Celiac.com Sponsor (A1):


Join eNewsletter


Celiac.com Sponsor (A1-m):



Join eNewsletter

Archived

This topic is now archived and is closed to further replies.

Recommended Posts

I do not have celiac but I recently got my vitamin D tested through Direct labs and was 21.9.

1) How low was your vitamin D when it was tested?

2) How much vitamin D do you take?

3) How long did it take for your vitamin D to go up after supplementing?

Share this post


Link to post
Share on other sites

Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):


Hi. Mine was 16.7 (range 32.0-100). My Dr. put me on 50,000 units once a week for two months and then I took 4,000 units a day for about three months now I am down to 1,000 units a day. At my last visit she said I was in the normal range now.


Started on this journey w/ my 9 yr old son after a bout w/ the flu in the fall of 2009.

2 neg celiac blood tests, mine was also neg. No endo done. Son had x-ray, showing severe constipation. Son has latex allergy. KP for both of us.

Long family history of bowel problems, auto-immune and all sorts of cancers. My G-mother informed me that she was put on a gluten free diet after she had my mom (1950's), of course she stopped when she felt better. She has had problems ever since I can remember.

So here we are! I do have my son's Dr to thank for even bringing up celiac! Thank You Dr.B!

My adult daughter also has been helped by eating gluten-free.

Share this post


Link to post
Share on other sites

Hi! I just got back my results yesterday.

I had: Vitamin D, 25-OH, total 31 referance range: 30 to 100

Vit D, 25-OH, D3 31

Vit D, 25-OH, 02 <4

Note: 25-OHD3 indicates both endogenous production and supplementation. 25-OHD2 is an inbdicatore of exogenous souces such as diet or supplementation. Therapy is based on measurement of total 25-OHD, with levels <20ng/mL indicative of Vitamin D deficiency, while levels between 20ng/mL and 30ng/mL suggest insufficiency. Optimal levels are > or = 30 nag/mL.

My doctor told me that I need to take Vitamin D supplement 1 000 units for the three monts, and I should be ok. He would retest me after that.

I hope that this will help you some how.

Share this post


Link to post
Share on other sites

I'm thinking mine was 17. My doc simply had me start taking 4000 units/day. I haven't been retested as it was just discovered in the past month. Is this a normal symptom of being gluten-intolerant? I am also a 51 yr old woman going thru the change. I assumed it was due to that. Maybe a double-whammy? I know my mood seemed to noticeably pick up after starting to take the added D.

Share this post


Link to post
Share on other sites

I'm thinking mine was 17. My doc simply had me start taking 4000 units/day. I haven't been retested as it was just discovered in the past month. Is this a normal symptom of being gluten-intolerant? I am also a 51 yr old woman going thru the change. I assumed it was due to that. Maybe a double-whammy? I know my mood seemed to noticeably pick up after starting to take the added D.

Glad to hear you all have been tested. I went through Direct Labs for $69 (those of you who are intrested plus you can get 10% off if you search Direct Labs coupon). My understanding is that many people are deficient in vitamin D and it plays an important role in preventing cancers, MS, autoimmune, and osteoprosis. I think those of you who have celiac should really consider checking your vitamin D and everyone else as well as it is an important vitamin.

Share this post


Link to post
Share on other sites

Mine is 14.4 (normal range is 30-100).

My doctor gave me a shot of vitamin D. I'll get another test done in 3 months and based on the results, he'll decide if I need another shot. He said that it'll take a long time for my vitamin D level to increase if I take oral tablets... he felt it's best to take the shot.

Share this post


Link to post
Share on other sites

Mine is 14.4 (normal range is 30-100).

My doctor gave me a shot of vitamin D. I'll get another test done in 3 months and based on the results, he'll decide if I need another shot. He said that it'll take a long time for my vitamin D level to increase if I take oral tablets... he felt it's best to take the shot.

Wow that is low! Glad he gave you a shot. Take care. Enjoy some sunshine :)

Share this post


Link to post
Share on other sites

Mine was 17 also (range 32-100) and was put on RX vitamin D 50,000 iu capsules once a week and I am still currently taking this dosage. I was retested at 3 months and it went up to the minimum range. I have had labs over the last 1 1/2 years since I started taking it and I am now at 64.2. My GI, endo and gyn all recommended me staying on it year round and like to see the level between the 50-70 range.


