Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doctor In Oklahoma City?


GWB

Recommended Posts

GWB Newbie

I had a Celiac Sprue test done by my GI doctor and he said it came back negative. He said it's IBS but I don't think so. I've been in constant pain for two months now. I have lyme disease and many lyme patients are gluten intolerant.

Is this test 100% accurate?

Anyone know of a good GI doctor (or any doctor) in OKC that knows about Celiac disease?

Thanks!

Gary


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ivyblaze Newbie
I had a Celiac Sprue test done by my GI doctor and he said it came back negative. He said it's IBS but I don't think so. I've been in constant pain for two months now. I have lyme disease and many lyme patients are gluten intolerant.

Is this test 100% accurate?

Anyone know of a good GI doctor (or any doctor) in OKC that knows about Celiac disease?

Thanks!

Gary

Hi Gary! I'm from Norman so it is nice to see others from Oklahoma. I am new to this as well I wish I could be of more help with doctors and such but I did want to say hi.

beijing Newbie
I had a Celiac Sprue test done by my GI doctor and he said it came back negative. He said it's IBS but I don't think so. I've been in constant pain for two months now. I have lyme disease and many lyme patients are gluten intolerant.

Is this test 100% accurate?

Anyone know of a good GI doctor (or any doctor) in OKC that knows about Celiac disease?

Thanks!

Gary

Hi Gary Im from okc too, im only 3 weeks in to gluten free, i went to the dds they also told me it was ibs, they pretty much blew me off, ilm on the same mission right now trying to find a doc...good luck ill let u know if i find someone

  • 5 months later...
mayfield Newbie

Hi Gary Im from okc too, im only 3 weeks in to gluten free, i went to the dds they also told me it was ibs, they pretty much blew me off, ilm on the same mission right now trying to find a doc...good luck ill let u know if i find someone

I am from a small rural town south of okc, and I am looking for a good doctor knowledgable about celiac. I visited by family doctor today and got nowhere. Have you been successful in your search for a good doctor in OK?

  • 2 months later...
AlysiaGF Newbie

I had a Celiac Sprue test done by my GI doctor and he said it came back negative. He said it's IBS but I don't think so. I've been in constant pain for two months now. I have lyme disease and many lyme patients are gluten intolerant.

Is this test 100% accurate?

Anyone know of a good GI doctor (or any doctor) in OKC that knows about Celiac disease?

Thanks!

Gary

I am also looking for a good dr in the central OK area. My GI doctor did a biopsy suspecting Chron's but it came back with Celiac. My blood test was negative, and from what I have read there is a change of negative blood tests and if Celiac is still suspected then they should do a biopsy. However you should talk to your dr to see if you chould be gluten free or if you need to still consume gluten in order to get accurate test results.

While my dr seem to be pretty good and diagonising, I am having issues with communication. His nurse called to tell me that biopsy showed Celiac, didnt give me any other information and that was it. I dont see the dr until Sept 15, so I am a little upset that I have to naviagte this on my own for now.

Good luck to you all!

Alysia

  • 1 year later...
lavendaar Newbie

I am also looking for a good dr in the central OK area. My GI doctor did a biopsy suspecting Chron's but it came back with Celiac. My blood test was negative, and from what I have read there is a change of negative blood tests and if Celiac is still suspected then they should do a biopsy. However you should talk to your dr to see if you chould be gluten free or if you need to still consume gluten in order to get accurate test results.

While my dr seem to be pretty good and diagonising, I am having issues with communication. His nurse called to tell me that biopsy showed Celiac, didnt give me any other information and that was it. I dont see the dr until Sept 15, so I am a little upset that I have to naviagte this on my own for now.

Good luck to you all!

Alysia

did you every find anyone? and who was your dr? that sounds about like our experience. i'd really like to be able to find someone who is knowledgeable on this to help us navigate this!

