Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Daughter Freshman In College


wildwood

Recommended Posts

wildwood Apprentice

My daughter was told she likely has celiac disease. She found out in mid August two weeks before she went away to college. It has been difficult for her to say the least. Food services has been helpful to her, but she is finding out the hard way where gluten hides. For instance, they started offering gluten free pasta last week. She was thrilled and ordered a serving of the pasta with marinara sauce assuming the sauce would be safe. Well she felt horrible all the next day. She went to food services and checked with the manager. As it turns out the marinara has gluten in it as well as all the other sauces offered! She said now she eats it with just butter or oil on it. She went from being thrilled that her dorm was right next to the dining hall to feeling bad because now it is a constant reminder of all she cannot eat. She is keeping her chin up, but I know it gets her down.

I am going to visit her in a couple of weeks. I was thinking I would bring her some gluten-free pasta sauces. She said she is pretty sure they would heat them up for her in the dining hall. Can anyone recommend any? Does anyone have any unique ideas of what I can include in a care package that might help her with this transition and brighten up her day?

We are so new to this. It is overwhelming!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

Ragu - If wheat or gluten are in the ingredients, they will list them. They do not hide ingredients.

Care Package: Thai Kitchen has some easy to prepare meals. Does she have access to a microwave?

Open Original Shared Link

Lara bars

Trail mix (make sure gluten free)

Pamela's cookies

I dont eat any processed food myself, but these come to mind.

Link to comment
Share on other sites
wildwood Apprentice
Ragu - If wheat or gluten are in the ingredients, they will list them. They do not hide ingredients.

Care Package: Thai Kitchen has some easy to prepare meals. Does she have access to a microwave?

Open Original Shared Link

Lara bars

Trail mix (make sure gluten free)

Pamela's cookies

I dont eat any processed food myself, but these come to mind.

Thanks, those are good ideas. She does have a microwave. We do not eat much processed food here at home, but unfortunately her options are very limited at school. Next year, I will try and make sure she get one of the dorm suites that has a small kitchen or something off campus so she can prepare her own food.

Link to comment
Share on other sites
Darn210 Enthusiast
Thanks, those are good ideas. She does have a microwave. We do not eat much processed food here at home, but unfortunately her options are very limited at school. Next year, I will try and make sure she get one of the dorm suites that has a small kitchen or something off campus so she can prepare her own food.

Is it possible to see if she can transfer into or get on a waiting list for one of the dorm suites for this year . . . there always seems to be a student fall out rate in the beginning. I think it would be much easier if she could be in control of her own food. Celiac disease is covered by the ADA. If she has an official diagnosis, I believe they are required to accomodate her . . . that may get you to the top of the list for a suite. I don't know the ins and outs, maybe somebody else can say what she is legally entitled to.

Classico red sauces are OK, too.

Link to comment
Share on other sites
purple Community Regular

Bertoli alfredo sauce and Prego Traditional style spaghetti sauce...careful of sauces with meat.

My dd was a freshman last year and we went thru this in Feb.

Chocolate

Refried beans and gluten-free tortilla chips

items and a dish to make layered mexican dip, veggies to go on it

Thai microwaved noodles

Popcorn

celery, apples, carrot six, other fruits and veggies

peanut butter, jelly

yogurt

nuts and seeds

homemade cookies

soft kleenex-lotion kind- very comforting during a crying spell or cold

fruit cups

gluten-free rice cakes (some people have trouble with Quaker)

gluten-free toiletries-lotion, shampoo, etc.

snacks to take to dorm/room parties and movie night

When I learned how to cook gluten-free I made entrees almost every day and put them in baggies and a plastic container and labeled them(still do). Then took my dd some when ever I could to put in her fridge and a couple for her freezer. It took a couple of days to thaw the fridge ones out so she could eat for a week.

Find out where the gluten-free restaurants are for her and list whats safe on the menu.

A gluten-free cake for her birthday to share with her new dormies.

Holidays are coming so I am looking for gluten-free recipes like the "old" favorites to make...dd first holidays gluten-free this year.

Link to comment
Share on other sites
wildwood Apprentice
Bertoli alfredo sauce and Prego Traditional style spaghetti sauce...careful of sauces with meat.

My dd was a freshman last year and we went thru this in Feb.

