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sahm-i-am

What Is Your Response When People Say.....

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I think you are pretty new to this still. I remind myself all the time that it could be worse.

I'm with you......when I think of all the diseases there are, I would still choose celiac disease over any of them. I actually get very annoyed when people say they are sorry if I end up having to mention I have Celiac. I always reply that they don't need to apologize to me as things could always be a lot worse. I could have a disease I have no control over. I have felt this way from day one because I am forever grateful that I found the problem and can eat and feel great again!

I think many get to this point after awhile when their focus changes...that can take time.

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Them: It could be worse

Me: I know, I could have your thighs!

:lol::lol::lol:


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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"I could have your thighs!"

Can't use this one, I do have her thighs :lol:


Neroli

"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973

Lactose free 1990

(Mis)diagnosed IBS, fibromyalgia '80's and '90's

Diagnosed psoriatic arthritis 2004

Self-diagnosed gluten intolerant, gluten-free Nov. 2007

Soy free March 2008

Nightshade free Feb 2009

Citric acid free June 2009

Potato starch free July 2009

(Totally) corn free Nov. 2009

Legume free March 2010

Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

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People are going to say ignorant things...that's the way of the world. For the most part, I've found that people who've made ignorant comments to me are well-meaning and really aren't trying to be rude. It just gives me an opportunity to educate them. In many ways, the celiac diagnosis has been a blessing to me (even though sometimes I curse it)...things really could be much worse. The trick is remembering that on the not so good days.

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People are going to say ignorant things...that's the way of the world. For the most part, I've found that people who've made ignorant comments to me are well-meaning and really aren't trying to be rude. It just gives me an opportunity to educate them. In many ways, the celiac diagnosis has been a blessing to me (even though sometimes I curse it)...things really could be much worse. The trick is remembering that on the not so good days.

So true. Thanks for the reminder.


1960s-had symptoms-could have been before but don't remember

1970s-told had colitis or nervous stomach-was given phenobarbital, felt great but still had symptoms

Me, dd and ds diagnosed with Lactose Intolerance

2000-osteopenia

2001-had stroke because of medications I was given

June 2003-saw Chiropractor who specialized in nutrition: Celiac Disease not Lactose Intolerance, went gluten free with once in awhile cheating, off soy and dairy for about 6 months

June 2003-found excellent doctor for fibromyalgia (who has found out she has Celiac Disease)

May 2006-went gluten free with NO cheating-excellent! Made all the difference in the world

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Yes, I tend to reply along the lines of "yes, I was very glad to find out it wasn't Crohn's disease. I have a friend who can't eat raw fruits and vegetables, beans, or whole grains... and she still ends up in the hospital regularly! So much easier to just avoid gluten. It could be worse. This just requires paranoia about everything I eat if I haven't made it."


2/2010 Malabsorption becomes dramatically noticable

3/2010 Negative IgA EMA; negative IgA TTG

4/2010 Negative biopsy

5/2010 Elimination diet; symptoms begin to resolve on gluten-free diet round two (10 days)

5/2010 Diagnosed gluten sensitive based on weakly positive repeat IgA & IgG TTGs and dietary response; decline capsule endoscopy.

Now, what to do about my cookbook in progress? Make it gluten-free?

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it could be worse? it WAS worse! imagine taking all your meals and chucking them down the toilet...

lol after schooling my husband on cc issues and me bringing all my own food to his family reunion, he is showing me the box the burgers came in '100 pct beef' I said: and you're gonna cook it on what? and just blinked and walked away. later I saw him sneak down by his dads grill and check out the grates.... lots of *flavor* aughhhhhhhh!

Love it. Thank you.

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I need some witty, snide, smart or funny remarks to say to people when they say, "It could be worse" when I tell them I have Celiac Disease. Yes, of course it could. A few months ago we all thought I had cancer. Of course I am happy that was a misdiagnosis, but I would love for people to go gluten-free for 1 month and tell me how grateful and happy they feel!!! Especially since I was asymptomatic before and now I have ALL these GI issues. And I'm still mourning my Krispie Kreme donuts!!!!!

So, how about it - what should I say?

This line is great - I live in Redneck country and a "gluten-free" lifestyle is not looked kindly on at all. I have had a heck of a time getting my freinds and husband to understand. Even telling them point blank has made no difference, they think I am over dramatic and more than slightly on the yuppie side. Sarcasm will get through though - sometime flipping it back at them and speaking their language is what is needed. I think it depends on the where you are and the people you have to (or choose to) deal with. Hurts when that comes from a friend who watched you being sick before...

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