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Nic

Celiac Disease And Migraines

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Hi, I am a mother of a celiac son and I always test negative for celiac although I know I carry the gene as my father has it as well as my son. I recently was tested due to almost daily stomach pain and now constipation. I have always been more on the constipated side but now need to take laxatives frequently to help (my son's symptoms have always been constipation). Within the past year I started getting optical migraines (the eye part of the migraine without the head ache). Now it is so frequent that I am having eye trouble everyday and even more recently I am getting the head ache with it. I went to my GP who said they were optical migraines and suggested due to the stomach problems to go gluten free even though I test negative (which I have not done yet, not sure what I am waiting for). I read up on migraines and celiac and it seems like some study show a link. Has anyone ever heard of this or looked into it?

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For some of us there is definately a link. I haven't had a migraine since I went gluten-free....unless I get glutened. Gluten can be a neurotoxin for us and for some the neuro issues are present even before the gut stuff.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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I've suffered from migraines my entire life (first one at age 10). I would get them in clusters 2 to 3 times a month. After going Gluten free my migraines disappeared. If I get glutened one of my first signs is a headache.


Transplanted Southerner in Sunny So.Cal.
Misdiagnosed 47 years
Diagnosed Gluten Intollerent Aug. 22. '08
Blood Tests Weak Positive to Negative probably due to low Gluten intake for 8 weeks before testing.
Opted not to have Biopsy.
Positive DH testing Oct. 30,'08
Gluten free since Oct. 28, '08

Diagnosed with Fibromyalgia May 10,'13

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I never used to get headaches at all, but growing up both my mom and my older sister would get horrible migraines. After going gluten free (something I decided to do on my own even though in previous years blood tests have been negative) I've noticed that a headache (not a migraine though) is often one of the first reactions I have after being glutened! This is usually preceded by stomach pains and followed by extreme - want to put my head on my desk and sleep - lethargy, and brain fog. Neither my mom or my sister have been tested but my mom tried the diet when I started (which was very helpful for me :)) and noticed improvements in many areas. So, IMO headaches/migraine are definitely connected.

Oh! And...for any Dr. Oz fans out there..I learned from him about the Vagus nerve which runs from our brain to our stomach - http://en.wikipedia.org/wiki/Vagus_nerve. So it's not unlikely that the migraines could be connected to digestive problems...

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