Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

First Time--help!

mialin33

By mialin33
in Coping with Celiac Disease

Recommended Posts

mialin33 Newbie
mialin33
Posted

Hi! I am a recently diagnosed Celiac and never suffered symptoms before going gluten free. I have been gluten free for about six weeks now and suspect that I have been accidentally glutened. I have had diarrhea for 4 days now and feel lethargic and just blah.............does anyone know how long this lasts??? I used to wish that I would get symptoms so I would know if I accidentally ate anything but not anymore--this is horrible! Also, does anyone know how far back I should look to try to find out what I ate? I started feeling sick on Thursday and am still not feeling well today (Monday)? Any help or advice would be so much appreciated!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted
Hi! I am a recently diagnosed Celiac and never suffered symptoms before going gluten free. I have been gluten free for about six weeks now and suspect that I have been accidentally glutened. I have had diarrhea for 4 days now and feel lethargic and just blah.............does anyone know how long this lasts??? I used to wish that I would get symptoms so I would know if I accidentally ate anything but not anymore--this is horrible! Also, does anyone know how far back I should look to try to find out what I ate? I started feeling sick on Thursday and am still not feeling well today (Monday)? Any help or advice would be so much appreciated!!!

Welcome to the Club!!! ;)

You have found a wonderful place for information and support. I can't really answer you questions because everyone reacts differently.

Have you checked your old toaster, wooden cutting boards and spoons, meds, vitamins? Gluten is very tricky and can hide everywhere, with lots of traps.

It's interesting that you were symptom free until you went gluten free. There are stages when some become more sensitive to gluten once it's removed from your diet. I was several months into the diet before I realized what "being glutened" meant. I was still healing and any food, gluten or not, would bother me.

My best advise it to continue to be diligent and give it some time. And, read, read and read from this wonderful site.

happygirl Collaborator
happygirl
Posted

Have you eaten out recently?

Immodium helps with symptoms.

sbj Rookie
sbj
Posted

Don't forget that the some of the symptoms you describe are also commonly associated with plain old food poisoning.

Diarrhea, abdominal cramps, and chills are all good indicators of food poisoning (as well as gluten intolerance). This could have been a viral food poisoning from seafood, bacterial food poisoning from meat or poultry that wasn't held at hot temperature, or even salmonella from meat, poultry, egg or dairy.

Please look back at everything you ate for the two days or so previous to the onset of symptoms - the offendor could still be present in your cupboard, fridge, or freezer. I would hate to see you suffer again by assuming this was cross-contamination or acccidental glutening when it might just as easily be some seafood in your freezer or some eggs in the fridge.

Be careful.

mialin33 Newbie
mialin33
Posted
  • Author

[Thanks so much for all of your help!!! I am still unsure of what it was--but I am feeling better now and have some good ideas about how to track it down!

loco-ladi Contributor
loco-ladi
Posted

I normally react with-in 6 hours of ingesting the "poison" and am not "back to normal" for at leat a week

As for symptoms, I didn't notice my symptoms until after going gluten-free.... I had most of them my entire life and to me that was "normal" after going gluten-free all I can say is WOW so this is really what "normal" feels like!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      6

      Celiac flare years after diagnosis

      Unless gluten exposure is happening on a regular basis, it is doubtful that blood antibodies would show up elevated in testing. It takes time for them to build up to detectable levels.
    2. Russ H
      - Russ H replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      6

      Celiac flare years after diagnosis

      HI Nancy, In your first post, you said that you were diagnosed by biopsy and blood test - this is what I was referring to: the blood test is for antibodies that are made during active disease. After a period on a strictly gluten-free diet, the antibodies return to low level. It is a good way of checking for accidental exposure if symptoms persist. If...
    3. Scott Adams
      0

      New Study Finds 1 in 10 Celiac Patients May Have Additional Autoimmune Disorders (+Video)

    4. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to Jmartes71's topic in Dermatitis Herpetiformis
      2

      Skin issues

      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr. https://my.clevelandclinic.org/health/diseases/morgellons-disease
    5. nancydrewandtheceliacclue
      - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      6

      Celiac flare years after diagnosis

      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,049
    • Most Online (within 30 mins)
      10,442
    Chris farrugia
    Newest Member
    Chris farrugia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Celiac flare years after diagnosis

      By trents · Posted

      Unless gluten exposure is happening on a regular basis, it is doubtful that blood antibodies would show up elevated in testing. It takes time for them to build up to detectable levels.
    • Russ H
      Celiac flare years after diagnosis

      By Russ H · Posted

      HI Nancy, In your first post, you said that you were diagnosed by biopsy and blood test - this is what I was referring to: the blood test is for antibodies that are made during active disease. After a period on a strictly gluten-free diet, the antibodies return to low level. It is a good way of checking for accidental exposure if symptoms persist. If you are reacting to foods that don't contain gluten, you may be reacting to something else. Alternatively, a condition called SIBO is common in people with coeliac disease, where there is an overgrowth of bacteria in the small intestine. This can be tested for with a simple breath test. The main treatment is with a course of antibiotic. Small Intestinal Bacterial Overgrowth (SIBO)
    • Aretaeus Cappadocia
      Skin issues

      By Aretaeus Cappadocia · Posted

      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

      By nancydrewandtheceliacclue · Posted

      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      Celiac flare years after diagnosis

      By trents · Posted

      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
×
×
  • Create New...