Celiac.com Sponsor (A1):



Celiac.com Sponsor (A1-m):


  • You've found your Celiac Tribe! Join our like-minded, private community and share your story, get encouragement and connect with others.

    💬

    • Sign In
    • Sign Up

Archived

This topic is now archived and is closed to further replies.

Twinklestars

It Has To Be Celiac.

Recommended Posts

I love how I feel when I'm off gluten, it makes it so obvious it isn't good for me.

Were you gluten free or gluten light when those tests were run? If you were that would cause a false negative.

If you feel better gluten free then just stay gluten free and heal.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

Share this post


Link to post
Share on other sites

I had negative blood work, but positive biopsy. There's a 30% false negative in the blood tests.

Check some of the medical info sites for this and make a print out of it. Push for the tests you need.

That being said, if the Docs won't give you the tests you can still go gluten-free.

Share this post


Link to post
Share on other sites

Raven, I had been gluten free for 4 days when the tests were run. But my doctor said that you needed to be off gluten for 2 weeks before test results were affected?

I guess that's the good thing about being affected by gluten - you don't need a doctor's opinion or approval to stay off it!

Well nothing else will happen until after my allergy testing, and the specialist for that has a waiting list of a couple of months. So I'm still gluten free :) I feel better this morning, less discouraged and glad I'm not still poisoning myself with gluten.

It's a good day!

Share this post


Link to post
Share on other sites

So I'm still gluten free :) I feel better this morning, less discouraged and glad I'm not still poisoning myself with gluten.

It's a good day!

In the end your response to the diet is what matters the most and it sounds like you are doing better. Hopefully you will have many more good days to come. If you have some ups and downs don't get discouraged.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

Share this post


Link to post
Share on other sites