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Everything posted by Amyleigh0007

  1. My son was only 41 pounds when he was diagnosed at age 8. He is now 10 and weighs 57 pounds. He gained weight very quickly at first and we were thrilled. He hasn't gained any weight for a few months now. He is still small for his age but it's not so painfully obvious now.
  2. I get leg pain when I eat gluten. It's more like restless leg symdrome. They ache (especially at night) and I feel like I must move them in order to feel better. I was glutenated last week and my legs have been bothering me for the past few nights.
  3. Wow! I haven't posted in a looong time and things have changed! Anyway, does anyone know the status of Hungry Jack regular syrup? The ingredients look okay and Smuckers is a brand that will disclose gluten but I wanted to see if anyone had directly contacted the company and gotten a positive answer. Thanks!
  4. My son has not gained any weight for months now. In fact, he has lost a few pounds so I can sympathize. He gained weight quickly in the first year. Now that we are at 19 months gluten free the growth has stopped and he is regressing. I am so worried. When he had his one year follow up test he was not making antibodies. We haven't changed anything in his diet so I'm not sure what is going on.
  5. My son was the first person ever to be diagnosed with Celiac on both sides of the family. I didn't even know what Celiac was prior to his diagnosis. My husband also questioned my symptoms and said my issues might be sympathy pains for our son. I have always had minor stomach problems but it wasn't until my 2nd C-section in August of 07 that my minor problems blossomed into major, life altering problems. I had no idea what was causing my sudden onset of problems. Everyone, including myself, chalked it up to stress. I began making a connection between feeling horrid after eating whole wheat pasta but I really didn't think much more about it. When my son was diagnosed in March of 08 I finally realized that I might have Celiac too and sure enough I do! I am certain that my 2nd C-section was my trigger. Genetic testing was so helpful in my situation since I had been gluten free for a year and was not going to undergo a challenge.
  6. I finally got a doctor's diagnosis because of my genetic testing done through Entrolab. My doctor did not take me seriously when I first went in for the blood test. It was one year later with my gentic testing in hand did he sit and really listen to me. When he found out I had been gluten free for one year with fantastic results on top of having one Celiac gene and one gluten sensitivity gene he diagnosed me with Celiac. Since your insurance will pay for the genetic testing I would go ahead and have it done. You do not need to be eating gluten for it to be accurate. But, if you plan on having the blood test done to test for Celiac you should begin eating gluten again, at least for a few months. Three months gluten free is long enough for your body to begin to heal and you might not get accurate results.
  7. My son is allergic to egg whites. His doctor told me that he should get the flu shot because the flu would be much worse for him then the reaction he would have from the shot. He doesn't have life threatning reactions, he will get heartburn, a stomach ache, and he suffers from EE. But, the years he did get the flu shot (before we knew of the allergy) he still got the flu so I am on the fence still.
  8. When I received my Enterolab results it came with an easy to read explanation of what my results meant. They also have a phone number you can call with questions. When I called I spoke to a lady who seemed very knowledgable.
  9. Yes! I have seen them at Target, Walmart, and Toys R Us.
  10. My son's bottom itched all the time! When I say bottom I mean his anal area. Poor kid, it drove him crazy. When we eliminated gluten and went on the rotation diet for the food allergies the itching went away. He had huge constipation problems too. He would have a BM once a week. Your daughter may suffer from food allergies and that may cause the itching, like in my son's case. It wouldn't hurt to have your doctor or allergist run food allergy testing.
  11. Are the miniatures the smallest ones that come in a bag mixed with other kinds? Does anyone know about the small Hershey bars that aren't as small as the mini's? I hope someone knows what I am talking about! I can't think of another way to describe them!
  12. The cupcake maker that is similiar to the easy bake oven offers gluten free mixes. At least, they did last Christmas when I was looking at them. All the icings too were gluten free.
  13. Thanks Janet for the link. I should have put it in my original post. The food is really good. My son is picky and he loved what we have had so far. I wish I would have known about this food box sooner!