Chocolate

Refried beans and gluten-free tortilla chips

items and a dish to make layered mexican dip, veggies to go on it

Thai microwaved noodles

Popcorn

celery, apples, carrot six, other fruits and veggies

peanut butter, jelly

yogurt

nuts and seeds

homemade cookies

soft kleenex-lotion kind- very comforting during a crying spell or cold

fruit cups

gluten-free rice cakes (some people have trouble with Quaker)

gluten-free toiletries-lotion, shampoo, etc.

snacks to take to dorm/room parties and movie night

When I learned how to cook gluten-free I made entrees almost every day and put them in baggies and a plastic container and labeled them(still do). Then took my dd some when ever I could to put in her fridge and a couple for her freezer. It took a couple of days to thaw the fridge ones out so she could eat for a week.

Find out where the gluten-free restaurants are for her and list whats safe on the menu.

A gluten-free cake for her birthday to share with her new dormies.

Holidays are coming so I am looking for gluten-free recipes like the "old" favorites to make...dd first holidays gluten-free this year.

Those are all good ideas. What are some of the meals that you make that freeze well? She has a very small freezer, but I figure I can bring her a least a few meals to keep in there. Thanks for suggestions.

Link to comment
Share on other sites
wildwood Apprentice
Bertoli alfredo sauce and Prego Traditional style spaghetti sauce...careful of sauces with meat.

My dd was a freshman last year and we went thru this in Feb.

Chocolate

Refried beans and gluten-free tortilla chips

items and a dish to make layered mexican dip, veggies to go on it

Thai microwaved noodles

Popcorn

celery, apples, carrot six, other fruits and veggies

peanut butter, jelly

yogurt

nuts and seeds

homemade cookies

soft kleenex-lotion kind- very comforting during a crying spell or cold

fruit cups

gluten-free rice cakes (some people have trouble with Quaker)

gluten-free toiletries-lotion, shampoo, etc.

snacks to take to dorm/room parties and movie night

When I learned how to cook gluten-free I made entrees almost every day and put them in baggies and a plastic container and labeled them(still do). Then took my dd some when ever I could to put in her fridge and a couple for her freezer. It took a couple of days to thaw the fridge ones out so she could eat for a week.

Find out where the gluten-free restaurants are for her and list whats safe on the menu.

A gluten-free cake for her birthday to share with her new dormies.

Holidays are coming so I am looking for gluten-free recipes like the "old" favorites to make...dd first holidays gluten-free this year.

Those are all good ideas. What are some of the meals that you make that freeze well? She has a very small freezer, but I figure I can bring her a least a few meals to keep in there. Thanks for suggestions.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



wildwood Apprentice
Is it possible to see if she can transfer into or get on a waiting list for one of the dorm suites for this year . . . there always seems to be a student fall out rate in the beginning. I think it would be much easier if she could be in control of her own food. Celiac disease is covered by the ADA. If she has an official diagnosis, I believe they are required to accomodate her . . . that may get you to the top of the list for a suite. I don't know the ins and outs, maybe somebody else can say what she is legally entitled to.

Classico red sauces are OK, too.

I will discuss this with her when I see her in a couple of weeks. If she wants to proceed, we can go to housing services while I am there and see what we need to do. Thank you very much for the good advice.

Link to comment
Share on other sites
purple Community Regular
Those are all good ideas. What are some of the meals that you make that freeze well? She has a very small freezer, but I figure I can bring her a least a few meals to keep in there. Thanks for suggestions.

Spaghetti with veggies mixed in

Lasagna with veggies mixed in

Chili

Rice dishes with different sauces or veggies

Mini potpies with assorted fillings-made in a jumbo muffin pan

Taco meat for chips or hard shells (beef or chicken)

Taquito or Fajita meat for chips or hard corn shells

Beanie wienies

Pizza slices

BBQ chicken meat for chips

Soups like minestrone made with rice instead of pasta

Enchiladas

Beans, corn and rice casserole to just eat or make nachos with

Treats made and frozen ahead of time- don't need to be kept in the fridge when she gets them

Fresh breakfast burritos or frozen "breakfast" in a pot pie

DD didn't like the chicken alfredo with rice noodles frozen-she said they were soggy

I made a mexicali cornbread casserole-soggy too

I drop it in sandwich baggies, then I put 2 entrees into a flat square container then labeled with the item and date. I put mini muffins or cookies in all the little spaces so she gets a surprise sometimes and it fills up the space too. Just wrap them individually in plastic wrap. I could send her about 5 containers at a time, 2 for the freezer and 3 for the fridge. She didn't eat in the lunch room much...all gluten but fruit which was usually offered in the morning.

Link to comment
Share on other sites
kbtoyssni Contributor

Chili always freezes well.

