Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Seems Almost Impossible To Stay Gluten Free


bluebonnet

Recommended Posts

sandsurfgirl Collaborator

I never assume others understand what celiac disease or gluten intolerance is. At our homeschooling group a few weeks ago, the kids were making cat and dog treats, and catnip pillows, for the local humane society. The mom in charge asked me to help the kids with the treats; I asked to see the recipe, and it called for flour. I told her I had celiac disease and shouldn't be near the flour, since wheat makes me sick. She said, "Oh, this is white flour, not wheat." I said, "if it's all-purpose flour, it's made of wheat." She said, "Really?!" Oh. My. Gosh. So I stationed myself at the catnip pillows table. :)

So I never assume a waitress will understand what I mean when I say, "I can't eat wheat." The waitress may have thought there's no way the soup had flour in it, and that as long as the croutons weren't on it, you were okay with it. Panera is such a bread-filled place, I don't eat there anymore because cross-contamination is so likely.

And about shampoos and lotions. For a looong time I thought i didn't need to worry about them. But I've had a bad rash on my forehead now for about two months, ever since I started using a new shampoo...and I just now read the label and it has wheat protein in it. I stopped using it, switched to a gluten-free shampoo and facial cleanser, and already my skin is getting better. It is possible for the wheat to irritate one's skin, or to cause an allergic reaction, if you have celiac. But it's not hard to find gluten-free products! Really. Dove will always list wheat, and Shikai makes nice shampoos and conditioners that are gluten free.

Lots of people don't know that white bread is made of wheat. A few days ago the In N Out manager was assuring me that there was no wheat in their buns. Oops.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eliogabalo Newbie

Lots of people don't know that white bread is made of wheat. A few days ago the In N Out manager was assuring me that there was no wheat in their buns. Oops.

Sometimes I get people trying to convince me that there no wheat in brown bread since it's supposed to be healthy. I feel that there is simply not enough education on the topic. When I was in Italy almost all restaurants had facilities for celiac people. A guy also told me that if you're celiac the government pays for your gluten free food which is available in all pharmacies!!

-----------------------

Feel my groove

-----------------------

Reba32 Rookie

Perhaps we should all move to either Italy or Ireland! :) Both are extremely celiac disease friendly apparently.

DownWithGluten Explorer

Sometimes I get people trying to convince me that there no wheat in brown bread since it's supposed to be healthy. I feel that there is simply not enough education on the topic. When I was in Italy almost all restaurants had facilities for celiac people. A guy also told me that if you're celiac the government pays for your gluten free food which is available in all pharmacies!!

-----------------------

Feel my groove

-----------------------

Right. Whole wheat bread has no wheat. :mellow: Sorry but that's just ignorance.

kareng Grand Master

I emailed Panera & got a list of gluten free foods. However, at the end of the email, the guy said (in corporate talk) that he didn't think it was a good idea for me to even go into the restuarant as flour & bread crumbs are everywhere & could even get into a coffee cup. I loved Panera & appreciated the honesty. My glutenfull family will still go there.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,821
    • Most Online (within 30 mins)
      7,748

    Chadrick Hinson
    Newest Member
    Chadrick Hinson
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @ARSTONE! The ingredients are listed as follows: Chicken, Water, Rice Flour, Tapioca Starch, Tamari Soy Sauce (Water, Soybeans, Salt, Sugar, Corn Starch), Contains 2% or less of: Canola and/or Sunflower Oil, Ginger, Scallions, Brown Sugar, Potato Starch, Rice Wine (Rice, Water, Salt), Chicken Soup Base (Chicken Meat with Natural Juices, Salt, Sugar, Yeast Extract, Chicken Fat, Onion, Potato Flour, Turmeric, Spice Extractives), Konjac Flour, Xanthan Gum, Chicken Powder, Salt, Black Pepper, Sesame Oil, Gelatin I have underlined the ingredients which could contain hidden sources of gluten. Xanthan Gum wouldn't contain gluten but it is a polysaccharide that is a common ingredient in prepackaged gluten free foods and poses digestive difficulties for many people. The same might be said for Konjac flour.  It is also possible that the product exceeds the specs for the FDA criteria of "gluten free" whose upper limit is 20 ppm of gluten. We are seeing this more often lately and many are calling for stricter sampling standards in the gluten free food industry such that testing is done more often.
    • Soleihey
    • ARSTONE
      I recently ate a package of feel good brand gluten-free chicken soup dumplings. Immediately after eating them, my stomach became extremely extremely bloated and gassy and it's two days later now and I'm still extremely uncomfortable. They say there's gluten-free and there doesn't appear to be anything in the ingredients that I think would be the problem. Has anyone else eaten these and had this experience?
    • Manaan2
    • AuntieAutoimmune
      Great tips, Deb. Thanks.  What a pity that they no longer mark items as gluten-free. And it is even more of a shame that you must bring protein bars instead of the crew helping you with your needs. Are you planning on sailing Royal again? 
×
×
  • Create New...