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What Is Your Response When People Say.....

sahm-i-am

By sahm-i-am
in Coping with Celiac Disease

Recommended Posts

Gemini Experienced
Gemini
Posted

I think you are pretty new to this still. I remind myself all the time that it could be worse.

I'm with you......when I think of all the diseases there are, I would still choose celiac disease over any of them. I actually get very annoyed when people say they are sorry if I end up having to mention I have Celiac. I always reply that they don't need to apologize to me as things could always be a lot worse. I could have a disease I have no control over. I have felt this way from day one because I am forever grateful that I found the problem and can eat and feel great again!

I think many get to this point after awhile when their focus changes...that can take time.

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jerseyangel Proficient
jerseyangel
Posted

Them: It could be worse

Me: I know, I could have your thighs!

:lol::lol::lol:

mushroom Proficient
mushroom
Posted

"I could have your thighs!"

Can't use this one, I do have her thighs :lol:

heatherjane Contributor
heatherjane
Posted

People are going to say ignorant things...that's the way of the world. For the most part, I've found that people who've made ignorant comments to me are well-meaning and really aren't trying to be rude. It just gives me an opportunity to educate them. In many ways, the celiac diagnosis has been a blessing to me (even though sometimes I curse it)...things really could be much worse. The trick is remembering that on the not so good days.

Ahorsesoul Enthusiast
Ahorsesoul
Posted

People are going to say ignorant things...that's the way of the world. For the most part, I've found that people who've made ignorant comments to me are well-meaning and really aren't trying to be rude. It just gives me an opportunity to educate them. In many ways, the celiac diagnosis has been a blessing to me (even though sometimes I curse it)...things really could be much worse. The trick is remembering that on the not so good days.

So true. Thanks for the reminder.

sb2178 Enthusiast
sb2178
Posted

Yes, I tend to reply along the lines of "yes, I was very glad to find out it wasn't Crohn's disease. I have a friend who can't eat raw fruits and vegetables, beans, or whole grains... and she still ends up in the hospital regularly! So much easier to just avoid gluten. It could be worse. This just requires paranoia about everything I eat if I haven't made it."

Lostfalls Newbie
Lostfalls
Posted

it could be worse? it WAS worse! imagine taking all your meals and chucking them down the toilet...

lol after schooling my husband on cc issues and me bringing all my own food to his family reunion, he is showing me the box the burgers came in '100 pct beef' I said: and you're gonna cook it on what? and just blinked and walked away. later I saw him sneak down by his dads grill and check out the grates.... lots of *flavor* aughhhhhhhh!

Love it. Thank you.

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Lostfalls Newbie
Lostfalls
Posted

I need some witty, snide, smart or funny remarks to say to people when they say, "It could be worse" when I tell them I have Celiac Disease. Yes, of course it could. A few months ago we all thought I had cancer. Of course I am happy that was a misdiagnosis, but I would love for people to go gluten-free for 1 month and tell me how grateful and happy they feel!!! Especially since I was asymptomatic before and now I have ALL these GI issues. And I'm still mourning my Krispie Kreme donuts!!!!!

So, how about it - what should I say?

This line is great - I live in Redneck country and a "gluten-free" lifestyle is not looked kindly on at all. I have had a heck of a time getting my freinds and husband to understand. Even telling them point blank has made no difference, they think I am over dramatic and more than slightly on the yuppie side. Sarcasm will get through though - sometime flipping it back at them and speaking their language is what is needed. I think it depends on the where you are and the people you have to (or choose to) deal with. Hurts when that comes from a friend who watched you being sick before...

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      By Aretaeus Cappadocia · Posted

      @nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down your experiences and questions in outline form and bring this to your Dr. I suggest writing it down so you don't get distracted from telling the Dr everything you want to say while you have their attention.
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      @Russ H, I partly agree and partly disagree with you. After looking at it again, I would say that the slick graphic I posted overestimates the risk. Your math is solid, although I find estimates of gluten in white bread at 10-12% rather than the 8% you use. Somewhat contradicting what I wrote before, I agree with you that it would be difficult to ingest 10 mg from flinging bread.  However, I would still suggest that @nancydrewandtheceliacclue take precautions against exposure in this activity. I'm not an expert, I could easily be wrong, but if someone is experiencing symptoms and has a known exposure route, it's possible that they are susceptible to less than 10 mg / day, or it is possible that there is/are other undetected sources of exposure that together with this one are causing problems. At any rate, I would want to eliminate any exposure until symptoms are under control before I started testing the safety of potentially risky activities. Here is another representation of what 10 mg of bread would look like. https://www.glutenfreewatchdog.org/news/wp-content/uploads/2019/10/10mgGlutenCrumbsJules.jpg Full article that image came from: https://www.glutenfreewatchdog.org/news/what-does-10-mg-of-gluten-look-like/
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