This PB cookie recipe travels well and doesn't go stale - they'll last for a several weeks.

PB cookies

1 c. Peanut Butter

1 egg

1 c. sugar ( I substitute 1/4 c. sugar and 3/4 c. splenda since my husband is diabetic and it works great)

1t vanilla

mix, roll into balls and press out on cookie sheet. Bake 10-12 mins at 375. I make 4 batches at once and am set for about 10 days. They're delicious and EASY and portable.

Link to comment
Share on other sites
wildwood Apprentice

Thank you for the good suggestions.

Link to comment
Share on other sites
mandasmom Rookie

One of my daughters favorites is one of those indivdual packages of microwavable brown rice (minute rice or trader joe) covered with a can of sheltons chili--nutricious, easy and calorie reasonable

Peanut butter is a college staple--works great on rice cakes

lots of fruit and nuts

indidual packages of salad dressing, soy sauce and crakers (glutino makes these packages) will help her easily take along what she needs to join her new friends for meals.

I think a much more indepth meeting with the college dining facility is in order--most acadmeic institutions have an ADA officer---that person should accompany her to that meeting and be sure she gets all of the accomdations neccessary! We tried really hard to keep our daughter int he dorm--meal time is a h uge social thing for college freshman and she will likley feel another sense of loss if she has to give that up too!!

Good luck to her and kudos to you for allowing her to spread her wings and find her way!!

Link to comment
Share on other sites
wildwood Apprentice
One of my daughters favorites is one of those indivdual packages of microwavable brown rice (minute rice or trader joe) covered with a can of sheltons chili--nutricious, easy and calorie reasonable

Peanut butter is a college staple--works great on rice cakes

lots of fruit and nuts

indidual packages of salad dressing, soy sauce and crakers (glutino makes these packages) will help her easily take along what she needs to join her new friends for meals.

I think a much more indepth meeting with the college dining facility is in order--most acadmeic institutions have an ADA officer---that person should accompany her to that meeting and be sure she gets all of the accomdations neccessary! We tried really hard to keep our daughter int he dorm--meal time is a h uge social thing for college freshman and she will likley feel another sense of loss if she has to give that up too!!

Good luck to her and kudos to you for allowing her to spread her wings and find her way!!

Thanks for your reply. These are good ideas. She just called me to say she ate some soup and was so sick this afternoon her professor excused her from class. I told her you idea for the individual packets of soy sauce and she liked that idea very much. I will look into some gluten-free canned soups for her also. I feel she is starting to get discouraged. I am glad I am going to see her next weekend. I have been gathering alot of ideas for her and I can try and reinforce to her where gluten may be hiding. I know she will find her way, but I am hoping she does not let it get her down. I try to keep things as upbeat as possible and to let her know she will get the hang of it. She will just be learning alot along the way. I will also be discussing with her your suggestion of a meeting with the dining facility. I really don't think she would be happy leaving the dorm because that is where all the freshman reside. If I were able to get her into a suite she would be with upper classman. She may be okay with that idea. It is another option I will offer her although I suspect for now she will want to stay put because she has made some nice friends where she is. Thanks again for your suggestions :)

Link to comment
Share on other sites
JNBunnie1 Community Regular
Thanks for your reply. These are good ideas. She just called me to say she ate some soup and was so sick this afternoon her professor excused her from class. I told her you idea for the individual packets of soy sauce and she liked that idea very much. I will look into some gluten-free canned soups for her also. I feel she is starting to get discouraged. I am glad I am going to see her next weekend. I have been gathering alot of ideas for her and I can try and reinforce to her where gluten may be hiding. I know she will find her way, but I am hoping she does not let it get her down. I try to keep things as upbeat as possible and to let her know she will get the hang of it. She will just be learning alot along the way. I will also be discussing with her your suggestion of a meeting with the dining facility. I really don't think she would be happy leaving the dorm because that is where all the freshman reside. If I were able to get her into a suite she would be with upper classman. She may be okay with that idea. It is another option I will offer her although I suspect for now she will want to stay put because she has made some nice friends where she is. Thanks again for your suggestions :)

I would add only that maybe you could get her a hot plate so she can boil eggs. If you put a splash of vinegar in with your eggs with the boiling water it makes them easier to peel too.

Link to comment
Share on other sites
wildwood Apprentice
I would add only that maybe you could get her a hot plate so she can boil eggs. If you put a splash of vinegar in with your eggs with the boiling water it makes them easier to peel too.

