Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does My Symptoms Seem Like Celiac?


kelleyk

Recommended Posts

kelleyk Newbie

For a life time I have been a bean pole, as an adult I could never gain wieght and stuck around 110 lbs (5' 5"). In the last year all hell has broken loose with viruses and bacterial infections, cervical displacia, hip problems, and my diarrhea problem just kept tugging along (have had diarrhea / loose stool for about 4 years now). At one point I lost 7% of my body weight unitentionally within 5 days with brain fog, rapid heart rate, perfect blood pressure went sky high and what ever blood testing they did came back negative. I kept going in to my small town clinic and they were stumped -- they even started to blame it on anxiety. About 4 weeks ago I had a right side ache so bad I drove myself to the ER when it did not go away in 4 days. They took some blood and urine and did the ab / pelvis CT scan. Everything came back normaly, what they checked for is unknown but they did say appendix okay and no kidney stones. Okay the pain finally fell down to tolerable level 3 days later but it felt like someone was pushing on my upper right quadrant and noticed I was slightly swollen. I did not go see another doctor right away for this since I had to have a LEEP done and then to the Orthopedic to figure out why I was having sciatica like pain on the right (my butt hurt, hip and thigh hurt like hell).... Will not got into the hip saga since it not relavant here. Last week I went to a new doctor and he called for a liver and pancreas function blood tests. My lipase level was elevated enough that yesterday I had to get an abdonimal sonogram done.

Since I now seem to have a pancreas problem I switched from the "gain" weight diet to a low-fat low-carb diet untill they can figure out what is going on. Yes I am still eating gluten foods.

I read somewhere that undiagnosed cealic disease can cause pancreas problems. So wondering if I should not ask my new doctor for the blood test.

PS: I have had hyperthyroidism like symptome for YEARS, yet the blood tests came back normal range. I am not sure if the small town doc thought to check insulin / glucos level --- they ruled my rapid heart rate episodes as anxiety - panic attacks, but maybe that was the first sign of a pancreas problem since I had a cortisone injection into the hip and this can cause glucose levels to lower in some people.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jny1179 Newbie

With all of those symptoms, I would definitely ask to be tested for Celiac. They may try to tell you that it couldn't be Celiac for whatever reason, but don't be afraid to push. And don't stop at bloodwork, get an endoscopy too. I'm not saying all your symptoms are definitely Celiac, but it's definitely worth getting tested when you can't find any other answers. If all the tests come back negative, you might try the gluten-free diet anyway, but wait until after the tests to start it as going gluten-free early can produce false negatives. Good luck and I hope you feel better soon!!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,904
    • Most Online (within 30 mins)
      7,748

    Lizsan
    Newest Member
    Lizsan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Shining My Light
      @trents I’m pretty sure what I’m left with when separating celiac to other causes is my 10% being a virus. The one I had about 3 weeks before taking this TTG test. Everything I’ve read says type 1 diabetes, rheumatoid arthritis, hepatitis and some viruses are what could cause the elevation. The other blood tests I had I can compare things against.  I’m going to give your article a thorough read. My support in my circle is very small at the moment.  @knitty kitty I think before EGD I would like to do the DNA test. I’m going to start keeping a better journal also.  I’ve read a crazy amount of these “articles” - these two I’ve not seen. Some articles spell celiac differently. Thank you for sharing! I’m gonna dive into those.   I started seeing the functional medicine doctors from fluctuations in my hormones and major anxiety. Recently I realize it’s mostly health anxiety also so this is more challenging to depict real from imaginary thus all the research and the back and forth. I know anxiety to be a common symptom in perimenopause. I’ve fought it my whole life however. Likely due to lots of different trauma but seeing her was my last ditch effort to try something to avoid SSRIs, HRT, etc. She told me not to blame everything on my hormones when there could be an underlying problem, so she ran some tests to see if anything stood out. The TGG tests stood out.  I do find it very interesting now that I think about it that I don’t desire bread, pasta and pizza. Sometimes yes, but mostly no. I guess I didn’t give that much thought. Also didn’t realize that those foods do contain more gluten than the tortillas and cake/baked goods. About 3 months ago I started ordering meal kits to make dinner easier. I went back over the menus that I picked. I have probably had bread and pasta a hand full of times over the last couple months prior to having that blood test. We used to get pizza every Friday and stopped doing that also. I’m all fairness about 2 months leading up to these blood tests I had less gluten containing foods than I thought.    I’ve been praying for wisdom. Thankful to find some counsel from people who I believe have dove harder into this than most doctors have. Thanks for all the advice. It’s appreciated more than you know. 💕
    • Alibu
      @knitty kitty My whole family has migraines and I started getting them at age 19, so I'm not sure mine are related to gluten, although I do feel like obviously the more inflamed my whole system is, the more likely I am to suffer from more of these things.
    • knitty kitty
      @Alibu, Just wanted to add... Migraines can be caused by thiamine insufficiency.  I used to have them, regularly, but haven't since supplementing with thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and Magnesium Threonate.  These forms get into the brain easily and really improve migraines.  I do still get Ophthalmic migraines which are triggered by computer screens.  It's permanent damage from nutritional deficiencies.  An Erythrocyte Transketolace test is a more accurate test for sufficient thiamine. Keep us posted on your progress!
    • Alibu
      @knitty kitty Thank you for those, I will definitely bring them up!  I did send a message to my doctor basically asking what they think so I'll go from there.  He may very well just decide that this was enough to diagnose celiac, but I have no clue what his thoughts are right now.  I also asked for a second opinion on the pathology.
    • knitty kitty
      @HilaryM, Are you eating a diet high in carbohydrates?  You might find a Paleo diet easier on your digestive system.  A Paleo diet can promote changes in  intestinal flora, effectively starving out SIBO bacteria.   Be wary of gluten free processed foods.  Many are not enriched or fortified with vitamins and minerals lost in processing like gluten containing foods are.  Talk to your doctor and nutritionist about supplementing with vitamins and minerals while healing.  Vitamins are organic compounds that the body cannot make and so must get from the diet.   Supplementing ensures our bodies get a fair chance to absorb the essential nutrients it needs.  
×
×
  • Create New...