Celiac.com Sponsor (A1):



Celiac.com Sponsor (A1-m):


  • You've found your Celiac Tribe! Join our like-minded, private community and share your story, get encouragement and connect with others.

    💬

    • Sign In
    • Sign Up

Archived

This topic is now archived and is closed to further replies.

SLB5757

Anyone Else With...

Recommended Posts

OMG...

I went to the ER once doubled over in severe pain. The curtain on my bed was open a bit and I could see the doctor across the way looking at my xrays. It was quiet in there so I knew they were mine. He said "Oh my God!!" and called the nurses over. They were all pointing at my x ray and one nurse said "Whoa!"

Sandsurfgirl, this story will haunt my nightmares forever! I'm so sorry about that. Pre-this diet, I'd have bad spells where I wouldn't go for over a week. I'd think, "Is this normal?" But I never pictured this scenario.

How long did you "not" go till this happened?

Its almost as if my bowels completely shut down for four days (sometimes three), followed by a day or two of going to the bathroom three times or more, and then it returns to normal again. It is a very noticeable pattern. Of course I get very anxious, extremely tired, almost feel like I have a "mask" over my eyes, and get severe stomach pains as well following any accidental consumption.

My symptoms EXACTLY! When I'm glutened, it's shut-down mode, no BM for 3-4 days, then "pebbles" or stuff with white tissue (sooooorry, too much information. I'm even grossed out writing that), and "mask over eyes" and general crankiness.

Glad I'm not the only one!

Btw, as far as the mis-interpretation of Reba32 and SLB, it's one of the curses of the internet...people have different styles of communicating, and trying to appear warm over a machine can be difficult. But I love this board!

Share this post


Link to post
Share on other sites

Same for me. My aunt put out many options for Easter brunch which were safe for me, but my grandma bought a pie with a bit of a meringue layer and a thin, crispy crust. I have not yet told her about my new gluten-free diet and decided that a large family get-together already just a little tense was not the time to announce the change and the pie was the safest of all the dessert options. I will definitely be discussing the diet with a few family members at a time asap because within 10 minutes of swallowing the last bite of pie crust, I started noticing discomfort and pain and felt my intestines first go hyperactive and then shut down. For the last two days I've been fluctuating between the extremes of that spectrum, but mostly feel like my insides have shut down and every time I eat or drink any amount it just becomes worse.

Share this post


Link to post
Share on other sites

So you can see constipation on an x-ray? What can you see? I did a google image search, and I'm not sure what I'm looking for. Does it just look like bigger intestines? Or more visible than normal?

Also... where does it all go? I mean, that time I was backed up for 10 days, I was big, but not 30 meals big.


Gluten free since Feb 2006, Dairy and Soy free since 2009

Anemic off and on since 2003

Negative tTG Ab, IgA, Gliadin Ab IgA, wheat allergy (IgE) blood tests (Feb 2006)

Positive wheat allergy skin test(Apr 2006)and dietary response (Feb 2006)

Celiac grandmother (Dx in 1940s, "grew out of it")

Training for my first triathlon to support the Crohn's and Colitis Foundation of America.

~Amy

Share this post


Link to post
Share on other sites

I guess this would be one of my main symptoms after I eat wheat. Its almost as if my bowels completely shut down for four days (sometimes three), followed by a day or two of going to the bathroom three times or more, and then it returns to normal again. It is a very noticeable pattern. Of course I get very anxious, extremely tired, almost feel like I have a "mask" over my eyes, and get severe stomach pains as well following any accidental consumption. Just wondered if others are completely constipation predominant. I really feel like my system goes into 'shut down' mode rather than "get it out" mode as most celiacs suffer from.

I have been diagnosed with celiac six months ago, and I am trying very hard "to get it right"..Once in awhile I eat something and I notice it had gluten..As far as the constipation, I have had it for a few years. A friend of mine, who is a nurse came over, and I was telling her how tired I am..she said to try flax seed oil, she does, and feels great..so I went to the pharmacy and talk w/ the pharmacist..it helps w/ constipation! Along with arthritis, cardio and vascular..The constipation is not entirely gone, but makes things ALOT better. I dont know if it is the flax seed oil or not, but since I started I dont feel nauseated most of the time either. But my question is..before I was diagnosed I had problems w/ difference food, the skin problems, etc., but I could eat certain foods and it wouldnt bother me, but now that Im diagnosed, I can tell if there is gluten or not, and get symptoms right away. Sometimes I wonder if this is in my head..

Share this post


Link to post
Share on other sites

Yeah bad. Not to go into to much details but I've had it to the point where I ended up really ill. So yeah -the last thing they think is celiac even though judging from this thread its fairly common :rolleyes:


HLA DQ8, gluten-free since January 2011

Share this post


Link to post
Share on other sites