Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So Sad


Betty Boop

Recommended Posts

Betty Boop Rookie

I just found out that my little two-year old grandson had a high score on test for allergies to dairy and eggs. They'll now test him for celiac disease. They think there is a high probability he'll have that, too. I'm so sad for him, even though I'm sure his parents will make everything work. I'd love to know if anyone out there has a child with celiac and allergies to dairy and eggs. and how they make life work for their child. Any tips? Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



daphniela Explorer

I don't have those allergies neither does my child, but there is an egg replacer you can find at the health food store you can use in place of eggs that you would use in any recipe. You can also use 1 tablespoon of ground flaxseed mixed with 3 tablespoons of water to replace eggs in recipes.

For milk he can have soy milk. I heard that if you are intolerant to milk there is a high probablity that he will be intolerant to soy. If so, then he can drink rice milk (check labels for gluten) or almond milk (check labels for soy)

tarnalberry Community Regular

I'm gluten and dairy free, and can go long periods of time without eating eggs. Really, there are SO MANY foods out there that are WONDERFUL. Eliminating six foods from everything we can eat (wheat, barley, rye, oats, dairy, and eggs) means that he may not eat the same things you do, but he'll still have a wide variety of wonderful flavors to explore. Perhaps you can join him exploring the "unusual" foods that one might miss out on if they stick to just "the normal". :)

Betty Boop Rookie

Thanks. That's great news. I really appreciate it.

shayesmom Rookie
I just found out that my little two-year old grandson had a high score on test for allergies to dairy and eggs. They'll now test him for celiac disease. They think there is a high probability he'll have that, too. I'm so sad for him, even though I'm sure his parents will make everything work. I'd love to know if anyone out there has a child with celiac and allergies to dairy and eggs. and how they make life work for their child. Any tips? Thanks.

My daughter is in the same boat as well. We've been gluten, dairy and egg-free for over 5 years now. And it does get much easier to deal with over time.

The toughest thing to deal with is the fact that there are very few conventional foods that are safe. And school lunches? Forget it.

That being said, I can tell you that my daughter's friends prefer my cupcakes to theirs. I use The Gluten-free Pantry Decadent Chocolate Cake mix and substitute 1 cup of coconut milk + 1 TBSP lemon juice for the milk. And I then use 1/4 cup of unsweetened applesauce for each egg. I also use half applesauce, half oil where oil is called for. In sweet baked goods, applesauce, mashed banana or any pureed fruit can replace egg. In breads and non-sweet baked goods, Ener-G egg replacer, ground flax can both work. I also add unflavored gelatin to some items to help with binding.

The "worst" meal is breakfast. I've found that some vegan recipe sites can be really helpful to find alternative ways to make breakfast items. And for "cheese", you can often use ground cashews and/or nutritional yeast to help get that "cheesy" flavor. We have taken to eating some non-traditional foods for breakfast as well. Meatloaf for breakfast? Bring it on! LOL! It may be non-traditional....but if you think about it, it's better than the majority of cereals and breakfast bars being offered at the grocery store.

There are some tasty coconut-based yogurts as well as ice cream available as well. It's all about finding the alternatives that work for your family. I highly recommend a subscription to Living Without magazine to help get you started.

Juliebove Rising Star

My daughter is not celiac but is allergic to wheat. She was allergic to dairy and eggs. Has since outgrown them but has been told not to have them over twice a week now. So when I bake and cook, I generally do not use eggs or dairy. Mostly we reserve those things for meals out.

We use rice cheese for sandwiches and pizza. We get the vegan kind. It is soy free and dairy free. Not all rice cheese is dairy free so you have to check. For Parmesan we use a substitue from Allergy Foods. I get it online.

