Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Doctor Needed In Northeast Ohio


JulieC

Recommended Posts

JulieC Newbie

I strongly suspect I have celiac. I am a 40 year old female. Two weeks ago, I went to my GP and had a "blood test". I got a referral to a gastroenterologist. I then started a gluten-free diet. I was told today that the "blood test" was "negative". However, my digestive issues resolved within about 2-3 days of starting gluten-free and after about a week I got this incredible energy surge and feel better than I have for decades, perhaps ever. I had an upset abdomen again last night and today again and realized I screwed up the gluten-free with imitation crab. Whoops, now I know.

I'd like a gastroenterologist that is very knowledgable about celiac, as I am convinced myself but with a "negative blood test". If you can't tell, I am very sceptical that the appropriate test was run and/or interpreted correctly. In any case, my digestive system has been a hot mess for years and its about time I got it straightened out.

Symptoms, that have improved after two weeks of gluten-free: diarrhea (mixed with constipation), excessive foul gas, abdominal bloating//distention/pain, fatigue, irritability, anxiety, joint pain.

Thank you for your help!

Julie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



chasbari Apprentice

I strongly suspect I have celiac. I am a 40 year old female. Two weeks ago, I went to my GP and had a "blood test". I got a referral to a gastroenterologist. I then started a gluten-free diet. I was told today that the "blood test" was "negative". However, my digestive issues resolved within about 2-3 days of starting gluten-free and after about a week I got this incredible energy surge and feel better than I have for decades, perhaps ever. I had an upset abdomen again last night and today again and realized I screwed up the gluten-free with imitation crab. Whoops, now I know.

I'd like a gastroenterologist that is very knowledgable about celiac, as I am convinced myself but with a "negative blood test". If you can't tell, I am very sceptical that the appropriate test was run and/or interpreted correctly. In any case, my digestive system has been a hot mess for years and its about time I got it straightened out.

Symptoms, that have improved after two weeks of gluten-free: diarrhea (mixed with constipation), excessive foul gas, abdominal bloating//distention/pain, fatigue, irritability, anxiety, joint pain.

Thank you for your help!

Julie

I find it well worth the drive to Alliance Ohio to see my Doc at Premier Health Associates:

Jean D. Dib, M.D. is the one who got me through my diagnosis. Love the man for his compassion and understanding. He was recommended to me by Denise Ramey who facilitates the local Celiac support group at Raisin Rack.

If it is OK to post a phone number I will (330)823-4000

He is the PCP and point man for a my team including my Gastro Dr. John Park also in Alliance.

Good luck with your search.

CS

  • 7 months later...
StacyA Enthusiast

I'm replying to bring this post back up - since I have the same question. Any good primary care doctors around Akron, Canton, Tallmadge, Kent areas that are familiar with the intricacies of celiac disease? (Not a GI doctor, unless s/he also understands the neurological and other problems that can occur.)

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,075
    • Most Online (within 30 mins)
      10,442

    Nan7472
    Newest Member
    Nan7472
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
    • Aretaeus Cappadocia
      You have an odd story there. To me, the mechanical trigger suggests a mechanical problem and lower leg pain is a classic sciatica symptom. The fact that the clear mechanical linkage is no longer there does not take away from the fact that it was - maybe something shifted and the simple alignment is no longer there. There's also a good chance I am wrong and it's something else entirely. @Scott Adams's mention of shingles is interesting. It seems possible but unlikely to me, but who knows. However, I am writing here to reinforce the idea of getting the shingles vaccine. Ask anyone who has ever had shingles and they will bend your ear telling you how bad it is. I watched my wife go through it and it scared the bejeebers out of me. Even if you had the chicken pox vaccine, you really want to get the shingles vaccine.
    • HectorConvector
      Oddly this effect has gone now, just happened yesterday evening, the nerve pain is now back to its usual "unpredictable" random self again - but that was the only time I ever had some mechanical trigger for it, don't know why! There's no (or wasn't) actual pain in my neck - it was inside the leg, but when I looked down, now though, the leg pain just comes and goes randomly as before again.
×
×
  • Create New...