Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

So Nervous For Testing Tomorrow...


wockandwoll

Recommended Posts

wockandwoll Newbie

Hey all.. been trying to go gluten-free, but accidentally glutened myself the last two days, and I was only gluten-free for 2 days before that. Went to my GP today to tell him what was going on with my body, and before I could even say "Gluten" he said "Have you ever heard of Celiac Disease? I think it could be a definite possibility." THANK GOD! SO he ordered the tests but he didn't really tell me what they were going to do for the tests so I came here. Here's what my sheet says:

US ABDOMEN COMPLETE (Ultrasound for my gallbladder.. why?)

TISSUE TRANSGLUTAMATE IgA & IgG (omg is that a biopsy? I've never had one. Is there anesthetic involved? Will I be able to come to work?)

GLIADIN IgG ANTIBODY (a blood test, i presume)

ENDOMYSIAL IgA AB (another blood test?)

I have no idea what they're even looking for and all this medical jargon is making my head spin. Can someone give me some insight, and perhaps a bit of insight?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

Looks like all blood and an ultrasound. No anesthesia. You will be fine.

lizard00 Enthusiast
TISSUE TRANSGLUTAMATE IgA & IgG (omg is that a biopsy? I've never had one. Is there anesthetic involved? Will I be able to come to work?)

GLIADIN IgG ANTIBODY (a blood test, i presume)

ENDOMYSIAL IgA AB (another blood test?)

These tests are all part of the Celiac Panel; which is the blood test. You might want to mention getting a complete IgA serum though, just in case you are IgA deficient. (IgA is associated with your immune systen and it's responses) The back up to this test is the IgG, (which I'm impressed that your doctor put in the test orders), but it's good to know if you're IgA deficient or not.

Not sure about the gall bladder, did they offer an explanation?

wockandwoll Newbie

He wanted to make sure I didn't have any gallstones, allthough I can't see how that is relevant. THe word "tissue"

made me wonder if that was a biopsy. Thank you for clearing that up. So will they just take a syringe of blood and do the ultrasound and that's it?

GFinDC Veteran

It should be just a blood draw for the anitbodie tests, all those IGA IGE etc things.. The other test they do for celiac is an endoscopy. I am pretty sure they would use anesthesia for that though, and brief you ahead of time on the procedure and possibly having someone drive you home. In an endoscopy they insert a tube down the throat and take samples of the small intestine lining. It doesn't sound like you are getting an endoscopy. That would usually be done after the blood test results are back. My opinion, if you have the antibodies in your blood tests then you shouldn't need the endoscopy.

*lee-lee* Enthusiast

yup, it sounds like a routine blood draw. they took about 4 or 6 vials when i had mine done.

make sure you eat a bunch of gluten tonight - have pizza or pasta or something. your blood work will be skewed if you're not consuming gluten.

dksart Apprentice

....sounds like you have an awesome doc!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



wockandwoll Newbie

Actually, I was really nervous that he would give me the "depressed housewife" or "IBS" diagnosis. Called me to say he wants to do another series of tests. Thyroid, metabolic profile and CBC, just to be sure of things. What's a metabolic profile.

ravenwoodglass Mentor

I am surprised he didn't order those tests when he did the panel. The test is really a routine test, here is what it is for-

"The CMP is a frequently ordered panel that gives your doctor important information about the current status of your kidneys, liver, and electrolyte and acid/base balance as well as of your blood sugar and blood proteins. Abnormal results, and especially combinations of abnormal results, can indicate a problem that needs to be addressed.

The CMP is used as a broad screening tool to evaluate organ function and check for conditions such as diabetes, liver disease, and kidney disease. The CMP may also be ordered to monitor known conditions, such as hypertension, and to monitor patients taking specific medications for any kidney- or liver-related side effects. If your doctor is interested in following two or more individual CMP components, he may order the entire CMP because it offers more information.

The CMP is routinely ordered as part of a blood work-up for a medical exam"

Open Original Shared Link

withnail69 Rookie
I am surprised he didn't order those tests when he did the panel. The test is really a routine test, here is what it is for-

"The CMP is a frequently ordered panel that gives your doctor important information about the current status of your kidneys, liver, and electrolyte and acid/base balance as well as of your blood sugar and blood proteins. Abnormal results, and especially combinations of abnormal results, can indicate a problem that needs to be addressed.

The CMP is used as a broad screening tool to evaluate organ function and check for conditions such as diabetes, liver disease, and kidney disease. The CMP may also be ordered to monitor known conditions, such as hypertension, and to monitor patients taking specific medications for any kidney- or liver-related side effects. If your doctor is interested in following two or more individual CMP components, he may order the entire CMP because it offers more information.