It is true that there is no safe school lunch. And other school things can be a pain. Seems there is always some occasion where there is food and she can't eat it.

juliasmith Newbie

This Might help you

Allowed Foods

amaranth

arrowroot

buckwheat

cassava

corn

flax

Indian rice grass

Job


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Betty Boop Rookie

Thanks so much, all of you. This really helps. I'll pass this info on to his parents. :)

Amyleigh0007 Enthusiast

Is it possible for your grandson to go on a rotation diet for the food allergies? That way he will still get to eat those problems foods, but on a rotation basis. My son is on a rotation diet for his food allergies and it is working fine. He eats the offending food every 3 or 4 days.

Mother of Jibril Enthusiast
I just found out that my little two-year old grandson had a high score on test for allergies to dairy and eggs. They'll now test him for celiac disease. They think there is a high probability he'll have that, too. I'm so sad for him, even though I'm sure his parents will make everything work. I'd love to know if anyone out there has a child with celiac and allergies to dairy and eggs. and how they make life work for their child. Any tips? Thanks.

What kind of symptoms does your grandson get when he eats those foods? If he had a "high score" on an allergy test then I'm guessing it was RAST (a blood test), but his parents need to consider his symptoms before deciding how careful they need to be. Just to give you an example...

My son is intolerant to dairy and has IgE allergies to peanuts and corn. Peanuts will send him into anaphylaxis (hives, vomiting, wheezing, etc...), so we're very, VERY strict about avoiding them. A taste of peanuts could mean a trip to the ER. Corn, on the other hand, is a totally different story. Corn gives him eczema and digestive symptoms, but it's not a life-threatening allergy. If he gets a little taste now and then, no big deal. His pediatric allergist told us that researchers at Tulane did a study on corn allergies recently and found that corn is very unlikely to cause anaphylaxis. So... it's a great candidate for a rotation diet (although we haven't tried that yet).

Although it caused pretty bad symptoms (eczema, vomiting, green diarrhea with streaks of blood), the dairy (casein) intolerance is something our son might actually grow out of. We're supposed to start giving him a little dairy starting at 18 months (coming up soon!) to see if he can tolerate it... the idea is that maybe his system just needed extra time to start making the appropriate enzymes. An enzyme deficiency is a LOT different from having an allergy. (BTW... we also have him off gluten as a precaution... he eats a lot of rice, meat, fruits and vegetables :)... quite the healthy diet for a little boy.)

Anyway... good luck! It might not be as hard as you think to change your grandson's diet. In my experience, after a few months it becomes second nature.

  • 3 weeks later...
juliasmith Newbie
Thanks so much, all of you. This really helps. I'll pass this info on to his parents. :)

ur welcome betty :)

Open Original Shared Link | Open Original Shared Link

kiwi-mum Newbie

My 3 yr old DD is anaphylactic to eggs and nuts, and minimally to wheat, dairy, pork, beef and the cacao bean - the later is included minimally in her diet as the reaction so far has been limited to bad excema - so far. Be careful because allergy testing does not indicate the level of reaction because that next or the 10th exposure might be worse than excema - my DD is attached at the hip to her epi pen and antihistamine for that reason.

anyway - we have just completed the blood test today for Celiac - while I can't begin to imagine adding in such a major to the restricted diet she already has, I never thought I would have survived this far and as daunting as going gluten free would be I know we can get through it.

It is really important to read read read labels on food everytime you food shop and from what I have learned the hard way - just because egg or another allergen is not in one brand doesn't mean it is not in another of the same food. Also it is important to learn what egg (and other allergens) can also be called in labelling - who would have known egg could have so many other names!!!