  14. I picked up my allergen free food box from Angel Food Ministries yesterday. This was my first time ordering it and I was a bit apprehensive. It included one pound each of frozen chicken nuggets, chicken fingers, chicken patties, and steak fingers. It also included dry mixes of vanilla cake, muffins, pancakes/waffles, and cobbler topping. All that for $35! We had the chicken nuggets and vanilla cake last night and my kids really liked it! I highly recommend it, especially for those that are newly diagnosed and are a bit lost as to what to cook. All the food is free of the top allergens, including gluten. There are no income restrictions. You can order as many boxes as you want. You can place your order online and pick it up a few weeks later at the nearest location (usually a church). I wish I would have known about this sooner! The website is www.angelfoodministries.com.
  15. The October issue of Vegetarian Times has lots of info on eating gluten free. It even has a completely gluten free kid's birthday party menu.
  16. I have noticed in the last few months that my feet and hands are swollen. I even talked to my mom about it. My dad has heart problems and one of the first symptoms he had was swelling so she naturally freaked out about my swelling. However, I'm only 34 so I don't think it's my heart. I think I might be dehydrated.
  17. I have two tattoos, one on my ankle and one on my foot. The one on my ankle occasionally itches and swells up. I have no idea why. It is very random. I haven't had any problems with the one on my foot.
  18. My doctor accepted my enterolab gene test results. He brushed me off a year ago when my blood test was negative but when I recently went back to him with my enterolab report he was fascinated. He said he would diagnose me based on the gene results, a positive response to the diet, and the fact my son has biopsy proven Celiac.
  19. I know of several people who order the gluten free/allergy free food boxes even though they are not considered "low income". Gluten free food is expensive for everyone, especially the frozen convenient foods. Those are so nice to have on hand when cooking from scratch is not an option. I think I am going to place an order myself! Thanks for the link!
  20. This year for social studies my son's class switches with the other fourth grade class which means he has a different teacher. This woman has been teaching for 30 years and is set in her ways. She is not flexible in any way. One of the projects she has my son's class working on is a cookie in the shape of our state. The kids make the cookies then use decorations to designate landmarks. Sure, it's a fun project, but when you have a child with severe food restrictions in your class you have to be flexible! My son has an IHP (Individualized Health Plan- like a 504 Plan) and one of the accomodations is for teachers to let me know in advance of projects that require food so I can get an alternate for my son. This teacher did not do this! I only found out about the project because my son told me! Now I have to scramble to find sugar cookie dough, specific icing and decorations that will match the rest of the class. We live in a small town and that means I must travel 90 minutes round trip to go to a store that sells gluten free sugar cookie dough. When I confronted this teacher about all of this she still didn't get it! She said she would provide all the icing and decorations but when I explained to her that they must be gluten free and not come in contact with the other student's gluten filled cookies she acted like I was overreacting! I am outraged. I am so upset I might go to our principal (I teach in this school too). She is not following the IHP which, by law, she must follow. Okay, deep breath, end of vent.
  21. My two-year-old thinks dog food is a tasty treat. We had to move the dog dish to the garage so she would stay out of it. Dog food is loaded with wheat. Could your daughter be into the pet food?
  22. This isn't weird but it is stupid. Last Christmas I ate handful after handful of a delicious chocolate and peanut butter candy that was on the desk of a co worker. I assumed they were safe. I got very, very sick and when I checked out a bag of the candy at Walmart one of the first ingredients was wheat flour. I no longer assume!!
  23. For the past several months I have been having the same dream. I eat loads of gluten filled food then suddenly realize I am eating food that is going to make me sick. I then get a feeling of dread and I wake up. Does anyone else have dreams like that? I am not tempted at all by off limits food so I'm not sure why I keep having this dream.
  24. Search this forum for the specifics. McDonald's fries have been a hot topic for a long time but the end result is gluten free.
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