Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Villi Damage Doesnt Go Away That Quickly......

alexsami

Recommended Posts

alexsami Contributor
alexsami
Posted

I dont understand why you guys say you have to be gluten free for so long before endoscopy....My doctor told me villi damage doesnt disappear that quickly and if you have it....it will show up.....???? whether eating gluten or not

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jestgar Rising Star
Jestgar
Posted

Since everyone heals at different rates, you can't assume that the damage will be healed quickly, or slowly. Even slight healing might be enough to cause a false negative.

navigator Apprentice
navigator
Posted

I think that you've picked up the posts wrong. It's not that you have to be gluten free before the scope but that if you've been gluten free for a while then you have to go back on gluten before the scope as the villi may have started to heal and you would get a false negative. I originally requested that my G.P. didn't refer me to GI as I didn't want to go back on gluten. However I finally agreed and had appointment with GI, who instructed me to go back on gluten until the scope (I will have been back on gluten for 7 weeks and a half weeks by then).

alexsami Contributor
alexsami
Posted
  • Author

I was gluten free for a month....went back on gluten for ONE week.....doctor said everything looked normal.....so i was just wondering

ravenwoodglass Mentor
ravenwoodglass
Posted

You can have a false negative even on a full gluten diet. How did your body react to adding gluten back in for that week?

nora-n Rookie
nora-n
Posted

if you were gluten free for a month and then back on gluten for one week, then you most likely have healed enough for the biopsy to be negative when they look at it through the microscope.

It should also be noted with the biopsy specimen that you had been gluten free, for they look for lots of damage. At this stage, the only thing abnormal would be increased numbers of IEL

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. dixonpete
      - dixonpete commented on dixonpete's blog entry in Pete Dixon
      1

      An early incubation and inoculation

      I forgot to add a status update on my health. I've had no issues. Been staying away from the foods I know cause GI problems: alcohol, peanuts and mayo. Stools are well-formed and of normal frequency. Consumption of gluten continues to have no effect.
    2. nanny marley
      - nanny marley replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Is it gluten?

      I was also told I had IBS years ago like literally it's just IBS the docter said I've had lots of the symptoms you say there plus much more but I'm convinced it's not just IBS although I feel very sorry for people who get told this too because IBS is a real problem for people too it's awfull how much ignorance is around in the world these days from docters...
    3. dixonpete
      1

      An early incubation and inoculation

    4. nanny marley
      - nanny marley replied to nanny marley's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      New here help needed

      Thankyou for that information yes I totally relate to that it's a very good read and I've felt like that too to the point were going out for dinner was aniexty before I even left home and it's funny her name is jean because that was my grandma's name and I also believe she coeliac undiagnosed because I look back now and she couldn't tolerate most things...
    5. Woodster991
      - Woodster991 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Is it gluten?

      I've had ibs for years however I have noticed recently when I've had alcohol and then the usual hangover takeaway I get a whole range of symptoms. To start with Gurgling in stomach Brain fog Occasional cramps Diarrhea Severe constipation where it comes out in slithers and very dry Knot in lower right abdo side. Sensitive...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,571
    • Most Online (within 30 mins)
      7,748
    Emi9catch
    Newest Member
    Emi9catch
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.5k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • nanny marley
      Is it gluten?

      By nanny marley · Posted

      I was also told I had IBS years ago like literally it's just IBS the docter said I've had lots of  the symptoms you say there plus much more but I'm convinced it's not just IBS although I feel very sorry for people who get told this too because IBS is a real problem for people too it's awfull how much ignorance is around in the world these days from docters try the elimination diet like I did gluten free I also did lactose because it was still bothering me I found a real big change I've read some members here say  it can be quite hard to get a diagnosis and help but there is plenty of self help here it's not wrong to self diagnose if you find that it truly is a Life changer be true to your own needs and ask people already suffering for advise it's about your quality of life now and for future this us were I'm heading if I have no luck with docters I will have luck helping myself 🤗
    • nanny marley
      New here help needed

      By nanny marley · Posted

      Thankyou for that information yes I totally relate to that it's a very good read and I've felt like that too to the point were going out for dinner was aniexty before I even left home and it's funny her name is jean because that was my grandma's name and I also  believe she  coeliac undiagnosed because I look back now and she couldn't tolerate most things like me unfortunately she got bowel cancer it's such a shame it's so unrecognised by the medical profession and by people too who do t suffer it because it can be very hard living with it so thankyou so much for this 
    • Woodster991
      Is it gluten?

      By Woodster991 · Posted

      I've had ibs for years however I have noticed recently when I've had alcohol and then the usual hangover takeaway I get a whole range of symptoms. To start with  Gurgling in stomach  Brain fog Occasional cramps  Diarrhea  Severe constipation where it comes out in slithers and very dry  Knot in lower right abdo side. Sensitive area to touch  Alot of mucus when passing stools  Feel sick    Had tests done but all came back okay apart from low in vitamin d
    • nanny marley
      Anyone Else Experiencing These Symptoms?

      By nanny marley · Posted

      Your on the right track lactose was a good change for me too this is a great forum keep asking questions I think we both found a pot of gold here to help us 😊 x
    • trents
      New here help needed

      By trents · Posted

      Ichthus is the Greek word (using English letters) for fish. The letters in the actual Greek word form an acronym that come from the first letters in the Greek words for "Jesus", "God's Son," "Savior".   Now, back to your family's denial of your celiac disease, I think you can relate to this:  
×
×
  • Create New...