a cure for dairy intolerance either, it is better and healthier to just avoid what passes for milk (pasteurized milk is denatured and dead, and homegenized milk is even worse). If you would drink unpasteurized milk (from certified dairies), you wouldn't need lactaid, as the enzyme that helps you digest milk (and all the other enzymes and friendly bacteria) wouldn't be killed by heat.

For all you people who say we will never be rid of it and your bracing yourself for the worst and preparing to cushion yourself if you might spend the rest of your life with celiac think about this,

There is a cure for celiac, it just hasn't been discovered

in the prehistoric days, antibiotics were posible, just not discovered, and with some research and money, it was. Just because no body knew how to cure it, doesn't mean it would never happen

Celiac is that way to, and if we educate the public, we will be rid of it faster

some of you people may just deal with it and do nothing about it, but im not that way, and ive hope ive convinced you not to be that way either


It's raining snowman parts!!!!!!!!!!

people need to appreciate the little things in life........ like socks

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