Me:
Celiac disease(positive blood work/biopsy- 10/2008), gluten free oat intolerent, Hashimoto's Thyroiditis/Disease, Raynaud's Disease


DS2(age 9):
celiac disease(positive IgA tTG, no biopsy- 11/2010)


DS1(age 13):
repeated negative bloodwork and negative EGD/biopsy. Started on a gluten free trial(8/2011). He has decided to stay gluten free due to all of the improvements he has experienced on the diet.

Share this post


Link to post
Share on other sites

Thanks :D

In fact, I have been going out in the early morning sun after seeing my results!

i dont think the early morning sun is going to do you overmuch good.....10-20 minutes of FULL sun a day, i think is the idea.....

Share this post


Link to post
Share on other sites

I agree with Frieze, but it depends where you live. I'm in Maine, USA and I've read that you need direct sun on clean (no sunscreen) skin between 10am and 3pm. Unfortunately, it only works here between May and September (different experts give different time frames). In the winter the angle of the sun prevents the right rays from reaching us. At all. I have osteopinea, so although my Vit D test was 39.5, my PA has me taking 50,000 units weekly for 8 weeks to see if I can get my numbers up because of the relationship between Vit D and calcium absorption. (Some researchers think the "normal" range of 30 or above is too low for optimum health and we ought to be trying for 50+.)

Share this post


Link to post
Share on other sites

2007 : 15

50,000 IU/ one weekly for 12 weeks

retest: 72

daily: 1200 IU

2010: 32 (and this was when I was doing lots of mid-day gardening, too... bah!)

new dose: daily 3200 IU


2/2010 Malabsorption becomes dramatically noticable

3/2010 Negative IgA EMA; negative IgA TTG

4/2010 Negative biopsy

5/2010 Elimination diet; symptoms begin to resolve on gluten-free diet round two (10 days)

5/2010 Diagnosed gluten sensitive based on weakly positive repeat IgA & IgG TTGs and dietary response; decline capsule endoscopy.

Now, what to do about my cookbook in progress? Make it gluten-free?

Share this post


Link to post
Share on other sites

Well, I usually go out in the sun around 8am for 10-12 minutes. I stay in Dubai where we have full sun (no clouds) for 350 days of the year!

I always thought that going out in the sun between 10am and 3pm would increase the risk of skin cancer?

Share this post


Link to post
Share on other sites

Well, I usually go out in the sun around 8am for 10-12 minutes. I stay in Dubai where we have full sun (no clouds) for 350 days of the year!

I always thought that going out in the sun between 10am and 3pm would increase the risk of skin cancer?

It does. I suspect the sun in Dubai is completely different than we are used to here in the States. My doc recommended the supplements over spending time in the sun because she figured in the fact that most people use sunscreen these days (or should, which would lower the Vit. D exposure also. I have to admit I'm surprised at the amounts many people are taking here.

Share this post


Link to post
Share on other sites

I do not have celiac but I recently got my vitamin D tested through Direct labs and was 21.9.

1) How low was your vitamin D when it was tested?

2) How much vitamin D do you take?

3) How long did it take for your vitamin D to go up after supplementing?

1) My result was 2. I haven't seen the hard copy so I'm not sure of the range but he said it should be a minimum of 50 and 70 was optimal. So 2 was terrible.

2) He put me on 3 x 1000 IU per day.

3) I don't know yet, haven't been re-tested. He said it takes a long time, a few months at least.

I live in Australia so even if I'm not lying in the beach, I still should be getting a fair amount of sun so I was really shocked how low mine was.

Share this post


Link to post
Share on other sites

To blissfully unaware: I agree that where you live on the planet determines what time of day is best for getting sun. Doing a little research on the recommendations for your latitude is extra important. The options for those of us living in very northern and southern latitudes is limited to certain months and times of day. The closer you live to the equator, the bigger your "window of opportunity" would be. Certainly 8am could be the safest time of day for you to collect some natural Vitamin D, but do be careful to limit your exposure without sunscreen.

Share this post


Link to post
Share on other sites

Mine is 60 and I was just dx'd with celiac by blood test 2 weeks ago. I guess that hadn't gone down yet.


Positive TTG IGA blood test 8/13/10

Endoscopy confirmed 8/31/10

Started gluten-free diet 9/1/10

Share this post


Link to post
Share on other sites