She is not allowed to have a hot plate in the freshman dorms, but I will remember this for next year. Thanks

Link to comment
Share on other sites
WW340 Rookie

I use the Classico sauces. I use the same sauce for pizzas also. It is easy to make your own pizza with sauce, meat and cheese.

I also suggest you check into food tek gluten free products. These are microwave items that cook in just a minute or two and you only have to add water.

I love the chocolate cake. I use the pizza crust for hot dogs and pizza. I use the bread all the time. The items do not come out pretty, but they fill the gap for me. The hamburger buns are good, too. As with most gluten free breads, it is better toasted, but quite palitable without toasting. I think it is better than any of the store bought gluten free breads.

The first package comes with measuring cup and forms. You then just order the refills which are less expensive. There are multiple servings in each package.

You can order direct or from Amazon.

Open Original Shared Link

At least with these I can make a quick sandwich, hot dog, or hamburger. Like a lot of gluten free things, the longer you have been without, the better they taste.

Link to comment
Share on other sites
yeasty Newbie

Although this is a UK article, there are some excellent ideas in how to live safely gluten free in a shared dorm at university:

Open Original Shared Link

Link to comment
Share on other sites
celiac mom Newbie

My son is also a freshman in college, but has been diagnosed with celiac for 4 years. He loves the tacquitos by Delimex- chicken- they are gluten free. We bought him a refrigerator with a bigger freezer knowing that he would need meals in case the dining hall was a bust. He also eats alot of nachos with corn tortilla chips and cheese. Amy's makes a very good rice pasta mac and cheese and also rice crust pizza, but she will need a bigger freezer for that. Good luck- it is tough in the beginning but does get easier.

Link to comment
Share on other sites
wildwood Apprentice

Thanks for all of your suggestions and resource recommendations. My daughter tried Amy's gluten-free mac & cheese this weekend and did enjoy it. I made some chili and cornbread for her freezer. She actually liked the gluten-free cornbread better than the way I used to make it. My mother purchased her a microwave popcorn popper and she is absolutely thrilled! She is doing much better with her new diet. I am proud of her. I will be experimenting with some of the other suggestions some of you have given and next time I go to to see her, I will stock her freezer (her very small freezer :)) with some more homecooked food. There is a Wegman's in the city where she goes to school so I advised her to go there when she has room in her freezer again because they have a small, but decent selection of gluten-free frozen entrees as well as some other gluten-free products. I am also sending her packages of different products to try so we can figure out which ones she likes and what works the best for her. This forum has been an invaluable source of information and advice. Thanks to all of you for your help.

Link to comment
Share on other sites
CeliacMom2008 Enthusiast

I'm sending you and your daughter hugs. My son is 9 and I've already worried enough about college for a lifetime! My hubby reminds me that by the time our son is in college there will have been a great deal of changes (hopefully improvements) and my worrying is very premature. I'm still in the hovering stage where I think my mother and I are the only ones capable of feeding him! ;) I have visions of me making trips to college with food and gluten-free beer! I can hear it now "Who's gonna make the next beer run?' "Oh Mom's got this one!" :lol:

Good luck to you and your daughter! Freshman year is challenging enough without having to worry about what your next meal might be. More hugs...

Link to comment
Share on other sites
Erin Elaine Newbie

I don't know if anyone mentioned this, but Amy's pasta sauces are (I think) all gluten free. Check the label though. Did you buy her the Gluten Free shopping guide? Open Original Shared Link. That's how I learned what to eat when I got diagnosed.

I can only imagine how bad the cross contamination might be in a dorm kitchen. For example, are they cooking the gluten free pasta in the same water as the regular pasta? My suggestion is to set up a meeting with the university and the chef at her dorm kitchen to talk about cross contamination.

I really feel for her. I didn't know I had celiac when I was in college and I'm sure that must be hard. But the alternative is that she found out now. I have major bone loss due to malabsorbtion and I'm only 28 so hopefully she can avoid those problems.

Good luck!

Link to comment
Share on other sites
wildwood Apprentice
I don't know if anyone mentioned this, but Amy's pasta sauces are (I think) all gluten free. Check the label though. Did you buy her the Gluten Free shopping guide? <a href="Open Original Shared Link Advertisement/Gluten-Free-Grocery-Shopping-Guide-2008-2009/dp/0979409411" target="external ugc nofollow">Open Original Shared Link Advertisement/Gluten-Free-Grocery-...9/dp/0979409411</a>. That's how I learned what to eat when I got diagnosed.

