Jump to content

  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Change In Alexia Frozen Potato And Sweet Potato Products

T.H.

Recommended Posts

Coleslawcat Contributor
Coleslawcat
Posted

This is on my list of ten thousand questions for the doctor. Just because we might not be sensitive, does that then correlate to no damage? I mean, can't we still be ingesting gluten and not tell? Only a blood test would tell? Is or is not gluten gluten? (!)

Plumbago

I did a follow-up biopsy at 19 months gluten free just for that reason. I never cheat, but I do eat out somewhat often. I wanted to be sure that my lack of reaction equaled a lack of damage. My bloodwork came back clean. My biopsy, which had shown complete villous atrophy also came back 100% normal. It was such a relief to realize that I was not causing damage that I wasn't detecting.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


T.H. Community Regular
T.H.
Posted
  • Author

Just because we might not be sensitive, does that then correlate to no damage? I mean, can't we still be ingesting gluten and not tell?

Based on a little information on a recent study, I'd say we just can't tell on our own, although we can probably guess, based on how we feel, I'd suppose. The study was published last year (I think June?), and was looking at celiacs and how they are healing. By 5 years, a good percentage of celiacs hadn't healed - at least 1/3.

But in the details within the study was the fact that some of the celiacs who healed perfectly were those who were very strict on their diet AND those who cheated on their diet fairly regularly.

Among those who hadn't healed completely by 5 years were...those who were very strict on their diet, and those who cheated on their diet fairly regularly.

More strict celiacs healed, and more cheaters didn't heal, but it didn't sound like anyone had a clue why there would be both diet-types who healed AND didn't heal. If I recall right, it was even mentioned briefly as something that is worth more study later, to see if they can figure out what's going on to cause this. Figure out why some people can heal so easily, and some have such a hard time.

I hope they figure it out soon! Maybe there's something the easy healers have that we can get into us not-so-easy healers! :-)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,142
    • Most Online (within 30 mins)
      10,442
    Deebergstrom
    Newest Member
    Deebergstrom
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • DanMc
      Gluten attack severe insomnia and anxiety?

      By DanMc · Posted

      BuddhaBar, I came across this thread while searching online for celiac insomnia (having also scared myself stupid by finding out about fatal insomnia) and it did bring me some piece of mind as it so closely matches my own experience. I know this thread is old now, I hope you're doing well, and thanks for posting your experience.
    • cristiana
      Anyone else get a lot of upper respiratory infections?

      By cristiana · Posted

      That's great news, @HelloFlowersGoodbyeFlour.  And you might find that if you do have asthma, keeping your reflux under control may help, if my experience is anything to go by.  
    • trents
      Anyone else get a lot of upper respiratory infections?

      By trents · Posted

      Asthma seems like good guesss.
    • HelloFlowersGoodbyeFlour
      Anyone else get a lot of upper respiratory infections?

      By HelloFlowersGoodbyeFlour · Posted

      Quick update I ended going to a clinic they heard me wheezing and gave me a steroid shot I’m feeling much better now and I’m planing on getting reevaluated for asthma as the clinic doctor is thinking it might be that based on how I reacted to the steroid. But he couldn’t diagnose.  thanks again to everyone that applied (still seeing the gastrointestinal doctor too!) 
    • cristiana
      Anyone else get a lot of upper respiratory infections?

      By cristiana · Posted

      Definitely worth speaking to your gastroenterologist about this. My own told me that by using Gaviscon a barrier forms over the contents of the stomach and stops gas and acid irritating the throat.  In fact, he said to me that because I found relief using Gaviscon that was a very clear indicator that reflux was the cause of that particular issue.   A wedge pillow will really help with this - or raising the top bed legs with bricks.
×
×
  • Create New...