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It Has To Be Celiac.

Twinklestars

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ravenwoodglass Mentor
ravenwoodglass
Posted

I love how I feel when I'm off gluten, it makes it so obvious it isn't good for me.

Were you gluten free or gluten light when those tests were run? If you were that would cause a false negative.

If you feel better gluten free then just stay gluten free and heal.

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Bubba's Mom Enthusiast
Bubba's Mom
Posted

I had negative blood work, but positive biopsy. There's a 30% false negative in the blood tests.

Check some of the medical info sites for this and make a print out of it. Push for the tests you need.

That being said, if the Docs won't give you the tests you can still go gluten-free.

Twinklestars Contributor
Twinklestars
Posted
  • Author

Raven, I had been gluten free for 4 days when the tests were run. But my doctor said that you needed to be off gluten for 2 weeks before test results were affected?

I guess that's the good thing about being affected by gluten - you don't need a doctor's opinion or approval to stay off it!

Well nothing else will happen until after my allergy testing, and the specialist for that has a waiting list of a couple of months. So I'm still gluten free :) I feel better this morning, less discouraged and glad I'm not still poisoning myself with gluten.

It's a good day!

ravenwoodglass Mentor
ravenwoodglass
Posted

So I'm still gluten free :) I feel better this morning, less discouraged and glad I'm not still poisoning myself with gluten.

It's a good day!

In the end your response to the diet is what matters the most and it sounds like you are doing better. Hopefully you will have many more good days to come. If you have some ups and downs don't get discouraged.

Twinklestars Contributor
Twinklestars
Posted
  • Author

Thanks :)

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