  • 1 month later...
Stutzriem Newbie

I'm in same boat in Norman! I wonder how many of us there are.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Stutzriem Newbie

There has to be a physician somewhere on the OKC area familiar with celiac disease / gluten intolerance and nutritional issues related to these disease processes. I am 49 and have had severe problems off and on depending on my diet. I've been gluten free for over 6 months and all the gross symptoms have resolved. However I continue with the others such as chronic fatigue and have been basically blown off with go see a psychiatrist for depression or it's IBS deal with it. The funny is I'm a psychiatric professional lol! Let me know if anyone has luck finding a physician!

  • 2 months later...
Ivyblaze Newbie

I'm in same boat in Norman! I wonder how many of us there are.

I'm from norman also. And like many of you dealing with this on my own so far. I have yet to find a dr other than my dentist willing to listen to my concerns. I am preparing to go Gluten-Free but was hoping for some validation before doing so. Although, I am hoping that my GYN will listen even though this is not their specialty but this disease does affect fertility, hormones, cysts etc...so I am hoping he will listen and order the tests. It is good to see others here in the same area that I am in!

  • 3 weeks later...
ML5 Newbie

I am in Edmond. Looking for a doctor for our daughter, 8 years. So far we have seen our family doc, allergist, and a pediatrician recommended by a celiac friend. So confused by her symptoms that seem to be celiac after doing my own research, but docs say no (she should have diarrhea not constipation; thin not weight gain). If anyone finds a good doc in OKC please post!

  • 2 weeks later...
IrishHeart Veteran

Hey guys, just a thought. I am in NYS but I saw this thread and I know if you call the nearest Celiac Support Group and ask them--they usually have a good celiac-savvy GI doc on their advisory board.

this info may be outdated (I found it here on c.com) but there may be forwarding info.

Oklahoma

Norman - Resource

Contact: Kate Martin

Norman, OK

Tel: (405)364-5612

email: one4life@swbell.net

Internet: Open Original Shared Link

Oklahoma City - Support Group

Contact: Heather Cline

Oklahoma Celiac Sprue Support Group (CSA)

1403 Classen Drive, Oklahoma City, OK 73106

Tel: (405) 235-1715

E-mail: HMCline@aol.com

Internet: Open Original Shared Link

Hope this helps!

  • 8 months later...
schmidtok Newbie

I am in Edmond. Looking for a doctor for our daughter, 8 years. So far we have seen our family doc, allergist, and a pediatrician recommended by a celiac friend. So confused by her symptoms that seem to be celiac after doing my own research, but docs say no (she should have diarrhea not constipation; thin not weight gain). If anyone finds a good doc in OKC please post!

Did you ever find a doctor? I live in Edmond as well and by process of elimination found Dr. Susan Redwine. She is so savvy in regards to Celiac. Literally changed our lives. My kids are 8 and 6 and both have celiac

  • 7 months later...
Hensleef Newbie

We live in Oklahoma.  A couple years ago, we discovered Faye Elahi, a nutritionist located in Plano, Texas that is an authority on gut issues.  After an affordable phone consultation with Faye, we received testing kits through the mail.  UPS returned the kits and specimens to Enterolab in Dallas, Texas.  Within days, we were positively diagnosed for having gluten sensitivity and other food allergies. (We received a copy of our test results via email.)  We also learned, due to the food allergies, that we were very malnourished.  After adjusting our diets (it isn't as difficult as we first thought), and taking various supplements, we feel like different people.  

 

Faye has a couple websites that may enlighten you:  www.specialneedsnutrition.com and www.glutenfreenutritionforlife.com.  She also has an informative book that may be purchased from Amazon.com.  It's titled: Ready, Set, Eat!  Gluten-Free Nutrition Basics.  Enterolab also has an informative website at:  www.enterolab.com.   Read the Testimonials.  

 

We learned that stool testing is the most reliable type of test.  Enterolab sends the kit and the discrete return packaging directly to your home.  It is best to consult a nutritionist, such as Faye Elahi, for ordering the appropriate test and for interpreting the test results.  By the way, some insurance companies recently started covering part of these tests!!  Yippee!!  