The CMP is routinely ordered as part of a blood work-up for a medical exam"

Open Original Shared Link

hmmmm is gallbladder ultrasound part of diagnosis cause when I went he said my gall bladder was collapsed (I had eaten and hadn't been told I wasn't allowed to) ps:- I am in agony at the moment and could really do with a diagnosis

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      34

      Pain in the right side of abdomen

    2. - knitty kitty replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      34

      Pain in the right side of abdomen

    3. - Aretaeus Cappadocia replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      1 Year Elimination Diet journey

    4. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      1 Year Elimination Diet journey

    5. - Aretaeus Cappadocia replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      1 Year Elimination Diet journey

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,055
    • Most Online (within 30 mins)
      10,442

    Bubba89
    Newest Member
    Bubba89
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease can have neurological associations, but the better-described ones include gluten ataxia, peripheral neuropathy, headaches or migraine, seizures, cognitive symptoms, and, rarely, cerebral calcifications or white-matter changes. Some studies and case reports describe brain white-matter lesions in people with celiac disease, but these are not specific to celiac disease and can have many other explanations. A frontal lobe lesion could mean many different things depending on the exact wording of the report: a white-matter spot, inflammation, demyelination, a small old stroke, migraine-related change, infection, trauma, vascular change, seizure-related change, tumor-like lesion, artifact, or something that resolved on repeat imaging. The word “transient” usually means it changed or disappeared, which can happen with some inflammatory, seizure-related, migraine-related, vascular, or imaging-artifact situations.  Hopefully they will find nothing serious.
    • knitty kitty
      @Heatherisle, I would feel much less worried if you would insist that the doctors administer high dose thiamine hydrochloride (500mg x 3 daily) for several days, with a banana bag (all eight B vitamins, riboflavin makes it yellow like bananas).  Electrolytes may become unbalanced, so monitoring is needed as well.  Just to rule out Thiamine deficiency, high dose thiamine should be administered for several days.  If no health improvement, look for something else. The symptoms your daughter is showing are seen in Wernickes Encephalopathy caused by Thiamine deficiency.  White spots in the brain including on the frontal lobe are seen in Wernickes Encephalopathy.  Blurred vision, balance problems, changed gait (wider stance to compensate for imbalance), tingling in hands and feet, ascending neuropathy, lower back pain, kidney pain, abdominal pain are all symptoms I have experienced when I had Wernickes.  The damage becomes permanent if not corrected quickly.  Korsakoff Syndrome follows with brain damage that cannot be reversed, and death following.   Doctors are not trained in Nutrition.  Doctors are taught Wernickes Encephalopathy only happens in Alcoholism.  My doctors did not recognize Wernickes Encephalopathy because I did not drink alcohol.  If it walks like a duck... Doctors do not realize that Malabsorption from Celiac Disease can result in severe nutritional deficiency diseases, including Wernickes.  Malabsorption of Celiac Disease affects all the essential nutrients, vitamins and minerals, our bodies need to function properly.  It's rare to have a deficiency in just one vitamin.  B12 Deficiency and Thiamine deficiency go hand in hand.   I had symptoms of deficiencies in many vitamins and minerals because my Celiac Disease was still undiagnosed at that time.  They laughed when I asked to be checked for Celiac Disease.  I was overweight (high calorie malnutrition).  I didn't match their " in the box" thinking.  I didn't match their concept of the wasting away, skin and bones stereotype of Celiac Disease.  My doctors wrote me off as "depressed".  I could feel myself dying.  I trusted what I learned at university about how vitamins work inside the body.  I recognized the symptoms of Wernickes and other nutritional deficiency diseases.  At home, I took 500 mg over the counter thiamine hydrochloride and had health improvement within twenty minutes.  I continued supplementing for months, with thiamine and B vitamins and electrolytes.  I continued to have health improvements.  I did suffer some permanent brain damage.  I have permanent vision problems and optic nerve damage.  Computer screens cause migraines.  I struggle through them to help others.   Ask for Thiamine and an Erythrocyte Transketolace Activity Assay.  This test is more accurate than a blood test for Thiamine level, but both tests take time, during which time permanent damage can be done.  The World Health Organization recommends thiamine administration before test results come back in order to prevent permanent damage.   Trying thiamine hydrochloride is simple and cheap and safe and nontoxic.  If high dose thiamine doesn't work, there's no harm done.  Try thiamine supplementation if only to rule out Thiamine deficiency....while there's still time. References: Thiamine Deficiency and Brain Injury: Neuroanatomical Changes in the Wernicke-Korsakoff Syndrome https://pmc.ncbi.nlm.nih.gov/articles/PMC12535404/ Concomitant Vitamin B1 and Vitamin B12 Deficiency Mimicking Thrombotic Thrombocytopenic Purpura https://pmc.ncbi.nlm.nih.gov/articles/PMC9887457/ Please have ears to hear.
    • Aretaeus Cappadocia
      I don't know about this. Here's how I make kasha: boil water in a pot add the kasha, stir to mix, turn heat down to a gentle simmer for ~10 min, maybe 15, until tender remove from heat and serve There are lots of variations if you wish, like adding salt and butter. One variation that is really tasty, but kind of a pain, is to mix the dry kasha with a beaten raw egg, heat the dry kasha/egg mixture in the pot for a couple of minutes (to coat the kasha and cook the egg), then add boiling water and finish like the "basic" recipe above. I seldom have the patience to do all of that, though.
    • xxnonamexx
      What's the reasoning of washing and rinsing kasha buckwheat for 12 hrs
    • Aretaeus Cappadocia
      I don't clean the kasha. It does take more than a minute but less than half an hour. However I understand the need for efficiency in the morning routine. I am not familiar with the lemon thing. Another one to consider is quinoa (I buy Kirkland, labeled gluten free). It is probably better to rinse the quinoa before cooking. I don't notice it myself but a lot of people don't like unwashed quinoa because of saponins that are removed by a rinse. All of these are reheatable if you want to make a larger amount ahead of time. Also, it may be possible to use the "overnight oats" strategy with some or all of these, but I have to say I never even thought about it until writing this response.
×
×
  • Create New...