I can only imagine how bad the cross contamination might be in a dorm kitchen. For example, are they cooking the gluten free pasta in the same water as the regular pasta? My suggestion is to set up a meeting with the university and the chef at her dorm kitchen to talk about cross contamination.

I really feel for her. I didn't know I had celiac when I was in college and I'm sure that must be hard. But the alternative is that she found out now. I have major bone loss due to malabsorbtion and I'm only 28 so hopefully she can avoid those problems.

Good luck!

Thanks Erin Elaine (my daughter's middle name is Elaine also :) ) I have not purchased a gluten free shopping guide for her yet. She is not in a position to shop too much. I will keep that in mind when she does start to do her own shopping. She has been very good about asking how her food is prepared so I think she has the cross contamination issue down to a minimum although I don't think in a cafeteria setting it will ever be 100% safe.

I do feel grateful that she found out she has celiac disease early on and she is determined to be and remain gluten free. She has not had any bone loss that I know of. I had her vitamin and mineral levels checked and she seems to be okay in all areas. She does have DH and has experienced neuropathy. Both are subsiding now that she has eliminated gluten from her diet. From what I understand it will probably take a very long time for the DH to resolve.

Thanks for your response and I wish you the best.......

Link to comment
Share on other sites
wildwood Apprentice
I'm sending you and your daughter hugs. My son is 9 and I've already worried enough about college for a lifetime! My hubby reminds me that by the time our son is in college there will have been a great deal of changes (hopefully improvements) and my worrying is very premature. I'm still in the hovering stage where I think my mother and I are the only ones capable of feeding him! ;) I have visions of me making trips to college with food and gluten-free beer! I can hear it now "Who's gonna make the next beer run?' "Oh Mom's got this one!" :lol:

Good luck to you and your daughter! Freshman year is challenging enough without having to worry about what your next meal might be. More hugs...

Thank you for your kindness. I wish you and your family the best also. As a mom, I don't think you ever outgrow the hovering stage :lol:

She is doing very well and seems to have things as under control as she can. She has taken this all in stride and seems to be doing very well. She amazes me every day!!!

Link to comment
Share on other sites
Erin Elaine Newbie

I never developed DH. I did have some neuopathy in my fingers, but it went away. I would still think about getting a bone density test for your daughter. My vitamin levels and all other tests are normal and I only found out about the bone loss by accident. The annoying thing was, after I was diagnosed I saw my childhood doctor for the first time in years and he pulled out an X ray from when I got into a car accident at 19. He said: you know, this shows your bones were underdeveloped even back then. I thought, wow that would have been great to know 8 years ago!

Your daughter is lucky to have a mom to help her. Those of us who find out when we are older end up on our own!

Best wishes to you both.

Link to comment
Share on other sites
  • 1 month later...
photobabe42 Newbie

I used to boil eggs in a hot pot and those were allowed. The school where I went had an office of Institutional Equity. They helped me get a PRIMO single room close to the bathroom when I was diagnosed with Crohn's Disease. I had a friend who was Celiac and he got a key to the kitchen in our dorm and we cooked all the time. We also had some pre-med friends who loved to ask us questions. Really, all our friends were very supportive. You can send her care packages also from the Gluten Free Mall here (ok shameless plug...). I also had some one-on-one meetings with one of the food service directors, in exchange for drumming up support for dining hall focus groups :) My school had plenty of vegetarians and vegans and the food service is a lot better than it used to be as far as offerings for folks with allergies or certain dietary needs. Best of luck to your daughter. Being sick in college is no fun, I hope she can surround herself with intelligent and open-minded people!

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - MomofGF replied to MomofGF's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Not sure if this is Celiac or just a gluten-free intolerance

    2. - trents replied to damnyoureyes's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Elevated B12

    3. - StrongerThanCeliac posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      2 Separate Glutenings - Recovery Timeline?