 

I can't express how thankful we are to have found a nutritionist (Faye Elahi) that has had similar dietary issues as ours.   Not only is she knowledgeable, but she is very kind.  I'm confident she may have saved our lives.   

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,966
    • Most Online (within 30 mins)
      7,748

    Susan Allsopp
    Newest Member
    Susan Allsopp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Hello @CeliacNew, If you are Vegan to help you feel better, reconsider returning to omnivore.  Actually, since you are already on a very restrictive diet, transitioning to gluten free might be easier for you.  Read the ingredient labels, Particularly vitamin D and Choline require supplements for vegan diet because our primary source is sun, eggs and beef.  B12 also.
    • Wheatwacked
      Once you've completed testing and still don't have improvement, start a trial gluten free diet.  Looking for imprvement that may indicate Non Celiac Gluten Sensitivity, which is 10 times more prevalent than Celiac Disease. Deficiencies in vitamins B6, B12, D, and C can manifest as skin rashes.  Virtual guaranty you are deficient in vitamin D.
    • cameo674
      So those rs numbers tell researchers where the dbSNP is located in a Genome so that other reasearchers or an AI system can look in that specific spot for that Snip of information.  You can look those rs # s by pasting the numbers after rs into the lookup on this page https://www.ncbi.nlm.nih.gov/snp/ right under the Blue header bar at the top of the webpage.  Since you are not a researcher, I do not know how this will help you though.
    • cameo674
      So I posted here once before, and everyone advocated that I get into a GI doc.  I finally got into my functional health appointment on 6/16 to get my blood results evaluated and get the Gastro referral. I was told that I would be fortunate to see a gastro doctor by December, because of the number of people waiting to get in, but they did believe that I needed to see a GI doc among others.  Well, the stars aligned. I got home. I looked at MyChart and it showed an appointment available for later that same day. I never clicked so fast on an appointment time. The gastro doc ran some additional blood work based off the December values that had confirmed my daughter's suspicion that I have undiagnosed stomach issues.  Gastro has also scheduled me to get an upper endoscopy as well as a colonoscopy since it has been 8 years since my last one. She said it would rule out other concerns if I did not show Celiac per the biopsies.  Those biopsies will not occur until August 29th and like everyone here stated, Gastro wants me to keep gluten in my diet exactly as everyone suggested. To be honest, I was barely eating any gluten since I figured I would have plenty of time to do so before testing.  Doc is also looking for the cause of the low level heartburn that I have had for 30 years.  I have mentioned the heartburn to PCPs in the past and they always said take a tums or other OTC drug.  The upper endoscopy is for ruling out eosinphilic esophagitis, h. pylori, and to biopsy the duodenal bulb and second portion to confirm or exclude celiac. The colonoscopy will have random biopsies to rule out microscopic colitis. I didn't really catch her reasoning for the bloodwork.  Doc looked at the December numbers and said they were definitely concerning for Celiac.  She also said, “Hmm that’s odd; usually it’s the reverse”, but I did not catch which result made her say that. She seems very through.  She also asked why I had never bothered to see a GI before.  To be honest, I told her I just assumed that the heartburn and loose stool were a part of aging.  I have been gassy since I was born and thought constantly passing gas was normal?  Everyone I know with Celiac have horrible symptoms that cannot be attributed to other things.  They are in a lot of stomach pain.  I do not go through that.  I attribute my issues to the lactose intolerance that comes with aging, but have slowly been eliminating foods from my diet due to the heartburn or due my assumption that they did not agree with a medication that I was prescribed. I have already eliminated milk products especially high fat ones like ice cream; fats like peanut butter; acids like citrus and tomatoes; chocolate in all forms; and breads more because it is so hard to get in 100 grams of protein if I eat any foods that are not a protein.  