Celiac.com Sponsor (A1):


Celiac.com Sponsor (A1):


Archived

This topic is now archived and is closed to further replies.

Twinklestars

It Has To Be Celiac.

Recommended Posts

I love how I feel when I'm off gluten, it makes it so obvious it isn't good for me.

Were you gluten free or gluten light when those tests were run? If you were that would cause a false negative.

If you feel better gluten free then just stay gluten free and heal.

Share this post


Link to post
Share on other sites

I had negative blood work, but positive biopsy. There's a 30% false negative in the blood tests.

Check some of the medical info sites for this and make a print out of it. Push for the tests you need.

That being said, if the Docs won't give you the tests you can still go gluten-free.

Share this post


Link to post
Share on other sites

Raven, I had been gluten free for 4 days when the tests were run. But my doctor said that you needed to be off gluten for 2 weeks before test results were affected?

I guess that's the good thing about being affected by gluten - you don't need a doctor's opinion or approval to stay off it!

Well nothing else will happen until after my allergy testing, and the specialist for that has a waiting list of a couple of months. So I'm still gluten free :) I feel better this morning, less discouraged and glad I'm not still poisoning myself with gluten.

It's a good day!

Share this post


Link to post
Share on other sites

So I'm still gluten free :) I feel better this morning, less discouraged and glad I'm not still poisoning myself with gluten.

It's a good day!

In the end your response to the diet is what matters the most and it sounds like you are doing better. Hopefully you will have many more good days to come. If you have some ups and downs don't get discouraged.

Share this post


Link to post
Share on other sites


  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17):




  • Forum Discussions

    That's good to know. I have my MRI on a celiac disease as it was requested by an ENT consultant to take a look at but again this is someone who isn't looking in regards to gluten ataxia but I can mention it to them and also give it to...
    The boat feeling did resolve but I do still have some residual balance issues. However I had ataxia impact from the time I was a child until my 40's. Glad to hear you are seeing someone that will be looking specifically for the UBOs. My neuro...
    I had a brain MRI over a year ago which wasn't specifically looking for signs of gluten ataxia - it was more just for reassurance as I was right at the beginning of my balance problems. I have a further brain MRI planned in May and this...