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Connecting The Dots... Gallbladder, Hysterectomy And Fibromyalgia


ladydianab

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ladydianab Newbie

:huh: Over the last 10 yrs I have had my gallbladder out, then after a few years of several abdominal pain I had a hysterectomy. Within one year of my hysterectomy I started having severe aches and pains. I had all the tests and was dx as bulging disc and osteo arthritis. None of the treatments for the pain had any effect. I did some research and wondered if it might be fibromyalgia. The doctor said probably and prescribed amitryptaline. It works better than the other scripts. Then I had a friend talk about gluten sensitivity. I had never heard of that before.

I again, did my research. There seems to be a connection between all that I have gone through. I haven't had a lot of research from my doctor, he did a blood test and said that it was not celiacs. At the time I did not put gluten and celiacs together so I didn't even ask for further information.

I have been through the wringer with exams and tests and am paying on my hysto surgery and the various stuff for the fibro so more testing is not what I want to do.

I guess what I am asking is this the kind of thing that points to gluten intolerence? I am so tired of being tired, and feeling like I have the flu all the time. I am afraid if I complain they will find something else to take out!!! Not really but man, if I could have avoided some of all this by cutting out gluten...

So does anyone have a similar experience? Any suggestions?

Thanks in advance,

Diana


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Ahorsesoul Enthusiast

Raises three hands here. I didn't let them take out my gallbladder but they wanted to do so.

NE Mom Apprentice

Hi Diana,

I was dx'd with Fibro two years. Woke up on New Year's day exhausted and pain in my legs & arms. Symptom list grew over the next few weeks and became more severe.

This year we found out our daughter has severe issues with her immune system and multiple food allergies. I have spent a lot of time researching her conditions and decided to look into connections between food allergies & Fibro. I know that dairy aggrevates my tummy, ear, throat, and jaw. So, like you I'm wondering if it is gluten that is causing my Fibro-I'm not one of those people who just excepts what they are given but looks for the reason why.

Earlier this week I had a full celiac panel done including Anti Gliadin IgG which if elevated can indicate a gluten intolerance. I haven't received the results yet.

Have you removed gluten from your diet & seen any improvements?

Sam

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    • Russ H
      Hello, and welcome to the forum. Getting use to gluten-free eating is a struggle, but it is worth it. Your daughter should begin to feel much better and the fatigue will fade but it can take some time. I am sure you will get lots of suggestions from forum members - we have a few from the UK. I am a bit pushed for time just now but will come back later. Russ
    • Ginarwebb
      thank you so much for this information .. if I'm reading the results correctly I believe the range was  <15.0 Antibody not detected > or = 15.0 Antibody detected
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    • BelleDeJour
      Thank you so much @suek54 How are you doing today? I spoke too soon yesterday. Something (I can only think gluten-free sweets or a can of soft drink) set me off yesterday. Had a bath, applied some cream, still itching so applied some steroid and was awake until 3am. It's so frustrating. Always 2 steps forward, 1 step back. I am at work now and going to play it very much on the very safe side with food for the next few days.  My derm appointment is less than a week away. I will update on here because I do feel it important to help others. 
    • Scott Adams
      I’m sorry you’re going through all of this. It sounds very stressful, especially when you feel that your symptoms are not being taken seriously. Until you are seen next week, it may help to keep the focus very practical: take clear photos of the skin sores, write down a timeline of symptoms, list all medicines, eye drops, supplements, implants/leak history, and any test results, and bring that to the dermatologist. If there is drainage, spreading redness, fever, worsening pain, eye involvement, or signs of infection, that needs prompt medical care. I would be cautious about assuming parasites or staph without testing, and also cautious with new supplements or putting vitamin C directly on sores, since irritated skin can get worse. A dermatologist can culture lesions, biopsy if needed, and refer to infectious disease if the findings point that way. On the celiac side, I understand your concern for your son, but being HLA-DQ2 positive does not by itself mean he has celiac disease; it means he has a genetic risk. If he is eating gluten now, this is actually the best time for proper celiac blood testing before he tries a gluten-free diet. His symptoms, weight, congestion, and family history are worth discussing with a gastroenterologist, but he should not be told he has celiac based only on HLA status. For your own care, try to keep pushing for objective testing and clear documentation in your records, because that is often what gets doctors to take the next step.
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