I would not have even done the testing if my daughter had not brought up the fact that she thought I might have an undiagnosed condition since she has issues with bloating and another sibling has periodic undiagnosed stomach pain that GI docs throw pills at instead of helping.  Who knew that Bristol scale 5 and 6 were not considered normal especially multiple times a day? I watched my MIL go through basically the same bowel changes starting at 50 so to be honest, I really did think it was normal before this week's appointment.   December 2024's blood tests ran through Quest Labs were:  Deamidated Gliadin (IgA) 53.8 U/mL Above range >15.0 U/mL; Deamidated Gliadin (IgG) >250.0 U/mL Above Range >15.0 U/mL; Tissue Transglutaminase (IgA) 44.0 U/mL Above range >15.0 U/mL; Tissue Transglutaminase (IgG) <1.0 In range <15.0; Immunoglobulin A (IgA) 274 mg/dL In range 47-310 mg/dL 6/16/25 bloodwork:  Until today, I did not really know what all the four tubes of blood were for and since I did not understand the results, I got into the clinical notes to see what was ordered, but it did not exactly explain why for everything. Immunoglobulins IGG, IGA, IGM all came back in range:  IGG 1,010 mg/dL In range 600-1,714; IgA 261 mg/dL In range 66-433 mg/dL; IGM 189 mg/dL In range 45-281.  How do these numbers help with diagnosis? Google says she checked these to see if I have an ongoing infection? I do have Hashimoto's and she did say once you have one autoimmune disease others seem to follow. Celiac Associated HLD-DQ Typing: DQA1* Value: 05; DQA1*DQA11 Value: 05; DQB1* Value: 02; DQB1-DQB11 Value: 02; Celiac Gene Pairs Present Value: Yes; Celiac HLA Interpretation Value: These genes are permissive for celiac disease.  However, these genes can also be present in the normal population. Testing performed by SSOP.  So google failed me.  I think these results basically say I have genes, but everybody has these genes so this test was just to confirm that there is a vague possibility?  Maybe this test result explains why I do not have the horrible symptoms most individuals with celiac have?  I told the GI my assumption is that I am just gluten intolerant since I do not have the pain? So maybe this test explains why I have antibodies? Comprehensive Metabolic Panel: Everything was in the middle of the normal range.  Google says this just says I am metabolically healthy. Tissue Transglutaminase ABS test results – Done by the Mayo Clinic’s Labs –  T-Transglutaminase IGA AB --Value: 3.1 U/mL – Normal Value is <4.0 (negative) U/mL; Tissue Transglutaminase, IgG -- Value: 15.3 U/mL High -- Normal Value is <6.0 (Negative) U/mL – Interpretation Positive (>9.0) – These are the only labs the GI did that have been labeled Abnormal.  I am confused at how/why these came back different than the December labs? Because these numbers seem to be the opposite of what the were in December and I know I have eaten less gluten.  They were definitely measured differently and had different ranges. This must be why she said they are usually opposite? Molecular Stool Parasite Panel said I was Negative for Giardia Lamblia by PCR; Entamoeba Histolytica by PCR and Cryptosporidium Parvum/Hominis by PCR.  So at least I do not need to do a parasite cleanse like everyone on TikTok seems to be doing. So I guess, I am just really asking why the Tissue Transglutaminase numbers are different.  Was it because they were truly different tests? Is it because I have not consumed the crazy amount of gluten one is suppose to eat prior to testing? To be honest, I thought that was only for the biopsy testing. I generally only eat twice a day, and the thought of eating the equivalent of 6 slices of bread is daunting. Even in my youth, I probably only consumed the equivalent of maybe 3 slices a day. Like I said before, now I usually focus on trying to eat 60 gram of protein.  I am suppose to consume 100 grams, but have failed to succeed. I will focus on eating gluten starting in July now that I know my procedure date.
    • Scott Adams
      I agree with @trents and wiping down the spot you eat your lunch, and eating the food your brought from home should be safe for even sensitive celiacs. Gluten can jump on your food, so it would likely better better for you to continue eating where you prefer.
×
×
  • Create New...