    4. - damnyoureyes posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Elevated B12


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,711
    • Most Online (within 30 mins)
      7,748

    Jane dawson
    Newest Member
    Jane dawson
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • MomofGF
      @trents @Scott Adams I want to thank you both very much for putting me at ease with your replies. I am making an apt with her doctor this week but all my worries of it being more have dissipated. This is all new to us and I think she originally had it from 2021. She lost 20 lbs because it felt like whatever she ate caused a crazy reaction. She was bloated, would have severe diarrhea and/or vomiting and it was a year of testing and nothing coming out of it. However celiac was never a thing that she was tested for. Also I just realized, my dad had a bathroom time when he would come home after night shift to poop. It was diarrhea every time and it never occurred to me that maybe it could be a reaction🤷‍♀️🤷‍♀️ I am going to ask my mom why that was a thing. He is dead now, so testing is not an option.  These answers really helped me out and I truly appreciate your help ❤️❤️
    • trents
      Welcome to the forum, @damnyoureyes! Your elevated serum B12 levels are because you supplemented with B12 and would not be due to malabsorption from celiac disease. Malabsorption from celiac disease would give the opposite effect. Were you ever tested for B12 serum levels before you started supplementing with B12? I understand you were trying to find a solution for the fatigue you were experiencing but there can be many causes for fatigue besides B12 deficiency.  Low vitamin D serum levels is a chronic problem in our modern world as most people live and work indoors. And, of course, if you live in a climate where there aren't many sunny days this is exacerbated. But certainly, low serum D levels is a classic symptom of celiac disease as well. There are specific antibody tests for celiac disease and I suggest if you suspect you have this condition you request testing from your physician. You would need to be eating at least 10g of gluten daily for several weeks before the blood draw. That's the amount of gluten found in approximately 4-6 slices of wheat bread. If you decide to pursue celiac antibody testing, make sure you request your physician includes the "total IGA" test order along with the "tTG-IGA". Total IGA testing checks for IGA deficiency. If you are IGA deficient it will skew other IGA tests down toward the negative range and can create false negatives.  
    • StrongerThanCeliac
      Hi, I had a lot of alcohol last week. And I believe I was glutened on Monday (10/28) and Wednesday (10/30). I was drunk most of the time during this period - so it must’ve been a delayed reaction. When I stopped Thursday (10/31), I noticed the gut pain and it has gotten worse. Even today (11/3), I’m having celiac symptoms. My friend had made turkey and potatoes. He said it was gluten-free, I was too drunk to ask more questions. Come to find out, he used great value garlic and onion powder which “may contain traces of wheat and soy.” Usually, a single glutening takes me about 6 days to recover. Do you guys think it will take longer since it was 2 separate days out of 3 or about the same?    
    • damnyoureyes
      Hi everyone, newbie here! I've never been diagnosed as celiac but have had digestive issues for most of my life - GP many years ago said it was irritable bowel syndrome, so a nice generic label for it. I've been taking B12 supplements (1000mg daily) for about 18 months now - they were prescribed after blood tests ordered due to fatigue came back low. I had my bloods done again last week because the fatigue improved slightly a few weeks after starting the supplements but has come back since, along with dizziness (I had vertigo for six months earlier this year), shortness of breath & palpitations. GP was concerned about aneamia, as it runs in my family, so she ordered full bloods & has also requested intrisic factor antibody tests to see whether I can absorb the B12 properly from tablets or whether I'd need injections. The IF test result hasn't come back yet, but my FBC came back normal except for slightly low VitD and elevated B12, so presumably anaemia isn't the cause of my symptoms. Some of the key results (as far as I understand them!) are... *elevated* Serum vitamin B12: 1131 ng/L (Normal range: 187 to 883) *normal* Serum folate: 3.7 ug/L (Normal range: 3.1 to 20.5) *normal* Serum ferritin: 26 ng/mL (Normal range: 20 to 235) *normal* Serum iron level: 13.9 umol/L (Normal range: 9.0 to 30.4) Maybe it's a bit random that I'm asking about this here, but I'm trying to get as much info as I can before I go back to my GP to discuss the results (I'm due an ECG next week to check for any heart issues first) and celiac disease is something that has cropped up a few times in my research on B12, so I'm wondering whether elevated serum B12 after supplementing could be a possible symptom? Most things I've read are about B12 being low due to malabsorption, rather than being elevated, so I'm just trying to make some sense of it and figure out whether there are any tests etc that I should push for when I go back to my GP. Sorry if this didn't make any sense! (And FWIW, I eat pasta probably four times a week - white, wholewheat, spelt, but all gluten, so I'm very much on the oppostite of a gluten-free diet!) Thanks for any insights :)
    • sh00148
      Just to update you all, my daughter had her appointment and I was thoroughly impressed and satisfied. Her coeliac results were the highest possible so she only needs a further blood test, which they did there and then to confirm there’s been no lab mix up. The doctor was convinced that the constipation was a result of the coeliac and felt that she may not be impacted, just slow moving. He felt the new diet will fix the constipation among many other things. I’m so relieved! Thank you for your support.
×
×
  • Create New...