On a positive note - I do not know any other 3 yr old who knows such a great variety of fruit and veges even if she doens't like them all (LOL but she tried and thats whats important)

good luck - knowledge is power and what helps me sleep better at night :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,730
    • Most Online (within 30 mins)
      7,748

    Steve-n-Portland
    Newest Member
    Steve-n-Portland
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Marie70
      Wow!! Scott, Trent and Christiana thank you so much for your fast replies!! The information you have shared with me has helped me tremendously.   Thank you for all the articles.  I appreciate you all so much!! I’ll keep you posted in this post.  I will encourage her to get tested.  I feel a little better!
    • DayaInTheSun
      It was gradual, just not being able to catch my breathe like I always had to take a deep breathe even taking a few steps I would be winded.
    • cristiana
      Hi Marie Welcome to the forum. I am so sorry your daughter is pointing the finger at you like this.   I am afraid children of any age can be very cruel to their parents - I certainly look back at some of the things I said to my mother and father in the past, and wish I could unsay them.  Sometimes people just need a safe place to vent, and unfortunately having a go at one's parents is the all too easy option.  If she is anything like me, she will regret what she says one day.  (Oh... if only I had the chance rewind the clock!) I just wanted to add one more thing to Trent's and Scott's excellent posts and that is regarding diet:  I have to say, not one person  (my nutritionist, my gastroenterologist or GP) has EVER suggested that a poor diet was the cause of my coeliac disease.    In all the various clinics I have attended these past nearly 12 years no-one has ever asked if I was brought up on processed food, or questioned if I eat 5 fruit and veg a day.  Sure, unfortunately I am only too well aware that I could do a lot better with my diet and it's a constant challenge for me not to give into what I like (unfortunately I've always had a sweet tooth).   But I know some super healthy 10 fruit and veg a day types who still got coeliac disease, and equally, a lot of people who eat all the wrong stuff and they still have cast iron stomachs. Do encourage her to get checked though - it may be that she hasn't got coeliac disease at all. Come back to us if you need any more support through the process. Cristiana
    • trents
      Welcome to the forum, @Marie70! The first thing to know is that celiac disease has a genetic base. The two main genes that have been identified as providing the potential to develop celiac disease are HLA-DQ2 and HLA-DQ8. About 40% of  the general population carries one or both of these genes. However, only about 1% of the general population ever develops celiac disease. So, we know that in addition to possessing the genetic potential to develop celiac disease, there has to be some triggering environmental or medical "stress" factor (or factors) that switches the gene or genes on such that they are awakened from their latent condition and become active. What may be the triggering factor (or factors) is the subject of much debate. Here is an article that discusses this subject: Second, what will your daughter have to say if her testing for celiac disease is negative? She may have to add crow to her diet. Third, and this is what I really want to focus on because my wife and I are dealing with something similar in our relationship with our own adult daughter: the real problem is not whatever shortcomings you, as the family cook, may have had when providing meals, the real problem is with your daughter's heart/soul/attitude. If it turns out to be true that she has celiac disease, it is likely she would have developed the condition sooner or later even if her diet had been healthier while growing up. She is angry about the prospect of having to deal with the dietary and social limitations that having celiac disease would impose upon her. She doesn't want to face up to the fact that this may be a new reality that will dramatically changer her life and she is looking for someone or something to blame. And she has conveniently turned her wrath on you rather than saying to herself, "Okay, this is what it is. Now what can I do to make adjustments in order to with it the best way I can?"  When faced with a life-changing reality, people will either accept it for what it is, make adjustments and move on or they will become angry and look for something or someone to blame and get stuck. For now, at least, your daughter has chosen the latter option. Don't let her problem destroy both of you.
    • Scott Adams
      It sounds like you’re carrying a lot of guilt, but please know that you didn’t cause your daughter’s potential celiac disease or your son’s Crohn’s. These conditions have strong genetic components, and while diet can influence symptoms, it does not cause autoimmune diseases. You did the best you could with the knowledge you had at the time, and no parent is perfect. Your daughter’s frustration is understandable, but it’s likely coming from a place of fear and uncertainty rather than true blame. Let her get tested, and if she does have celiac disease, you can support her moving forward. Instead of focusing on guilt, try shifting the conversation toward healing and learning together. You’re not alone, and you don’t deserve to carry this weight on your own. This article might be helpful. She needs to be screened for celiac disease before she can be sure that she has it. Another approach not discussed in the article is a genetic test for celiac disease, which she could do without eating gluten.      
×
×
  • Create New...